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Author Topic: Approaching 5 years Positive  (Read 1192 times)

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Offline daveR

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  • Posts: 194
Approaching 5 years Positive
« on: April 16, 2021, 05:13:37 am »
Almost 5 years since the dreaded day that I saw the word positive next to my HIV test. Doing well sill. A good CD 4 count at 739, 43.7%. Undetectable viral load. Basically been that way since about 3 months after I started meds. My kidneys were slightly out of spec again, creatine level at 1.2, so not far out, 1.18 is the upper limit on the scale at my hospital.
I was going to raise the question of changing my meds, currently take Ricovir-EM and Edurant to make Complera but didn't have to. My Dr raised it instead and suggested Biktarvy, her main reason was to help the kidney function. I jumped at it to drop the two pills and food requirements. I know two pills a day is no real inconvenience and I managed for almost 5 years, but the with or without food option makes travel more convenient. My plan is to just wake up, pop one pill and be done with it. I still have 2 months of my old regime left so the Dr said just finish them off and start the Biktarvy. Reasonable price also, roughly the same as my old regime at around 3600 Thai Baht a bottle. Could get them cheaper at the Thai Red Cross but don't want to travel, particularly during the pandemic, never no when they will restrict travel so I am happy to pay the hospital price.

Take care
Dave

Offline leatherman

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Re: Approaching 5 years Positive
« Reply #1 on: April 16, 2021, 06:36:37 am »
The first years are always troubling and confusing, getting used to the diagnosis and meds; but at some point, life simply becomes it's new normal and treating HIV is just another part of living life.

glad to hear that things are working out well for you!  ;) :D
leatherman (aka mIkIE)

Offline PozChilean

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Re: Approaching 5 years Positive
« Reply #2 on: April 17, 2021, 12:56:23 pm »
I'm glad you're doing well!

I didn't realize meds were so expensive in Thailand; my Complera bottle costs 1/3 of what you pay for (90% is covered by my insurance).

Offline daveR

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Re: Approaching 5 years Positive
« Reply #3 on: April 17, 2021, 08:46:27 pm »
I use a private hospital. No insurance coverage or state assistance. I think for local people meds are covered by the government 30 BAHT scheme. What ever they require costs just 30 BAHT, under a dollar from a government hospital
It is the price I pay for choosing to live there unfortunately.

Offline PozChilean

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Re: Approaching 5 years Positive
« Reply #4 on: April 17, 2021, 11:08:37 pm »
I use a private hospital. No insurance coverage or state assistance. I think for local people meds are covered by the government 30 BAHT scheme. What ever they require costs just 30 BAHT, under a dollar from a government hospital
It is the price I pay for choosing to live there unfortunately.
Ah, I see! Thank you for clarifying.

Offline joemutt

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Re: Approaching 5 years Positive
« Reply #5 on: April 17, 2021, 11:50:50 pm »
I'm glad you're doing well!

I didn't realize meds were so expensive in Thailand; my Complera bottle costs 1/3 of what you pay for (90% is covered by my insurance).

Depends; my meds cost about 50 usd per month here in Thailand. For my boyfriend they are free, not even 30 thb.
I am going to be 24 years on meds and 26 years here next month.
Good health to everyone!
« Last Edit: April 17, 2021, 11:58:00 pm by joemutt »

Offline terrymoore

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Re: Approaching 5 years Positive
« Reply #6 on: April 29, 2021, 12:30:57 am »
Hi Dave R,
For me it is also 5 years. i have decided to stop thinking about it and live a normal life and try not to give this thing of ours any thought. Sometimes, of course, we have no choice - twice a year for my checkups, when covid started and i worried, visa renewals and med-checks, travel etc. In general though, i have accepted and just try to move on.
Regarding Biktarvy, i am also considering moving to this regime. I am also on Complera and hate the food requirement - it is just a pain in the ass and forces me to eat when i really do not want to...(the problems we have these days...).
I worry that Biktarvy won`t be as available as the generic Complera. What do you think? I buy my meds at the TRC - much cheaper.
WDYT?

Offline daveR

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Re: Approaching 5 years Positive
« Reply #7 on: April 29, 2021, 01:35:25 am »
I was concerned about availability also, generic Complera comes in many shapes and forms so there should never be a supply problem with that. I was given the genuine Gilead Biktarvy, I did ask about the supply and she said it is ok. Now becoming more of the desired treatment at the Bangkok Hospital Pattaya. I think the TRC has had the generic version for a while so I think it will be a good move. The only thing that would concern me about generics is that most come from India and Covid is currently causing a lot of issues over there, not sure if that will have any knock on effect on drug supplies.
I was happy to make the swap though, I was getting tired of the food requirements. Lunch had become more of a chore than a pleasure, that and my kidneys had just gone slightly out of tolerance again. Other than that, I could not question the efficacy of Complera, it has done me well.

Offline joemutt

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Re: Approaching 5 years Positive
« Reply #8 on: April 29, 2021, 03:01:29 am »
The only thing that would concern me about generics is that most come from India and Covid is currently causing a lot of issues over there, not sure if that will have any knock on effect on drug supplies.
Hi Dave R,
Yes, with what is going on there now that would cause me also some concern.

Offline fabio

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Re: Approaching 5 years Positive
« Reply #9 on: April 29, 2021, 03:28:00 am »
I'm glad you are doing better now. Hopefully the regimen you have currently is convenient for you as well,although the fact you have to pay for it sucks.
The first years are difficult,even though I don't have much of the sentimentality or dramatic reaction now when taking meds,I still have days where I think about it and it gets me down for about 1 hour then I come to my senses again haha. It's definitely not going to keep us from loving our lives normally,that is for certain .

 


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