Welcome, Guest. Please login or register.
January 16, 2021, 04:56:05 pm

Login with username, password and session length


Members
  • Total Members: 35695
  • Latest: Mel90
Stats
  • Total Posts: 758009
  • Total Topics: 64174
  • Online Today: 243
  • Online Ever: 4912
  • (November 13, 2019, 02:56:14 am)
Users Online
Users: 1
Guests: 212
Total: 213

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Recently poz and new here  (Read 1508 times)

0 Members and 1 Guest are viewing this topic.

Offline wjcdmx

  • New Member
  • Posts: 2
Recently poz and new here
« on: December 02, 2020, 01:52:28 pm »
Hi everyone! I'm new here. I was confirmed poz 11 days ago, after a negative test in July (so at least it was caught recently). The worrying thing is that after that neg test in July I started PrEP which I continued up until my poz test last week.

My doctor put me on ARVs immediately last week - Truvada and Tivicay because of the potential for a resistant strain due to me having been on PrEP when poz. I've been lucky enough not to have had any side effects (yet). But until yesterday, my first 10 days were so awful, particularly last Saturday which I think was the lowest I have ever felt in my life and I just cried most of the day.

Anyway i've just spent the last week trying to learn as much as I can about what it's like to have HIV now, and the impact of meds and stuff. That helped.

Yesterday I went to see my doctor for the results of my blood test, for blood taken before I started ARVs. The results really surprised both him and me. My CD4 was 907 and my viral load was 267 counts. I don't understand why my viral load was so low after only contracting HIV in the last 3 months. Obviously I was relieved but i'm just confused. I just wonder if the PrEP influenced it? I'm not going to get the results of my genotype test for a few more weeks.

Anyway, I just wanted to share that. I'm slowly coming to terms with things now and feel a lot more positive that I did a week ago.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 16,547
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Recently poz and new here
« Reply #1 on: December 02, 2020, 02:29:54 pm »
Hiya,

Welcome to the forum, sorry to hear about the diagnosis but glad to hear you started treatment.

Quote
But until yesterday, my first 10 days were so awful, particularly last Saturday which I think was the lowest I have ever felt in my life and I just cried most of the day.

I know being newly diagnosed the news can be a lot to digest, and I'm sorry to hear that it's left you feeling low, just know that you are not alone, it's okay and if you want to talk we are here for you.

Quote
The worrying thing is that after that neg test in July I started PrEP which I continued up until my poz test last week.

You had a non-reactive test in July so somewhere between April to Nov, you acquired HIV. What is the worrying part about?

Quote
My CD4 was 907 and my viral load was 267 counts. I don't understand why my viral load was so low
Quote
I've been lucky enough not to have had any side effects (yet)

Well, I would not expect any, asides from perhaps settling in it's a pretty solid treatment to start with that are well tolerated. As for the VL it could be the PrEP or just the settling point, not that it really matters, within a short time it should be fully suppressed with the meds.

Take it easy.

Best, Jim
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline wjcdmx

  • New Member
  • Posts: 2
Re: Recently poz and new here
« Reply #2 on: December 02, 2020, 03:22:39 pm »
Thank you Jim!

The reason I was worried about being on PrEP whilst also being positive was because I read on many forums that that can cause resistance to ARVs when you are eventually diagnosed...

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 16,547
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Recently poz and new here
« Reply #3 on: December 02, 2020, 04:12:12 pm »
Hiya,

Yeah, sure it can happen, you could also have acquired a resistant strain to start with.

However, the VL seemed pretty low and you picked up on it early so I would not stress about this. Worrying isn't going to change much and if there is the resistance to your current treatment they will also know what other treatment options would be possible. 

Best, Jim
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Tonny2

  • Member
  • Posts: 2,386
Re: Recently poz and new here
« Reply #4 on: December 02, 2020, 09:05:43 pm »



         ojo.            Hola y bienvenido... you are not alone anymore, we are here for you. We all know what youíre going through right now but, trust me, it will get better. Letís see what are the resistan Test results then you and your doctor will decide what treatment itís best for you...welcome again and please keep us posted...hugs

Offline Expat1

  • Member
  • Posts: 363
Re: Recently poz and new here
« Reply #5 on: December 06, 2020, 06:14:01 pm »
You started treatment very early.  Don't worry so much about potential resistance.  PreP involves only 1 class of meds, there are 5 other classes, as well as other nrti 's that operate differently than the drugs in Truvada.

Your doctor will be able to develop a potent, durable regiment.

In terms of health you found out early in this disease that you are positive.  With treatment you will live a full and aids free life.  You should change the unhappy face to a happy one because the test means you will now get the help you  need to live that full life.

Offline LeftyBowler300

  • Member
  • Posts: 100
Re: Recently poz and new here
« Reply #6 on: January 13, 2021, 12:12:29 am »
I think most of us have had that one good cry in the beginning. We feel like will never be the same... After a while you'll realize that besides taking a pill or two a day life's pretty much normal. And that's coming from someone who was not only diagnosed REALLY late with opportunistic infections, but I also developed HIV-associated cancer a year and a half after starting treatment. I've been through hell, but I persevered. I go the gym, I play sports, I have a good career and I'm going back to school this year. I'm stronger now than I ever was  ;D and you will be to.
*hugs*
Lefty
Apr 1, 2017 DX - CD4 8 , VL 820,000
OI's: Disseminated Histoplasmosis, Thrush, PCP
Apr 17, 2017 started Genvoya, Bactrim, Sporanox, Azitrhomycin
Jun 9, 2017 - CD4 42 (3%) , VL 100
Jul 17, 2017 - CD4 57 (4%) , VL 53
Sep 16, 2017 - CD4 57 (4%) , VL 130 - Ugh... wtf
Oct 20, 2017 - CD4 63 (5%) , VL 100
Dec 1, 2017 - CD4 56 (3%) , VL <20
Mar 15, 2018 - CD4 73 (5%) , VL <20
Nov 5, 2018 - CD4 104 (7%), UD
Jan 26, 2019 diagnosed with HIV-associated DLBCL with 6cm mass near liver w/ abdominal fatty tissue involvement
6 rounds of RR-EPOCH
2 rounds of high dose methotrexate
(8 rounds of IV chemo total)
11 Lumbar punctures with intrathecal chemo
June 5, 2019 - Complete Response/Remission
Feb 20, 2020 - CD4 187, VL UD
Aug 2020 - CD4 247, VL UD
Stopped all prophylaxis

 


Terms of Membership for these forums
 

© 2021 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.