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Author Topic: Terrible fast and progressive symptoms. Neuropathy this early?  (Read 629 times)

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Offline Brazil

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Greetings from Brazil!

I've been reading this forum for a while now and would want to thank in advance everyone in here! You guy's are amazing! Also I would like to apologise for any english mistakes, hence it's not my first language.

So, I had an exposure (that I didn't know was an exposure  :-\) on December 15, and woke up on December 20 with a fever, fatigue and headache. I controlled it with over-the-counter medicine and didn't thought much of it in the beginning, since I didn't know that I was really in danger of getting this bug.

My symptoms since December have been very hard and kinda escalating/intermittent. More of a mono-like than flu-like symptoms. Symptoms are: fever (1 day only, controlled with medicine), fatigue, perianal pain and peeling skin, intermittent headaches, extreme diarrhea almost everyday, tingling, urinary incontinence, legs feeling weak, extreme sweats at night (and over the day too), swollen glands on the right neck and under the armpit, very hardcore insomnia, skin rashes (some itch some don't), lost a lot of weight and muscles (I was going to the gym before and it's noticeable)... Well, you see, the list goes on and on, don't want to bore you all with that. But I don't believe this can all be from hiv (or can it?! What a freaking bug this is!!!!), there must be a coinffection and my emotional must have played a role too (I went to a psychiatrist because I couldn't sleep and was in overall panic because of this situation and am taking a high dose of aprazolam -- sold as xanax in US -- but it didn't help with my sleep, only with my anxiety)

I have been doing rapid tests in government facilities here since the start of my symptoms, hoping I could get diagnosed early and go on with my life (meaning getting treated and symptoms controlled), but I was unaware of the window period and they all came back negative, of course. My last antibody's test was with 34 days and came back negative for hiv (1/2), syphilis and hepatitis, but then again wtf detection window!

I have been attending some GP but they just don't seem to get the dots together. And it has been a very frustrating path for diagnosis. One of them suggested I look for a infectologist, but I still have to wait two weeks.

I haven't been able to sleep since this all began, mostly because my body is in a lot o pain (doesn't feel comfortable in any position in bed) and my skin is burning so much! My hole body feels like I had a severe sunburn 🥵🥵🥵! It's uncomfortable even to wear clothes, and I had a bunch of other neuropathic symptoms (tingles, shocks thruu my body while trying to sleep, etc).

Enough with complaining, right??? My question is:

Does it get better?! My supposed accute phase have been so severe and my diarrhea and pain so constant that I feel like this will last forever, and I just can't take it no more! I keep imagining that it will only get worse, since ART also have its own side effects. I'm desperate in pain already.

I'm going on Monday to get a rapid test again in these government facility. Ironically hoping for the test to be positive already. I'm not at all afraid of having this bug, my fear is to keep undiagnosed and feeling sick like I am. I just can't get a break with this burning sensation all over my body, it's like u're on fire 24/7! Don't wish it on anyone. But I guess it is what it is.

Just to finish, my exposure was with a transsexual, that porposedly broke the condom or did something else with the lube that I'm unaware of. She insisted for me to be in the bottom with her, now I know why. And I was dumb enough to not see if her condom was intact. But when I think back at the situation, I see how she played me. Since this happened, she never returned to work at the place she did before where she was a regular (I have the contact of the owner). Guess she was only looking too screw someoneelses life and depart. For me this is rape, I consented with protected sex. I feel so stupid to have not realized this situation. Enough for now. Time for a cold shower to have some relief from this burning skin.

Offline Jim Allen

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Re: Terrible fast and progressive symptoms. Neuropathy this early?
« Reply #1 on: January 30, 2021, 09:31:41 am »
Hiya,

Nothing you mentioned is HIV specific at all, some of it would have nothing to do with HIV regardless of your HIV status.

I don't see any HIV exposure from what you posted at least. Nothing she did to the lube could ever cause an HIV infection, I don't even understand why this is even a concern. As for your fears about the condom, it seems to be based on fears alone about "what ifs" not facts.

The result you have will not change but by all means test again if that allows you to move on with your life. I hope you feel better soon, keep working with your doctor. However, please don't post about this situation and symptoms again.

If you have had other more recent encounters that had a clear exposure let me know.

Here's what you need to know to avoid HIV infection:
Use condoms for anal or vaginal intercourse, correctly and consistently, every time, no exceptions. Consider talking to your healthcare provider about PrEP as an additional layer of HIV protection going forward.

Keep in mind that some sexual practices which may be described as ‘safe’ in terms of HIV transmission might still pose a risk for transmission of other STI's, so please do get fully tested regularly and at least yearly for all STI's including but not limited to HIV and test more frequently if unprotected intercourse occurs

Also, note that it is possible to have an STI and show no signs or symptoms and the only way of knowing is by testing.

Kind regards

Jim

Please Note.
As a member of the "Do I have HIV?" Forum you are required to only post in this one thread no matter how long between visits or the subject matter. You can find this thread by going to your profile and selecting show own post and it will take you here. It helps us to help you when you keep all your thoughts or questions in one thread and it helps other readers to follow the discussion. Any additional threads will be deleted.
« Last Edit: January 30, 2021, 09:43:04 am by Jim Allen »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Brazil

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Re: Terrible fast and progressive symptoms. Neuropathy this early?
« Reply #2 on: January 30, 2021, 03:28:50 pm »
Hey Jim,
Thx 4 the reply! I have been tested before because of this risky behavior with sex workers. I always used protection! I know for a fact that the only possible exposition I had in this period was the one I reported.

I get what you're saying! Really! I was telling myself that too... That I have not had a real exposition, so I had nothing to be worrying about. All I know is that I saw the condom being put in, but do not recollect if by the end it was intact (feeling terribly dumb about this). And for that part, if confirmed my suspicion, will be terrible by itself, because in my head I was having safe intercourse. To be played (because if you see that the condom is not ok, you tell the other person, right?!) by someone will be devastating by itself. It's just a terrible trauma that I'll have to deal with).

I won't insist on my symptoms, just comment that I have never fallen so ill in my hole life! (And unfortunately, being hiv a virus with so undetermined symptom's, here I am). I know in my heart that something is terribly wrong, this cannot be a hardcore flu. And as the days goes by, and the symptoms remain and progresses, I lay wondering if I'm being to passive with my condition. Maybe I should be pressing my doc's for a faster way to test for this virus, cos if I am on this acute phase, it just aint getting any better.

I'll keep on with my exams and seeing doctors to figure this out. As I said, it is what it is, and whatever happens, all I want is to get better and have a less negative outcome.

Offline Jim Allen

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Re: Terrible fast and progressive symptoms. Neuropathy this early?
« Reply #3 on: January 30, 2021, 03:34:56 pm »
Let's cut to the chase.

Whatever is making you sick it's not HIV, the test already shows this and the rest has nothing to do with HIV regardless of your HIV status. End of story.

You had no exposure to worry about from what you posted here at least, you did not played as you put it, you had sex and now you have irrational fears after the encounter. Prehaps the prejudice against the person you were with is in part driving these fears without any facts. Anyhow, I wish you well, keep working with your doctor to treat whatever is making you feel unwell.

Now I politely asked you not to post again about this, consider it now a  warning.

Hiya,

Nothing you mentioned is HIV specific at all, some of it would have nothing to do with HIV regardless of your HIV status.

I don't see any HIV exposure from what you posted at least. Nothing she did to the lube could ever cause an HIV infection, I don't even understand why this is even a concern. As for your fears about the condom, it seems to be based on fears alone about "what ifs" not facts.

The result you have will not change but by all means test again if that allows you to move on with your life. I hope you feel better soon, keep working with your doctor. However, please don't post about this situation and symptoms again.

If you have had other more recent encounters that had a clear exposure let me know.

Here's what you need to know to avoid HIV infection:
Use condoms for anal or vaginal intercourse, correctly and consistently, every time, no exceptions. Consider talking to your healthcare provider about PrEP as an additional layer of HIV protection going forward.

Keep in mind that some sexual practices which may be described as ‘safe’ in terms of HIV transmission might still pose a risk for transmission of other STI's, so please do get fully tested regularly and at least yearly for all STI's including but not limited to HIV and test more frequently if unprotected intercourse occurs

Also, note that it is possible to have an STI and show no signs or symptoms and the only way of knowing is by testing.

Kind regards

Jim

Please Note.
As a member of the "Do I have HIV?" Forum you are required to only post in this one thread no matter how long between visits or the subject matter. You can find this thread by going to your profile and selecting show own post and it will take you here. It helps us to help you when you keep all your thoughts or questions in one thread and it helps other readers to follow the discussion. Any additional threads will be deleted.
« Last Edit: January 30, 2021, 03:54:00 pm by Jim Allen »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

 


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