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Author Topic: Refused surgery.  (Read 1072 times)

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Offline wardp

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  • Posts: 186
Refused surgery.
« on: July 02, 2020, 10:01:49 am »
I sent,my ud cd4 reports to a surgeon in bangkok.i need blepharorplasty on my upper eyelids as the droop is effecting my vision.anyway he refused to do the procedure and said it was because of an underlying condition.when I asked what that meant I was told that it was his policy. I'm waiting for word back from another hospital to see if this is  just one surgeons policy or if it's widespread.
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline terrymoore

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  • Posts: 487
Re: Refused surgery.
« Reply #1 on: July 03, 2020, 11:02:49 pm »
1. This is against the law in Thailand and you can report him. I suggest you file a report in the hospital AND i suggest you "out" him by giving us his name so that we can avoid him.
2. Which hospital?
3. At Bumrungrad Hospital in BKK, Dr. Anuwat Keerasuntonpong is an HIV specialist and VERY down-to-earth, non-judgemental, and very sympathetic to our plight. He can help find you someone to do the job regardless of your HIV status. He helped me many times.

Unfortunately, there are still some people, who, even though studied science and medicine, do not necessarily practice what they preach. The stigma is still strong in Thailand. Really curious to know who the a-hole is.

Offline joemutt

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Re: Refused surgery.
« Reply #2 on: July 04, 2020, 12:02:10 am »
It is illegal. I had it happen once but it was 22 years ago; "the doctor will not see you" the nurse said.
I personally can recommend Doctor Krik Asavametha at BNH, he's a cool guy and a great doctor, was a student of my previous doctor, Dr Matana who pioneered aids/hiv care and research in Thailand, now retired. Krirk gives good recommendations for other specialists, too.

Offline wardp

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Re: Refused surgery.
« Reply #3 on: July 04, 2020, 07:08:22 am »
I don't think it would be a good idea to name him as this is Thailand and I am a guest here.the hospital said they will deal with it.he only does one day a week there.
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline joemutt

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Re: Refused surgery.
« Reply #4 on: July 04, 2020, 09:55:51 am »
I don't think it would be a good idea to name him as this is Thailand and I am a guest here.the hospital said they will deal with it.he only does one day a week there.
You would be right. Name and shame simply isn't an option. Defamation laws are much stricter here than in other countries.
« Last Edit: July 04, 2020, 09:58:06 am by joemutt »

Offline wardp

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  • Posts: 186
Re: Refused surgery.
« Reply #5 on: July 05, 2020, 11:31:17 am »
Hospital number 2 request I pay 30.000 baht extra because I'm HIV. I replied back asking why.
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline harleymc

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  • Posts: 1,411
Re: Refused surgery.
« Reply #6 on: July 05, 2020, 08:30:50 pm »
This thread has been running off the implied assumption that the surgeon is the 'problem'.

But surgery involves a team, surgeon, nurses an anaesthetist, wards people etc etc.  It also needs a facility.

What enquiries have been made to find out where the refusal or the additional costs are coming from?

I was turned down for life insurance years ago, it wasn't because I was living with HIV, it was because at the time I was a smoker.

Sometimes obvious go-to answers are not  applicable.

Good luck on getting an affordable surgery.

Have you considered setting up a fund me web page?

Offline wardp

  • Member
  • Posts: 186
Re: Refused surgery.
« Reply #7 on: July 06, 2020, 12:38:35 am »
Nothing to do with cost. And I don't need go fund me thank you.its about blatant discrimination and stigma.the cost of the procedure was quoted then had 30000baht added on BECAUSE I am hiv 
 undetectable.its a blepharorplasty under local anesthetic.2 hour procedure not brain surgery! Thank you for judgement on my financial situation I really appreciate!
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline harleymc

  • Member
  • Posts: 1,411
Re: Refused surgery.
« Reply #8 on: July 07, 2020, 01:39:25 am »
Why on earth are you turning on me, you rude git

Offline wardp

  • Member
  • Posts: 186
Re: Refused surgery.
« Reply #9 on: July 07, 2020, 11:04:50 am »
I wasn't been rude .why did you assume I  would need a go fund me?
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline harleymc

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  • Posts: 1,411
Re: Refused surgery.
« Reply #10 on: July 07, 2020, 04:59:40 pm »
I'm not making any assumptions.

Offline Jim Allen

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Re: Refused surgery.
« Reply #11 on: July 07, 2020, 06:15:05 pm »
I sent,my ud cd4 reports to a surgeon in bangkok.i need blepharorplasty on my upper eyelids as the droop is effecting my vision.anyway he refused to do the procedure and said it was because of an underlying condition.when I asked what that meant I was told that it was his policy. I'm waiting for word back from another hospital to see if this is  just one surgeons policy or if it's widespread.

Look if it was me nothing that could happen now would convince me to let this doctor anywhere near me.
So looking for a different doctor would be the way to go as you are doing for the procedure.

That aside if you really want to know what the issue is perhaps ask them for a copy the policy in writing or confirmation for the reason for the increased cost and if you don't like the answer then consider if you want to do something about it or not. Perhaps at that point talk to the local NGO or if you have time/money and energy a lawyer.

Anyhow that's my two cents and I hope all goes well when you have the procedure.

Best, Jim

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Offline wardp

  • Member
  • Posts: 186
Re: Refused surgery.
« Reply #12 on: July 07, 2020, 10:27:13 pm »
Point taking Jim.I am waiting on reply from hospital.I have an important question re surgery in general.if you had a viral load test 3 days prior to any operation and the result was undetectable. What are the odds of becoming detectable in that 3 day period and what is the risk to the surgeon?
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline joemutt

  • Member
  • Posts: 1,139
Re: Refused surgery.
« Reply #13 on: July 07, 2020, 11:53:19 pm »
1/I got this reply from a friend in the medical field concerning rights and complaints:

https://tmc.or.th/En/act_rules_en.php
 
-complaints have to go to :
The Medical Council
7th Floor, Office of the Permanent Secretary, The Ministry of Public Health,
Tiwanond Rd., Nonthaburi 11000, Thailand.
tmc@tmc.or.th
 
-there is also an NGO that might be interested in helping:
 Thai Medical Error Network
Preyanan Lorsermvattana
ouidolla@yahoo.com
 
-and as this is related to HIV I would suggest to involve some HIV advocacy groups e.g.
https://ahfthailand.com/
or any others you may know of
 
When contacting the Medical Council I suggest to do in writing, sent by courier, and prominently cc the Medical Error network and ahft;

2/If you're looking for another surgeon you might contact the specialists named further up this thread for referrals and to also answer your last question.
« Last Edit: July 08, 2020, 12:07:48 am by joemutt »

Offline joemutt

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  • Posts: 1,139
Re: Refused surgery.
« Reply #14 on: July 07, 2020, 11:53:49 pm »
double post.
 


Offline virgo313

  • Member
  • Posts: 273
Re: Refused surgery.
« Reply #15 on: July 08, 2020, 01:14:51 am »
Not sure if They are not doing elective case surgery for now is due to covid or not?
Is this one of The reasons?
https://journals.sagepub.com/doi/full/10.1177/0218492320926886
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / Chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000

Offline wardp

  • Member
  • Posts: 186
Re: Refused surgery.
« Reply #16 on: July 09, 2020, 08:43:24 am »
Just had a reply from the hospital.they won't send me a photo of this (new) equipment they use for HIV patients and they won't disclose any info on the extra charge for HIV..nothing about covid but this HIV equipment that just arrived but they can't tell me what it I is.make your own mind up.case closed
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

 


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