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Author Topic: Latest Lab Test  (Read 677 times)

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Offline CraigJ

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Latest Lab Test
« on: November 25, 2019, 04:06:25 pm »
Hey all. Just wanting to share 1 year on and all looking good from tests done. Still having pains in calves to chat about with docs next week. Last visit they floated idea of changing from Triumeq. Dont know if changing to dovato might be an option or the right move but the idea of dropping one nuke is appealing but also a little scary as who knows what change will bring.

C
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

Offline Jim Allen

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Re: Latest Lab Test
« Reply #1 on: November 25, 2019, 04:20:56 pm »
Hiya

Glad to hear all the test results are looking good.

Regarding the switch, I'm not advocating either for or against switching but if you want to talk about it what fears do you have? 

Quote
Still having pains in calves to chat about with docs next week.

You have had that for a while, right? Any particular barrier to seeing the doc or reason holding off? Anyhow, hope you can get this sorted soon.

Best, Jim
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline CraigJ

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Re: Latest Lab Test
« Reply #2 on: November 25, 2019, 04:38:03 pm »
Hi Jim hope all is well.
I think it is just the great unknown that has me a bit worried. Will changing work, will it make no difference.
GP went down sciatica route which could explain things if it is that indeed. I also now have the exact symptoms for sciatica. Sore lower back, pain in buttocks and now numbness in ball of foot and 2 toes on left leg. Its been june/July for calves and August for onset of the rest.
We decided to wait until my next scheduled appointment to discuss all and make any decisions or changes after that.
Will see what comes after next week.

C
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

Offline Jim Allen

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Re: Latest Lab Test
« Reply #3 on: November 25, 2019, 04:53:19 pm »
Sciatica could but then understanding the cause or rulling issues out would be more useful to you I suspect, I'm guessing the GP was not very useful? Did they give you anything for the pain?

HIV by itself mostly untreated has been linked to damage to nerves, multiple nerves not limited to  peripheral, the far older HIV meds as well but instead of going through the list I'll just wish you well and hopefully you can get something sorted soon.

Quote
Will changing work, will it make no difference.

Well the switch is to a combo that has two drugs you are already on, it's an effective treatment in terms of HIV suppression and you are used to so it's not a huge difference from that perspective. You shouldn't be anticipating any issues

Jim

https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve/conditions/hiv_neuropathy.html

https://www.poz.com/basics/hiv-basics/peripheral-neuropathy
« Last Edit: November 25, 2019, 05:00:35 pm by Jim Allen »
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline CraigJ

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Re: Latest Lab Test
« Reply #4 on: November 26, 2019, 11:04:11 am »
Yep cocodamol and ibuprofen are taking the edge off.
I won't say GP was useless as like me just trying to rule out causes. I think the appoint on Tuesday will be a bit more useful. 
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

Offline Jim Allen

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Re: Latest Lab Test
« Reply #5 on: November 26, 2019, 12:51:52 pm »
Codeine - might not be a long term plan but glad it's taking the edge off. 

I'm on pregabalin myself, but it's a process to find what works if the neuropathic pain is permanent
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline wardp

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  • Posts: 151
Re: Latest Lab Test
« Reply #6 on: November 27, 2019, 05:36:58 am »
This youtube video fixed my sciatica  in 2 days....search slip disc 6 exercises   
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%

Offline wardp

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Re: Latest Lab Test
« Reply #7 on: November 27, 2019, 07:41:12 am »
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%

Offline CraigJ

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  • Posts: 25
  • Enjoying Life...why hate it!!!
Re: Latest Lab Test
« Reply #8 on: November 27, 2019, 04:12:36 pm »
Thanks ward i will give it a look  :)
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

Offline harleymc

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Re: Latest Lab Test
« Reply #9 on: November 27, 2019, 10:46:47 pm »
PIn on one side doesn't sound like neuropathy. Do you have a y risk factors like diabetes?

Offline CraigJ

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  • Posts: 25
  • Enjoying Life...why hate it!!!
Re: Latest Lab Test
« Reply #10 on: November 28, 2019, 04:27:59 am »
Hi Harley I don't have diabetes not that I am aware of.
I have it in family so get tested for it but it has been near 1 year since last check so time for another one.
If honest just running through things and trying to eliminate root cause as we go. Sciatica does seem most likely but os taking a while to disappear. Still doesn't explain the aching calves though as i think that was a separate issue although it could have been first symptom.
The human body, a wonderful piece of engineering but some diagnosis take a while to repair.

C
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

 


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