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Author Topic: Restless Leg Syndrome RSL  (Read 805 times)

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Offline Loa111

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Restless Leg Syndrome RSL
« on: March 02, 2023, 04:33:20 am »
Does anyone on here experience Restless Leg Syndrome RSL?

RSL has been bothering me the last few years since DX, just in my left leg and it comes on at nighttime usually a couple of hours before bedtime. I'm continually kicking out & shaking my leg in bed before I get to sleep. It is not painful, it's just a weird uncomfortable sensation.

I do not know if me having an advanced DX a few years ago caused it or not, damage from being sick with advanced hiv? I did mention it to the ID Doc before, they ran blood tests for diabetes & a few other tests which came back clear.  Or it could be genetic, as I remember my grandmother used to be jumping around years ago complaining of strange feelings in her leg.

Either way it is annoying & I'd love to get rid of it! 

Offline Jim Allen

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Re: Restless Leg Syndrome RSL
« Reply #1 on: March 02, 2023, 05:50:17 am »
Not a clue, but I hope it can be resolved, as it obviously is bothering you.

Quote
I do not know if me having an advanced DX a few years ago caused it or not, damage from being sick with advanced hiv?

Yeah, HIV itself can cause issues like neuropathy etc. It could be HIV or an infection you picked up when sick did some damage; I can't say.

Keep us posted, it will be interesting to hear if you find a solution to the problem.
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Offline J.R.E.

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  • Positive since 1985, joined forums 12/03
Re: Restless Leg Syndrome RSL
« Reply #2 on: March 02, 2023, 04:42:11 pm »
Hi,

Read this article from the Cleveland Clinic, and see if there are questions you can get out of it, to talk to your Doctor about. I think this is an informative article on RLS.

https://my.clevelandclinic.org/health/diseases/9497-restless-legs-syndrome#:~:text=People%20of%20any%20age%2C%20including,United%20States%20population%20has%20RLS.

Ray
Current Meds ; Viramune / Epzicom , Eliquis, Diltiazem. Pravastatin 40mg UPDATED 4/26/23
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of April 18th 2023, Viral load Undetectable. <20 (HIV log Copies <1.30)

CD 4 @661 /  CD4 % @ 18 %
Lymphocytes,absolute-3623 (within range)

CD8 Absolute- 2118 (H)
CD8 percentage-58 (H)
CD4/CD8 Ratio-0.37 (L)

71 YEARS YOUNG

Offline J.R.E.

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  • Positive since 1985, joined forums 12/03
Re: Restless Leg Syndrome RSL
« Reply #3 on: March 02, 2023, 04:44:53 pm »

And yes, you are right.  It could be genetic.
Current Meds ; Viramune / Epzicom , Eliquis, Diltiazem. Pravastatin 40mg UPDATED 4/26/23
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of April 18th 2023, Viral load Undetectable. <20 (HIV log Copies <1.30)

CD 4 @661 /  CD4 % @ 18 %
Lymphocytes,absolute-3623 (within range)

CD8 Absolute- 2118 (H)
CD8 percentage-58 (H)
CD4/CD8 Ratio-0.37 (L)

71 YEARS YOUNG

Offline Loa111

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Re: Restless Leg Syndrome RSL
« Reply #4 on: March 03, 2023, 04:59:59 am »
Thanks folks. That's a good article on RSL.

I do try natural methods to ease it, like walking/gym at night, and I must get back on the magnesium supplements, I ready too that calicated magnesium can help one sleep.

It's an incredibly annoying issue. My wife gets annoyed with me as she is trying to sleep, I am shaking & moving my leg around to try ease it. 

 


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