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Author Topic: 2 Years DX Anniversary  (Read 625 times)

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Offline Loa111

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2 Years DX Anniversary
« on: May 11, 2020, 07:22:53 am »
It's 2 years approx since I have been DX'ed so happy anniversary to me...lol! Around early May 2018 I was Dx'ed after being very sick for a long time & ending up in hospital with PCP. Got the call back a few days after release from hospital, "can you come in next week to discuss blood test results" and in for a big shock! Anyway enough about the past...time to share good progress & hope for any newbies on here.

Now 2 years later life has returned to normal more or see. I am still on daily antibiotics Atovaquone since my DX, though I am hoping the ID Doc will allow me to stop them by summer. My appointment cycle this year is now every 4 months (at the start I had to go see doc every 2-4 weeks for months). In January my CD4 was 241 so hoping it has increased more so I can stop the antibiotics.

My fitness has returned with a lot of work, running, gym etc. I have gone from my DX Aidsy skinny look of 72 kilos back up to 90 kilos. A lot of that is because I've been weight training the last year... I look good again. I am probably in the top 15% of fitness for my age group too.

I wake up every morning and pop my 2 pills Tivcay + Descovy, & evening time take the Atovaquone. Other than the pills and the ID clinic a few times a year, life is normal again. Indeed, even though I do not like going to the clinic, I still feel a bit nervous each time I go there, I see it as getting a free health check with the bloods being done.

Sure I still get niggling moments when HIV nags my mind a little. Anyway it is my own fault for not wrapping up & getting it in the first place.

I am most grateful it is a manageable health condition, & popping a pill (or 2 in my case), living healthy, & going to my ID appointments keeps trouble away.

When I come on this forum, the first place i always surf too is the Research New & Studies forum. I am always excited to hear about new potential future treatments. I am looking forward to the day when there might be even more convenient treatments. Dreaming for a once a year pill or shot haha!  :D But hey who knows what they will come up with and I am sure the next 10+ years will bring new treatment innovation for us.

Offline Matths

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Re: 2 Years DX Anniversary
« Reply #1 on: May 11, 2020, 08:25:43 am »
Great update! Congratulations. For me itís the first year over and it has been life-changing indeed. On Dovato which keeps me U. Like you, I always check the stories of others to learn from them, and the research section. Good luck and keep up your good path to life! Best matths

Offline Jim Allen

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Re: 2 Years DX Anniversary
« Reply #2 on: May 11, 2020, 01:09:22 pm »

Glad to hear things are going well  :)

Take it easy, Jim
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Offline Ptrk3

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Re: 2 Years DX Anniversary
« Reply #3 on: May 11, 2020, 02:49:36 pm »
Congratulations, Loa111.  Keep up the good work!
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Offline Tonny2

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Re: 2 Years DX Anniversary
« Reply #4 on: May 12, 2020, 03:44:44 am »

        ojo.       Hello there...Iím happy for you. I remember  when you became part of the pox family and you were scared, so, itís good to know you are here celebrating your second anniversary since your dx...Iím sure you will stop taking antibiotics soon... Congratulations

Offline Loa111

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Re: 2 Years DX Anniversary
« Reply #5 on: May 15, 2020, 02:59:17 pm »
A "Lite" ID Clinic appointment last Wednesday. I was due my usual ID doc appointment, but with Covid it had a complete different format. They needed to check my bloods as I was running out of antibiotic, and they do not want to let me stop it without an up to date CD4 check..(good to know they are being so thorough).

So this time, the ID doctor phoned me the day before my appointment, asked me how I am doing, if anything unusual to report. Explained the plan i.e. check CD4s to ensure enough consistency over 200 level before stopping antibiotic. Then Wednesday I went to the hospital, it was strange to see what is such a busy place completely empty, except for a few mission critical clinics happening. Social distancing all the way, staff speaking from 2 metres away etc.

Got my bloods done my the ID nurse as per usual, the dedicated ID pharmacist came and give me 3 months of meds + 1 final (I hope) bottle of antibiotic. Did not see a doctor at all. So a 'Lite" appointment which worked very well I think.

I'll find out in about 2 weeks if my Cd4 has showing more increase, and if I can stop that horrible yellow coloured Atovaquone which I have to take 2 spoonfuls of each day. God forbid if I spill it on anything, stains that cannot be removed!!!

I asked the nurse if any updates on Covid-19 and HIV, and he said there is no recommendations other than what everyone else is being told to do. Said it is to new an illness to know what way it works, and that the docs do not really know what way Covid will go, it's just too early to know.


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