Welcome, Guest. Please login or register.
August 09, 2020, 03:59:12 pm

Login with username, password and session length

  • Total Posts: 755554
  • Total Topics: 63829
  • Online Today: 300
  • Online Ever: 4912
  • (November 13, 2019, 02:56:14 am)
Users Online


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: All about adherence during Day to Day Life  (Read 1021 times)

0 Members and 1 Guest are viewing this topic.

Offline Doctor with hiv

  • Member
  • Posts: 42
All about adherence during Day to Day Life
« on: May 24, 2019, 02:00:17 am »
Hey guys
I really wanted some good suggestion from all of you regarding strong adherence of our meds..like have you kept any reminder of ur pills...? I mean what reminds you the time to take ur pills
Also wanted some great suggestions to carry ur meds during parties during night as I take my meds at night time..
Where do you keep ur meds at home?
And how much stock do you keep the meds at home..? 6 months or 1 year?
Thanks to all 💙

Offline daveR

  • Member
  • Posts: 157
Re: All about adherence during Day to Day Life
« Reply #1 on: May 24, 2019, 02:20:43 am »
I use to set an alarm on my phone but now it is second nature to take the pills so no need for the alarm now. I do have a routine though, when at home I wake up, put the pills in a pill box after breakfast and leave them there. I then take them with my lunch at home or pick the box up off the table if I go out. Every time I walk past the table I cannot fail to see them.
I get a six months supply each hospital visit, I have managed by changing my visit date to have a 5 to 6 week back up supply.
When I go to work I take 2 to 3 months stock with me as work is normally a 4 to 6 week stint in the Sahara desert. Basically I have double.
I store them in their bottle at home and a pill box when I go out.
So far in 3 years I have missed one of the two pills on one occasion, still not sure how, and never take them more than an hour late.


Offline Lamek

  • Member
  • Posts: 40
Re: All about adherence during Day to Day Life
« Reply #2 on: May 24, 2019, 04:40:42 am »
Being newly diagnosed, HIV is constantly on my mind so there is no way I would forget. Despite my issue of mental 'confusion' or 'brainfog'. I don't even need an alarm.

Online Jim Allen

  • Administrator
  • Member
  • Posts: 15,811
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: All about adherence during Day to Day Life
« Reply #3 on: May 24, 2019, 05:24:33 am »
I switched routine a few time over the years, last 12 months+ I've been taking my meds in the mornings when heading out to work, its a daily event hard to forget and in the weekends i take it at breakfast whenever that happens to be.

There are things you can do like, phone reminders, pill boxes, etc etc.

Personally I find just linking taking my meds to an already daily routine helps. Going to work, in the past i've also done Lunch time routine / Dinner-routine or for a while i did the bed time routine. 


HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Doctor with hiv

  • Member
  • Posts: 42
Re: All about adherence during Day to Day Life
« Reply #4 on: May 24, 2019, 06:08:33 am »
Thanks Jim and Dave
Just wanted to know ...how do you guys carry ur meds while doing for a party/ date/ ceremony at night or  morning..I mean you won't be carrying the pill box ..I usually carry  meds in my wallet..but still I want to know more innovative ideas

Online leatherman

  • Member
  • Posts: 7,780
  • Google and HIV meds are Your Friends
Re: All about adherence during Day to Day Life
« Reply #5 on: May 24, 2019, 06:29:41 am »
but still I want to know more innovative ideas
for your keychain, a pill fob. just make sure to take this stash once a month and refill

leatherman (aka mIkIE)

Offline bufguy

  • Member
  • Posts: 214
Re: All about adherence during Day to Day Life
« Reply #6 on: May 24, 2019, 07:41:35 am »
I take mine before I go to bed...Its as much of a routine as brusshing my teeth...Been 11 years and I have only missed two doses the entire time. I used to worry about what time I took my meds as my bed time might change but don;t worry anymore If I go to bed at 9:30 that's when I take my pill...If I get home at 2:00 AM...which is quite rare I take it then.  Modern drugs are very forgiving with a pretty good half life.
5/29/08 confirmed HIV+
6/23/08 Vl 47500  CD4 511/29% CD8 .60
start atripla
8/1/08 Vl 130  CD4 667/31% CD8 .70
9/18/08 Vl un  CD4 not tested
12/19/08 Vl un CD4 723/32% CD8 .80
4/3/09 Vl un CD4 615/36% CD8  .98
8/7/09 vl un CD4 689/35% CD8 .9
12/11/09 vl un CD4 712/38% CD8 .89
4/9/10 vl un CD4 796/39% CD8 1.0
8/20/10 vl un CD4 787/38% CD8 1.0
4/6/10 vl un CD4 865/35% CD8 .9
8/16/10 vl un CD4 924/37% CD8 1.0
12/23/10 vl un CD4 1006/35% CD8 .9
5/2/10 vl un CD4 1040/39% CD8 .9
8/7/13 vl un CD4 840/39% CD8 .
11/29/18 vl un CD4 1080/39% CD8  .86

Offline wardp

  • Member
  • Posts: 186
Re: All about adherence during Day to Day Life
« Reply #7 on: May 24, 2019, 08:26:54 pm »
I have a 3g samsung phone. The alarm comes on every 10 mins at 8.30am without fail then I snooze it till I take them. I store them in a drawer..
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline JosephP

  • Member
  • Posts: 318
  • Keep looking FORWARD... Dx'd 8/10/2013...
Re: All about adherence during Day to Day Life
« Reply #8 on: May 24, 2019, 10:41:58 pm »
I carry one pill with me every single day and I try to take it at the same time every day. When on Genvoya I had to take it with food which created some ackward situations but now on Biktarvy I don't need to plan around food...In 5 years I have missed one dose only..
Today January 20, 2020, I have taken 2378 pills of my ARV since first pill. This means 79 bottles of 30 pills of ARVs at an average of $3950 per bottle or $313,103 USD for my treatment. I have a compliance of 99.83% taking my meds and only .17% (or 4 pills) non-compliant. Of these four pills two I forgot completely, One I lost and one I didn't have with me while traveling! I became UD 3 months after treatment start   ***We are all dealing with this. And we will live long and productive lives!! AND, yes the Lord is my shepherd. Life is good... And thanks for the meds! ***

Offline CraigJ

  • Member
  • Posts: 25
  • Enjoying Life...why hate it!!!
Re: All about adherence during Day to Day Life
« Reply #9 on: May 27, 2019, 01:21:41 pm »
Hey I use a fitbit and have a daily reminder set for 0930 then again at 1000. I only have one tab a day to take and set myself a 30 min window rather than specific time so first buzz on wrist tells me time to get pill an if not taken by second i class by my own standard as out with window period. Never missed one yet!
Being from UK I am fortunate to not be at the mercy of insurance companies so I can get meds well in advance and currently on 4 month supplies with 3 monthly visits so always seem to have 2 months stock!
All the best C.
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%


Terms of Membership for these forums

© 2020 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.