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Author Topic: Out with the old meds?  (Read 514 times)

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Offline Sedohr

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Out with the old meds?
« on: October 24, 2020, 11:30:14 am »
Hi everyone- first time contributor here - long story short - diagnosed With PCP in 2004 CD4 was 6, VL over 100k - have a great ID Dr who I really like and she put me on AZT only to have it deplete my RBC - switched quickly to Epivir Viread Sustiva combo - VL went immediately to undetectable (and stayed there for the last 16 years yay!) and CD4 has risen over the years to roughly high 500s/low 600s.  Iím still on the same 3 drug regimen with no side effects- and when I questioned my Dr about possibly switching meds to maybe get CD4 higher she said we could, but of course thereís no guarantee and that being undetectable is the thing weíre striving for - and achieving.  I guess Iím having second thoughts that she might not be aggressive enough.  Am I silly to think this and I should just leave well enough alone?  Oh - all meds are now generic which is a plus as well. I just thought Iíd ask for some opinions.  Family and friends have said not to rock the boat if things are working.  Overall health is great - did start a statin - and have gained some weight but nothing crazy - thinking that comes with age. Thanks for any thoughts. 

Online Jim Allen

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Re: Out with the old meds?
« Reply #1 on: October 24, 2020, 11:38:56 am »
Hiya,

Welcome to the forum.

I moved your initial post so it can serve as an introduction thread. Would agree with the doc the VL being suppressed as the goal, the CD4's are above a certain level so counting them is no longer relevant.

If you really want to switch though it's up to you. Any thoughts on what combination you would like to have?
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Offline Sedohr

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Re: Out with the old meds?
« Reply #2 on: October 24, 2020, 11:42:47 am »
Thanks - Iím sure most would agree with you.  Maybe itís psychological that a higher CD4 makes me think things are ďnormalĒ.  No ideas as far as switching - and I do like that Iím in the generic pool. Iím probably just being dramatic as usual.
« Last Edit: October 24, 2020, 11:49:50 am by Sedohr »

Online Jim Allen

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Re: Out with the old meds?
« Reply #3 on: October 24, 2020, 11:59:16 am »
Yeah, maybe. Basically, treatment just suppresses the virus, that's it.

If I was to switch medication, I would write down a list with the things I do/don't want. An example I would hate to take meds with a food requirement, other people are okay with that.

Anyhow, once I had my wish list figured out I would then look at all the possible combo's to find what suits my own requirements and then go back to the doc.

We have a thread with information on all the drugs and possible combo's that might help. https://forums.poz.com/index.php?topic=69107.0

Quote
Maybe itís psychological that a higher CD4 makes me think things are ďnormalĒ.

So out of interest would a "normal" level feel like for you? Not that you can change them or that they are a measurement of health but what was your average CD4 range before you were living with HIV?

« Last Edit: October 24, 2020, 12:05:18 pm by Jim Allen »
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Read more about Testing here:
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Read about Treatment-as-Prevention (TasP) here:
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Offline Sedohr

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Re: Out with the old meds?
« Reply #4 on: October 24, 2020, 12:05:17 pm »
Thanks - and good suggestions!   I donít know what my CD4 count was prior to living with hiv - never worried about things back then.  Iíll definitely take your suggestion and do some research before my next doctor visit.  Thanks again for your thoughts!

Offline Tonny2

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Re: Out with the old meds?
« Reply #5 on: October 24, 2020, 02:01:26 pm »


         ojo.        Hi there!

Are you taking VITRAD?, do you live in the USA?...no side effects like neuropathy?... best of luck

Offline leatherman

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Re: Out with the old meds?
« Reply #6 on: October 24, 2020, 04:21:34 pm »
when I questioned my Dr about possibly switching meds to maybe get CD4 higher she said we could
cd4s are based on your genetics. There is no medication or change of regimen that will increase cd4s. All you can do is stay adherent to ARVs, keep your HIV viral load reduced to undetectable, and .... well, there's nothing else you can do. Without HIV killing off your cd4s, they will rise to whatever level your genetics will allow.

You've been UD for 16 yrs with your cd4s within the "normal" range (400-1200)? If you like your meds there's absolutely no reason to change. Why change something that isn't broke?  ;)

always remember too, it's not how many cd4s (quantity) you have; but how effective (quality) they are. Unfortunately there is no test for cd4 quality so you have to base how well they are working on how healthy you are. There are plenty of people with cd4s under 500 who never get sick, and people who have over 1000 cd4s who have health problems. As Jim pointed out, unless you took a cd4 test prior to testing HIV positive, then you really have no idea what your normal range even is.  ;)

Take your meds, eat well, sleep enough, and try to have a positive outlook on life - doing that more than any cd4 count is what will make and keep you healthy.
leatherman (aka mIkIE)

Offline Sedohr

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Re: Out with the old meds?
« Reply #7 on: October 24, 2020, 08:36:36 pm »
Hi Tonny2 - no not on vitrad - on Viread Epivir and sustiva.  Yes in USA - no neuropathy- thankfully no side effects.  Hope youíre doing well.  😀

Offline Sedohr

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Re: Out with the old meds?
« Reply #8 on: October 24, 2020, 08:39:04 pm »
Hi leatherman - thanks for the good advice! Iím just glad Iím overall healthy so will probably stay the course.  Appreciate the response.  Nice to have a community to talk to!

Offline Tonny2

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Re: Out with the old meds?
« Reply #9 on: October 25, 2020, 01:17:02 pm »
Hi Tonny2 - no not on vitrad - on Viread Epivir and sustiva.  Yes in USA - no neuropathy- thankfully no side effects.  Hope youíre doing well.  😀


            ojo.          Yes, I meant vi read...for some reason I was thinking you were taking ZERIT, I got confused...vieras=tenofovir. I got acidosis when I took the currad, so, the doctor switched it...best of luck.       ojo

 


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