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Author Topic: 2years after, and my left lymph node (neck) has refused to reduce in size.  (Read 1151 times)

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Offline aNotherChatper

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I am undectectable and fairly healthy. The node has been evident since I got diagnosed, and while it has considerably reduced in size, it's still noticeably there whenever I run my palm under my chin.

A month ago I had a cold and the size spiked up a bit, but reduced again when I got better (within 3 days). Yet, it's still noticeably there. I was informed it will permanently vanish but it hasn't.

I am on Dolutegravir, Lamivudine & Tenofovir, if it means anything.

Should I be concerned? Should I run tests to be sure it's just a benign swell and nothing serious? Please help.

Offline Jim Allen

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I was informed it will permanently vanish

lymph nodes don't go away or vanish, they are always there and can be felt. They swell as part of the immune response, just like you mentioned during the cold and, after a few days it went down again.

If you are concerned though or the swelling has not dropped to normal size see your GP and, if needed they can biopsy the node to check if anything else is going on.

Best, Jim

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Offline xunil

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This is normal... I have the exact same experience.  I had one lymph node that refused to go down after what would later be known to be my seroconversion, and even after starting meds and being on them years the lymph node is always larger than "normal".  I've seen a ENT who said this is common even in people who do not have HIV.

The first symptom of any kind of infection for me now is that node getting a little bigger or having a sore throat.

All that said, it never hurts to get it checked out by a specialist for peace of mind.
Diagnosed April 2015
First labs and specialist visit April 2015
Initial appt and labs: CD4 560 and VL 18,000
Started Triumeq June 2015
VL UD after 30 days on Triumeq, CD4 slowly rising.


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