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Author Topic: It has been a long time  (Read 406 times)

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Offline Day0

  • Member
  • Posts: 25
It has been a long time
« on: November 02, 2020, 01:32:42 pm »
Hello everyone. It has been a long time since I was last here.

I was diagnosed officially January 2nd. But I knew on December 30th. It is crazy to think it has almost been a year since diagnosis.

There have been so many changes since I last posted-some good some bad.

I cant seem to get to undetectable. I became resistant to Emtriva. My viral almost doubled from 51 to 94. They kept me on my current medication and added endurant.  I then went down to 73. Unfortunately, the endurant isn't working as well because on the last draws I went up to 85. Thankfully, the pharmacist figured out I wasn't eating enough when I take the Endurant to be absorbed properly.So end of November I go back and hopefully we will see better results.

My cd4 though is going up.  With the resistance to Emtriva, it had gone down. Now it is sitting at 132 and the percentage is up to 11. I am still on Bactrim and I probably will continue to be for another year.

I had been going to a group meeting for people newly diagnosed. It was a good group. But with COVID, that was obviously canceled. I do miss it.

I lost my job temporarily. I was furloughed at 0 percent of pay for the unforeseeable future. So I am on unemployment and on COBRA for my insurance. There are a lot of social programs I can get on so im not on danger of losing access to medications and care.

I have gained so much weight and I feel so uncomfortable. I definitely need to do something about it. It just feels weird that im told im gaining too much weight but then told im not eating enough.

My husband and I are slowing improving our house. We purchased new appliances for our kitchen and are looking at replacing the fixtures in our bathrooms. If I cant work, I may as well be productive.

All in all, I'm doing okay. Some bouts of depression but overall okay. It is hard to tell if it is because of the back and forth on my labs or just due to the problems with COVID. It is disheartening but it is what it is.

I used to think of everything in days since diagnosis. When i first was diagnosed i kept repeating this is day 0. This is day 0 of the rest of my life. I dont do that as much.. in fact, though it has been 308 days since my diagnosis i had to use a calculator to figure that out. Before, I would have been able to say what day it was without thinking. So baby steps I guess.

Thanks for listening to my ramble. I hope you all are doing well.


Offline CR2016

  • Member
  • Posts: 188
Re: It has been a long time
« Reply #1 on: November 07, 2020, 11:17:28 am »
Day0 welcome to this forum. Its a shame you belong to this condition now, but think this would be just a step more in your life. I understand when you say you are counting every day; i think through days or months or years it would be less important. It will occur when you feel more conmfortable with this condition.
reading you, i understand you sterted with a high viral load, so, i think viral loads numbers under 100 maybe are blips, i have had some blips under 200 on last couple years... whatever, you and yor Dr know how it its working know. You should trust about your body and system are working okay ever; you should consult with a specialist for nutrition how to do some low calories diets, it really works, try to do some aerobic exercise at home if you want; everything is gonna be okay better, i hope so.
please let us know how you feel, sorry by my english hahahahah.
regards from Mexico.

Offline CR2016

  • Member
  • Posts: 188
Re: It has been a long time
« Reply #2 on: November 07, 2020, 11:17:46 am »
Day0 welcome to this forum. Its a shame you belong to this condition now, but think this would be just a step more in your life. I understand when you say you are counting every day; i think through days or months or years it would be less important. It will occur when you feel more conmfortable with this condition.
reading you, i understand you sterted with a high viral load, so, i think viral loads numbers under 100 maybe are blips, i have had some blips under 200 on last couple years... whatever, you and yor Dr know how it its working know. You should trust about your body and system are working okay ever; you should consult with a specialist for nutrition how to do some low calories diets, it really works, try to do some aerobic exercise at home if you want; everything is gonna be okay better, i hope so.
please let us know how you feel, sorry by my english hahahahah.
regards from Mexico.

Offline Day0

  • Member
  • Posts: 25
Re: It has been a long time
« Reply #3 on: November 08, 2020, 12:31:51 pm »
Thank you for that.

 


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