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Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

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Recent Posts

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1
Do I Have HIV? / Re: Inflamed throat and kissing
« Last post by Jim Allen on Today at 09:14:17 am »
You kissed a guy, it's zero HIV risk and you don't need any of these tests over that.  We're not going to pretend otherwise as it would be a disservice to you and the community.

Move on with your life and please don't post about this again as it will lead to a ban. Thank you!

If you can't get over kissing someone you should consider talking to a therapist
2
Do I Have HIV? / Re: Inflamed throat and kissing
« Last post by stripe24 on Today at 08:10:40 am »
Hello, so I couldn’t put the feat past me and decided to get tested. I was offered the antibody/antigen test. It was negative. I just want to know a few things. What is the genotype test for hiv? The lab presented me with all these tests and I was confused. I just took the 4th generation test. But do I need the genotype test too? Is this for confirmation?
3
Insurance, Benefits Programs & HIV / Re: Express Scripts HIV meds
« Last post by Tonny2 on Today at 06:58:37 am »




           Ojo.          @PHILApoz, hi there!, I sent you a PM. I hope it can help you… Please keep us posted… Hugs
4
Insurance, Benefits Programs & HIV / Re: Express Scripts HIV meds
« Last post by kentfrat1783 on Yesterday at 10:55:59 pm »
Are you able to submit an application to Gilead for reimburement for the copay that you will need to pay? 

i get my Rx filled at the local pharmacy and they can't get the Viiv card to work so I submit it for reimbursement.  It does take a few months to get paid back but could be an option to look at. 
5
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Tonny2 on Yesterday at 07:34:43 pm »



            ojo.         @JimAllen, thanks for replying…I will save some money to visit  Ireland…hugs
6
Insurance, Benefits Programs & HIV / Express Scripts HIV meds
« Last post by PHLApoz on Yesterday at 03:39:45 pm »
Hello. I just want to ask if anybody here is availing their HIV meds through Express script? My company sponsored Health insurance is tied up with them. And so I have no choice but to avail my biktarvy with them. The trouble
Is they are no longer accepting product coupons from manufacturers  from Gilead. Hence I  have to pay 300 dollars for every three months of my treatments. I was wondering if they accept funding from Ryan White program?

Thanks
7
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by leatherman on Yesterday at 02:12:40 pm »
Quote from: Jim Allen on Yesterday at 12:37:01 pm
Keep it in the lab and stay there
while it makes a cool slogan (u=u) that's easy for the neggies to understand, every time a doctor talks to a patient, they should explain the # and discuss how under 200 is successful treatment. that would relieve a lot of patient stress. (like the stress of your worries, Joe, as I'm trying to work my rant back around to the your posts here. LOL)

The amount of people who have come here fearing the smallest "blip" under 200, just shows how under-educated patient's are about this infectious disease. And it's not all our faults for not knowing; doctors could easily explain this in under a minute...and not ruin their billing. LOL
8
Living With HIV / Re: "HOPE DIES LAST"
« Last post by Jim Allen on Yesterday at 12:42:15 pm »
Hiya.

It will be fine, true generic drugs have the exact same active ingredients, no difference whatever, so the same drug but cheaper.

Hope you spend the savings on something nice for yourself. Hugs.
9
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by Jim Allen on Yesterday at 12:37:01 pm »
Quote
it's only a concept and I wish it wasn't used

100% agree with this.

The term UD/Undetectable should be scrapped or at the very least not used when sharing results, labs or discussing VL with people living with HIV. Keep it in the lab and stay there. Makes me cringe whenever someone mentions it but I just have to live with that for now.
10
I Just Tested Poz / Re: Tested Positive on Jan 16 2024
« Last post by leatherman on Yesterday at 11:57:05 am »
the clinical definition of suppressed HIV, ie "successful treatment" is a VL<200.

unfortunately, even though the word is used a lot, the word "undetectable" is not really well-defined.....quite frankly, it's not a real number, it's only a concept and I wish it wasn't used.

Some people has used it as if it meant their HIV was cured, or completely gone. The definition of UD totally misses that we have reservoirs of latent HIV, that at any minute could release some and give you a VL of 10k, while your daily meds worked to knock that HIV out. An hour later you could have a VL of 0. The definition also misses the small group of people who are never able to quite reach UD but remain under 200.

The only important number for people living with HIV is that their VL <200.
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