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Author Topic: Labs, how often? What do you do with your "old" meds?  (Read 384 times)

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Offline Riseandrise

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  • Rise and rise again until lambs become lions.
Labs, how often? What do you do with your "old" meds?
« on: August 02, 2020, 04:24:15 am »
Hello  ;)

Hope everyone is doing well and surfing this unusual situation  8)

Even when I am not a complete newbie on HIV topics, I would like to know how often do you usually get labs to know your CD4 and VL.

I moved from Mexico to Germany last year and now I am getting labs done pretty much every 3 months, I would say that my relationship with my doctor and labs was pretty casual before, get prescriptions every quarter, labs twice per year and that's it.

My doctor convinced me that after 4 years of Atripla it was time to switch to another combo. After some additional labs he suggested to switch to Triumeq and I decided to give it a try. It didn't work for me at all, I had panic attacks as side effect.

Now I am taking Delstrigo and it seems that it is working better, I usually have some focus issues but I hope it will get better overtime.

I like my doctor, but after 4 or 5 VL and CD4 in a year (taking in consideration that I am adherent to my meds and that I've been undetectable for 5 years) I feel that he might be taking advantage of me being privately insured (I have to pay everything upfront and they make more money if you are not on the state health system)

The other question is, I tried to reach out my local HIV association to see if I can donate the meds that I have (two sealed bottles of Triumeq and 2 sealed bottles of Atripla) and they do not need them. What do you do with your meds after you change your combo?

Offline leatherman

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Re: Labs, how often? What do you do with your "old" meds?
« Reply #1 on: August 02, 2020, 07:27:34 am »
here in the USA, the Ryan White guidelines lines call for testing every 3 to 4 months. however if a patient has had stable numbers/treatment then at least one test every 6 months with at least 60 days between tests over a 2 yr period

the guidelines also provide that if someone has been UD for 2 yrs and has remained above 500 cd4s, they don't ever need to test for cd4 again. (being able to drop the cd4 test would be a money saver)

(https://hab.hrsa.gov/sites/default/files/hab/clinical-quality-management/2014guide.pdf  pg 99)
leatherman (aka mIkIE)

Offline Almost2late

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Re: Labs, how often? What do you do with your "old" meds?
« Reply #2 on: August 02, 2020, 09:10:30 am »
The other question is, I tried to reach out my local HIV association to see if I can donate the meds that I have (two sealed bottles of Triumeq and 2 sealed bottles of Atripla) and they do not need them. What do you do with your meds after you change your combo?

Whatever you do please don't throw them away. When I swithed from atripla to triumeq, I mailed my extra meds to someone who needed them. The meds are expensive and you can bet someone will need them.

http://rampusa.org/how-and-where-to-donate-medications/
"Hang on to your hopes my friend..
thats an easy thing to say,
but if your hope should pass away,
simply pretend that you could build them again"...

Offline virgo313

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Re: Labs, how often? What do you do with your "old" meds?
« Reply #3 on: August 02, 2020, 11:15:40 am »
I donít get a chance to do CD4 test for last 2 years already, but I am being tested on VL every 6 months.
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / Chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000

Offline Riseandrise

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  • Rise and rise again until lambs become lions.
Re: Labs, how often? What do you do with your "old" meds?
« Reply #4 on: August 02, 2020, 01:49:13 pm »
here in the USA, the Ryan White guidelines lines call for testing every 3 to 4 months. however if a patient has had stable numbers/treatment then at least one test every 6 months with at least 60 days between tests over a 2 yr period

the guidelines also provide that if someone has been UD for 2 yrs and has remained above 500 cd4s, they don't ever need to test for cd4 again. (being able to drop the cd4 test would be a money saver)

(https://hab.hrsa.gov/sites/default/files/hab/clinical-quality-management/2014guide.pdf  pg 99)

I will ask next time, I have another appointment for labs mid October.

From the past years my CD4 levels were always above 600, and when I was diagnosed around 400. My VL has been undetectable at all times, I had detectable VL but I think that it was below 100 and my doctor back in Mexico didn't bother at all.

Offline Riseandrise

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  • Rise and rise again until lambs become lions.
Re: Labs, how often? What do you do with your "old" meds?
« Reply #5 on: August 02, 2020, 01:53:08 pm »
Whatever you do please don't throw them away. When I swithed from atripla to triumeq, I mailed my extra meds to someone who needed them. The meds are expensive and you can bet someone will need them.

http://rampusa.org/how-and-where-to-donate-medications/

I was looking for something like this in Germany. I guess that I was hoping that the HIV association will give me a similar contact or something. I will try again and if I don't find anything I guess that I will see if I can mail them to SF.

How was your experience with Triumeq? I even get a test done to see if I was sensitive to some ingredient in there but at the end I didn't manage the side effects very well.

Thanks!

Offline Almost2late

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Re: Labs, how often? What do you do with your "old" meds?
« Reply #6 on: August 03, 2020, 02:59:55 pm »
I was looking for something like this in Germany. I guess that I was hoping that the HIV association will give me a similar contact or something. I will try again and if I don't find anything I guess that I will see if I can mail them to SF.

How was your experience with Triumeq? I even get a test done to see if I was sensitive to some ingredient in there but at the end I didn't manage the side effects very well.

Thanks!

I believe that the organization in SF sends hiv meds to countries that lack resources so its a good cause, but yeah it would be great if you could find an organization closer to you in Germany.. maybe a neighboring country in Europe?

As for my experience with Triumeq, it's been much better than Atripla which sent me into a depression.
Only thing about Triumeq is I have to take it in the morning in order to prevent insomnia symptoms at night.
"Hang on to your hopes my friend..
thats an easy thing to say,
but if your hope should pass away,
simply pretend that you could build them again"...

Offline joemutt

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  • Posts: 1,138
Re: Labs, how often? What do you do with your "old" meds?
« Reply #7 on: August 04, 2020, 12:02:19 am »
I give my unused meds (sealed bottles) to my doctor, he has a stock to help people out.

 


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