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Author Topic: Health Department reporting US  (Read 756 times)

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Offline TGun

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  • Posts: 35
Health Department reporting US
« on: April 11, 2020, 07:49:01 am »
Just curious if any americans here are familiar with the reporting process in the USA when it comes to PLWHIV and thie rlocal county health departments.  Knowing this is a reportable disease that they track,, how does it work when you move from the county you originally lived in at the time of diagnosis?  Do they track you where you live and such?  My sixth sense tells me they do.  Does anyone actually know the process?

Offline MitchMiller

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  • Posts: 650
Re: Health Department reporting US
« Reply #1 on: April 17, 2020, 04:28:25 am »
Nevada requires labs (Quest or LabCorp) to report all viral load tests and CD4/CD8 ratio tests to the state board of health (even if the VL is undetectable).  After moving to Las Vegas and doing one lab, the Southern Nevada Health District office contacted me by phone and asked me a lot of questions.  I was told all of the information was entered into their database.

I looked around online and saw other states have HIV surveillance programs, although I'm not sure how they track you.  Prior to moving to NV, I lived in CA.  I never visited a doc there and ran one VL test that came back undetectable.  I was never contacted by their health department.

All prescriptions written by a doctor are tracked nationally.  The state health departments may also be getting data from there, but I believe that is a private enterprise that tracks that information.  Drug companies buy that information so they can target their sales reps at docs prescribing their meds (aka Purdue Pharma targeting rural West Virginia).

« Last Edit: April 17, 2020, 04:35:34 am by MitchMiller »

Offline TGun

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Re: Health Department reporting US
« Reply #2 on: April 18, 2020, 10:48:06 am »
Thanks for the info Mitch,, yes its interesting to me, how they must track this sort of thing. 

A bit about my HX, i was first DX back in 2017, living in So. California at the time.. recieved a phone call about 2-3 weeks later from the local county health dept, with multiple questions. Most likely contacted via a reporting process from the MD that gave me the test and witnessed the positive results.. Also both the MD, Health Dept, and ID doc's all asked sexual behavior type questions,, my thoughts at the time were they may be trying to gather info for statistical purposes.  not sure how else they get info though..

Offline MitchMiller

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Re: Health Department reporting US
« Reply #3 on: April 18, 2020, 02:05:59 pm »
My guess is that the Trump administration's initiative to end HIV will involve more aggressive measures to track HIV+ people.  If your name is already in a state's health department database, it's likely you'll be tracked so long as you reside in the US.  USPS change of address and IRS tax filings could be used to track a relocation to another state.

The skeptic in me tells me the self-admitted germaphobic president was not happy the federal government wasn't tracking all HIV+ people and that may have been the primary reason he supported the "end HIV" initiative.

Offline Bhall4

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Re: Health Department reporting US
« Reply #4 on: April 18, 2020, 09:13:08 pm »
GA tracks and asks many questions.  They were weeks late past my diagnosis. Technically I had my positive rapid in Florida, who then, obtained the confirmation.  I never heard anything from FL department of health 🤷‍♂️.  When I came back to GA i followed up with my doc and they repeated all the confirmation stuff. About a month later the GA Dept of Health “tracked me down”   

Offline leatherman

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Re: Health Department reporting US
« Reply #5 on: April 18, 2020, 09:18:24 pm »
one of the easiest way PLWH are tracked is through each state's (and the fed version) Ryan White program. Not only does the program have data about the PLWH who are receiving RW services; but Ryan white quality measurements and subsequent tracking apply to every clinic/ID doc/etc that receives RW funding. The upside is that non-Ryan-White clients could possibly receive better quality healthcare because many agencies must adhere to improving quality measures.

Of course though this means changing providers, counties, or states, especially if you or your clinic receives Ryan White funding, will trigger a notice to the local state health dpt. If you're new to that area, then be prepared for the new health dpt to contact you. They'll want to make sure you're on treatment, and that people you "might" have exposed are given a notice.

The whole contact/reporting situation is called "contact tracing". It's how many diseases are contained/treated. currently there's a lot of talk about a lot of hiring in every state to do some serious COVID contact tracing as they try to decrease the spread of this disease.
leatherman (aka mIkIE)

Offline kentfrat1783

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  • Posts: 295
Re: Health Department reporting US
« Reply #6 on: April 19, 2020, 09:42:09 am »
Hi All,

I have to say that I never thought about "what if you moved to a new state, what would happen".  Then again, with everything being so interconnected I am sure it would only take weeks before the new state would know you are there. 

I work in education and the number of reports I do "reporting on employees" will get you into many different databases.  We just get more blood tests and more specialized Rx's so we will be in the new state systems quicker. 

At least now I won't be shocked when the new health department contacts me about my Dx if would move (as I am looking at moving).

06/08/2020 - CD4 257 (20%) VL <20
03/17/2020 - CD4 285 (19%) VL 101       (2.00)
09/17/2019 - CD4 218 (16%) VL (?)
06/18/2019 - CD4 173 (16%) VL <20
03/13/2019 - CD4 170 (16%) VL <20
January 2019 - Started Triumeq
12/05/2108 - CD4 174 (18%) VL <20
08/28/2018 - CD4 166 (15%) VL <20
05/08/2018 - CD4 106 (11%) VL <20
03/05/2018 - CD4   90 (10%) VL <20
12/11/2017 - CD4   60 (  8%) VL ?
09/07/2017 - CD4   42 (  6%) VL  54        (1.70)
May 2017 - Started Atripla
05/11/2017 - CD4     2 (  1%) VL 169,969 (5.23)
Dx`d May 11, 2017
Location: USA


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