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Author Topic: Question about Starting Treatment 4 Symptoms, not levels...And stopping...  (Read 2684 times)

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Offline BigPlans

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Has anyone here started treatment because of troublesome symptoms and not levels?  My levels are 500 T and 3,000 VL.  They have been practically identical both times I've been checked since diagnosed.
My problem is that I've had diarrhea for 6 months now.  I tested negative for giardia initially, then tested positive.  I did 2 rounds of treatment for giardia (doing my 3rd now) but the diarrhea and stomach rumbling hasn't stopped.  I retested last week for giardia and was negative.  We've tested for celiac disease, did a colonoscopy and they can't find any other cause of the constant diarrhea - So my doctor is suggesting I start hiv medication to see if it eradicates the diarrhea.  I know they no longer suggest a drug holiday - but he says that because I'm starting with my levels so low that if the hiv medication doesn't eliminate the diarrhea, then it wouldn't be harmful to stop and search for other causes of the symptoms.  Anyone had any kind of similar experience?

I was diagnosed six months ago and though my levels have been steady, I have felt like HELL ever since (diarrhea every day and now a throat that flares up with ulcers every few days).  I haven't seen any posts about these type things and was wondering if anyone else went through something similar before any treatment and when the levels were good.

Offline antibody

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Re: Question about Starting Treatment 4 Symptoms, not levels...And stopping...
« Reply #1 on: February 12, 2007, 01:13:08 PM »
my numbers were never really bad as of yet. i managed to avoid treatment for about 4 years after diagnosis and my decision to start wasn't based on my numbers. my viral load has never been over 40k and has been as low as 8300. my cd4 never fell below 475 but i was loosing weight and was always fatigued and sick to my stomach, no diarhea but always neauseas. so my doctor said we should give it a try to see if i feel better. well i can eat much more and managed to put on a few pounds and keep it but treatment has brought on a few new symptoms such as insomnia and cns effects from sustiva. i am scared to death about the toxicitity of the meds but i know well that loosing weight can be deadly too.
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Offline bimazek

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Re: Question about Starting Treatment 4 Symptoms, not levels...And stopping...
« Reply #2 on: February 12, 2007, 10:12:16 PM »
what caused the diareha in the first place, where you in mexico, did you take a strong anti biotic, were you having oral anal contact with one or many, what is your history of diahrea in the past, do you eat yogurt, look on this in

how long were you on flagyl
did you have good success with flagyl after 5 days but then off of it it came back

did you ever take ciprofloxin
that causes colustridium difficile

have you tried acidolpholis pills and liquid, have you tried drinking olive oil
how is your diet

exactly what do you eat every day


sleep per hour

does it come and go

you have good numbers my personal choice would not be go on meds if i were in your shoes until 350 or even 300 esp. since your v load is so so low

are you debilitated by the diahria

do you have boyfriend you regularly rimm
has he had these tests

do you live in warm climate like miami where these bugs live longer on doorknobs and such

no caffine


if you had giardia postive once it is extremely difficult to get rid off
i would recommend get dr. to ok 3 or 5 treatments over some time period day 5 months

see another dr. if necessary for 2nd opinion

is this a clinic or real health insurance with good coverage

were you in 3rd world country or with immigrants sexually they may have no symptoms of giardia

have you tried the liquid acidopholis at the health food store

yogurt 3x per day

culture your own yogurt to make sure it is full of the good bugs

wikipedia    http://en.wikipedia.org/wiki/Coprophagia i think men do this like elephants and gorillas because of intestinal flora, it is part of human evolution, instinct to want to do this, i mean any contact of mouth with that area is going to populate gut with good or bad depending on the doner

Offline fondeveau

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  • Posts: 425
Re: Question about Starting Treatment 4 Symptoms, not levels...And stopping...
« Reply #3 on: February 13, 2007, 05:07:12 AM »
My suggestion would be yogurt lots and lots of yogurt.

Offline Ann

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Re: Question about Starting Treatment 4 Symptoms, not levels...And stopping...
« Reply #4 on: February 13, 2007, 08:29:38 AM »
Hi Big,

I've had chronic squirts for years now and I use low dose dihydrocodeine to control it. I've also been tested for everything under the sun and I've also tried dietary changes etc, all to no avail. It just seems to be my body's particular way of letting me know I've got a virus inside me.

My doctor and I have also discussed starting treatment to see what happens, but as many of the meds themselves cause diarrhea, we have decided against it. I'll leave starting to when my numbers say I need to.

There is another drug (brand name Imodium, don't know the other name) but I can't take that as it makes me permanently nauseous. Ask your doctor about trying that, it may work for you. You may not be able to get the codeine for your problem though, as using it for diarrhea is "off-label" and codeine doesn't suit everyone.

Try dietary changes first though - just because it didn't make a difference to me doesn't mean it won't make one for you.

Good luck!

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