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Author Topic: HIV + HHV8  (Read 918 times)

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Offline itsalex

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  • Posts: 19
HIV + HHV8
« on: February 26, 2020, 12:39:19 pm »
Hi everyone,

Hope everybody is doing ok. Today I got my blood test results. Everything is ok (undetectable and CD4 at 36%).

Unfortunately, my doctor told I also have HHV8, the herpes that causes Kaposi Sarcoma. I never had any symptoms so far and according to my doctor itís not related to HIV but to my mediterranean origin (it looks like itís more common in the Mediterranean countries).

My doctor told me not worry but it is something to monitor for the future.

Does anybody have  HIV+HVV8?

Iím feeling a little hopeless.

Thanks,
Alex
Mar 30, 2018 - DX
April 2, 2018 - CD4 527, VL 11,000
April 9, 2018 - started Truvada - Tivicay
Jun 12, 2018 - CD4 771, VL UD
Oct 30, 2018 - CD4 933,  VL UD
Apr 8, 2019 - CD4 not tested, VL UD
Aug 1 2019 - switched to Biktarvy
Oct 7, 2019 - CD4 1079, VL UD

Offline Jim Allen

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Re: HIV + HHV8
« Reply #1 on: February 26, 2020, 12:54:47 pm »
Hiya,

Yes, I do sure many do but with effective ART and higher CD4 counts, the levels of KS under the HIV population significantly dropped/drop off.

It's not something you need to start stressing or worrying about.

Jim
HIV 101 - Everything you need to know
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Offline itsalex

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Re: HIV + HHV8
« Reply #2 on: February 26, 2020, 01:09:12 pm »
Thank you Jim.

Can I pass it on to other people taking effective ART?
Alex
Mar 30, 2018 - DX
April 2, 2018 - CD4 527, VL 11,000
April 9, 2018 - started Truvada - Tivicay
Jun 12, 2018 - CD4 771, VL UD
Oct 30, 2018 - CD4 933,  VL UD
Apr 8, 2019 - CD4 not tested, VL UD
Aug 1 2019 - switched to Biktarvy
Oct 7, 2019 - CD4 1079, VL UD

Offline Jim Allen

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Re: HIV + HHV8
« Reply #3 on: February 26, 2020, 09:55:08 pm »
If with "it" you mean the herpes virus, yes. HIV meds would not suppress the transmission of this herpes as far as I know.

Someone else asked similar questions about KS at the start of the month maybe you will find that thread useful as well. Normally a healthy immune system would simply keep this herpes virus under control, so it's rare for KS to develop from this infection.

https://forums.poz.com/index.php?topic=73862.msg
« Last Edit: February 26, 2020, 09:58:24 pm by Jim Allen »
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Grasshopper

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Re: HIV + HHV8
« Reply #4 on: February 27, 2020, 05:33:00 am »
I had my share of battles with Kaposi years and years ago when I had a low CD4 count.

No need to worry or feel hopeless just because you heard that you carry the virus.
Just once in a while check your skin for unusual spots...could be Melanoma, KS or something innocuous. if you do spot something sgrange, consult your doctor.

If you start fearing about getting every possible disease there is....then life won't be worth living.

Offline itsalex

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  • Posts: 19
Re: HIV + HHV8
« Reply #5 on: February 28, 2020, 02:56:11 am »
Thank you Jim and Grasshopper.

I knew I would find my answers here.

Have a nice weekend everybody! :)
Alex
Mar 30, 2018 - DX
April 2, 2018 - CD4 527, VL 11,000
April 9, 2018 - started Truvada - Tivicay
Jun 12, 2018 - CD4 771, VL UD
Oct 30, 2018 - CD4 933,  VL UD
Apr 8, 2019 - CD4 not tested, VL UD
Aug 1 2019 - switched to Biktarvy
Oct 7, 2019 - CD4 1079, VL UD

Offline Grasshopper

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  • Posts: 638
Re: HIV + HHV8
« Reply #6 on: February 28, 2020, 04:41:20 am »
Back in 1992 I was told that I had also tested positive for CMV. I never develloped any illness from the CMV. However my late partner died blind from CMV retinis in 1993.
I was horrified from the prospective of going blind myself. For years my ID had me see an ophthalmologist every 2 months in the hope of catching a possible retinis in time.
When i finally became undetectable in 2001...in those days it was under 500, the visits were gradually reduced to twice and later to once a year. Now I don't see an ophthalmologist anymore.

So I understand your fears and just want to convey my lessons learned from having lived in fear in the past.  ;)

Offline Jim Allen

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Re: HIV + HHV8
« Reply #7 on: February 28, 2020, 06:35:37 am »
Thank you Jim and Grasshopper.

I knew I would find my answers here.

Have a nice weekend everybody! :)
Alex

You're welcome, Alex.

Hope you have a good one as well.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

 


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