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Author Topic: Vision Loss  (Read 2908 times)

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Offline Biggums

  • Member
  • Posts: 199
Vision Loss
« on: January 25, 2007, 05:33:18 PM »
Does anyone have any links that would help for someone who is HIV poz, is not on meds, but is suffering from loss of vision in one eye?  Thanks
44 year old gay man .......just broke up with the only man I've ever really loved.

You can love completely without complete understanding.

Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: Vision Loss
« Reply #1 on: January 25, 2007, 05:43:56 PM »

If his CD4 are 50 or so it might be caused by CMV cytomegalovirus.

It is very serious and it causes blindness.

You can look at aidsinfonet.org and Google CMV.

Offline Christine

  • Member
  • Posts: 1,069
Re: Vision Loss
« Reply #2 on: January 25, 2007, 06:43:49 PM »
I agree with Alain, google CMV retinitis. Have they seen an opthamologist? If it would be cmv, it needs to be address very quickly. CMV can progress very fast to blindness. I have loss in my right eye from it. If your friend has any questions, please feel free to ask.
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline poet

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  • Posts: 934
  • Poet living and working in Central Maine
Re: Vision Loss
« Reply #3 on: January 25, 2007, 06:52:10 PM »
There is an article in the new Feb/Mar issue of POZ about a blind interior decorator which may have some info.  A neighbor of mine in NYC, the photographer John Dugdale, delayed dealing with his CMV creating true artistic challenges for his work.  This is not to sound alarmist, but, hopefully, to nudge you into getting someone to look at what is going on very soon.  Best, Win
Winthrop Smith has published three collections of poetry: Ghetto: From The First Five; The Weigh-In: Collected Poems; Skin Check: New York Poems.  The last was published in December 2006.  He has a work-in-progress underway titled Starting Positions.

Offline Miss Philicia

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  • Posts: 24,793
  • celebrity poster, faker & poser
Re: Vision Loss
« Reply #4 on: January 25, 2007, 07:36:18 PM »
You don't EVER want to mess with eye issues.  Please always go see an eye doctor about such things.
"Iíve slept with enough men to know that Iím not gay"

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: Vision Loss
« Reply #5 on: January 25, 2007, 07:45:36 PM »
Hi Biggums - In addition to the links Alain gave you you can also access CMV information right here at


Offline aztecan

  • Member
  • Posts: 5,517
  • 32 years positive, 60 years a pain in the butt
Re: Vision Loss
« Reply #6 on: January 25, 2007, 10:50:47 PM »
No loss of vision should be treated lightly.

If the individual has 50 or less CD4s, CMV is a prime candidate. But there are other vision problems that lead to blindness or seriously impaired vision.

The bottom line is, anyone noticing changes is vision should see an opthamologist as soon as possible.

Also, it is a wise precaution for everyone who is positive to see an opthamologist once a year.

Vision is nothing to take for granted.

Here is a link regarding CMV:



« Last Edit: January 25, 2007, 10:54:03 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Biggums

  • Member
  • Posts: 199
Re: Vision Loss
« Reply #7 on: January 26, 2007, 12:06:03 AM »
Thanks everyone!!!!
44 year old gay man .......just broke up with the only man I've ever really loved.

You can love completely without complete understanding.

Offline cubbybear

  • Member
  • Posts: 510
  • Joined August 2005.
Re: Vision Loss
« Reply #8 on: January 27, 2007, 06:11:59 AM »
Also a check for diabetes may be in order if their counts are fine and CMV is ruled out.  Diabetic retinopathy is also pretty nasty, and of course not HIV related.
There's a bear in there!
Positive since 2000
Diagnosed 17/9/2005 CD4 35 VL 293,000
Meds 23/9/2005 Sustiva/Truvada
Currently CD4 232 VL Undetectable

Offline Central79

  • Member
  • Posts: 527
Re: Vision Loss
« Reply #9 on: January 28, 2007, 08:53:20 AM »
The other possibility is immune reconstitution syndrome, if he's recently started HAART...
Diagnosed January 2006
26/1/06 - 860 (22%), VL > 500,000
24/4/06 - 820 (24.6%), VL 158,000
13/7/06 - 840 (22%), VL 268,000
1/11/06 - 680 (21%), VL 93,100
29/1/07 - 1,020 (27.5%), VL 46,500
15/5/07 - 1,140 (22.8%), VL not done.
13/10/07 - 759 (23.2%), VL 170,000
6/11/07 - 630 (25%), VL 19,324
14/1/08 - 650 (21%), VL 16,192
15/4/08 - 590 (21%), VL 40, 832

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Vision Loss
« Reply #10 on: January 29, 2007, 03:13:35 AM »
My eye doctor knows about my condition and I have to get checked every year ver. every two years. The last time I was there I was given a test paper to look at, at least once a week and if the boxes blur or wave then I have to go back in and see the doc.

Offline bear60

  • Member
  • Posts: 4,105
Re: Vision Loss
« Reply #11 on: January 29, 2007, 01:51:22 PM »
Used to be that the ASO's gave out that "test paper" to all their clients.  Its just a grid.  When you look at it you should be able to see all the lines in place.
Its called the Amsler grid. Here is a link to where you can see it......
Poz Bear Type in Philadelphia

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Vision Loss
« Reply #12 on: January 30, 2007, 07:30:30 PM »
Bear, I took markers and colored my boxes in. Now I have something nice to look at.  ;)

Offline bear60

  • Member
  • Posts: 4,105
Re: Vision Loss
« Reply #13 on: January 31, 2007, 11:32:05 AM »
Poz Bear Type in Philadelphia

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: Vision Loss
« Reply #14 on: February 01, 2007, 02:38:52 PM »
Here is yet another link:


Has anyone here experienced this?   I need to make an appointment with an opthamologist, but I have a different issue.   I've got one pupil which is slightly larger than the other and sometimes causes a glare or it gets watery like if strained too long.

Anyone had that?   Can't wait to hear the stories to fuel my hypochondria ;) 
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!


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