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Author Topic: All about adherence during Day to Day Life  (Read 1021 times)

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Offline Doctor with hiv

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All about adherence during Day to Day Life
« on: May 24, 2019, 02:00:17 am »
Hey guys
I really wanted some good suggestion from all of you regarding strong adherence of our meds..like have you kept any reminder of ur pills...? I mean what reminds you the time to take ur pills
Also wanted some great suggestions to carry ur meds during parties during night as I take my meds at night time..
Where do you keep ur meds at home?
And how much stock do you keep the meds at home..? 6 months or 1 year?
Thanks to all 💙

Offline daveR

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Re: All about adherence during Day to Day Life
« Reply #1 on: May 24, 2019, 02:20:43 am »
I use to set an alarm on my phone but now it is second nature to take the pills so no need for the alarm now. I do have a routine though, when at home I wake up, put the pills in a pill box after breakfast and leave them there. I then take them with my lunch at home or pick the box up off the table if I go out. Every time I walk past the table I cannot fail to see them.
I get a six months supply each hospital visit, I have managed by changing my visit date to have a 5 to 6 week back up supply.
When I go to work I take 2 to 3 months stock with me as work is normally a 4 to 6 week stint in the Sahara desert. Basically I have double.
I store them in their bottle at home and a pill box when I go out.
So far in 3 years I have missed one of the two pills on one occasion, still not sure how, and never take them more than an hour late.

Dave

Offline Lamek

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Re: All about adherence during Day to Day Life
« Reply #2 on: May 24, 2019, 04:40:42 am »
Being newly diagnosed, HIV is constantly on my mind so there is no way I would forget. Despite my issue of mental 'confusion' or 'brainfog'. I don't even need an alarm.

Online Jim Allen

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Re: All about adherence during Day to Day Life
« Reply #3 on: May 24, 2019, 05:24:33 am »
I switched routine a few time over the years, last 12 months+ I've been taking my meds in the mornings when heading out to work, its a daily event hard to forget and in the weekends i take it at breakfast whenever that happens to be.

There are things you can do like, phone reminders, pill boxes, etc etc.

Personally I find just linking taking my meds to an already daily routine helps. Going to work, in the past i've also done Lunch time routine / Dinner-routine or for a while i did the bed time routine. 

Jim

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Offline Doctor with hiv

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Re: All about adherence during Day to Day Life
« Reply #4 on: May 24, 2019, 06:08:33 am »
Thanks Jim and Dave
Just wanted to know ...how do you guys carry ur meds while doing for a party/ date/ ceremony at night or  morning..I mean you won't be carrying the pill box ..I usually carry  meds in my wallet..but still I want to know more innovative ideas

Online leatherman

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Re: All about adherence during Day to Day Life
« Reply #5 on: May 24, 2019, 06:29:41 am »
but still I want to know more innovative ideas
for your keychain, a pill fob. just make sure to take this stash once a month and refill

leatherman (aka mIkIE)

Offline bufguy

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Re: All about adherence during Day to Day Life
« Reply #6 on: May 24, 2019, 07:41:35 am »
I take mine before I go to bed...Its as much of a routine as brusshing my teeth...Been 11 years and I have only missed two doses the entire time. I used to worry about what time I took my meds as my bed time might change but don;t worry anymore If I go to bed at 9:30 that's when I take my pill...If I get home at 2:00 AM...which is quite rare I take it then.  Modern drugs are very forgiving with a pretty good half life.
5/29/08 confirmed HIV+
6/23/08 Vl 47500  CD4 511/29% CD8 .60
start atripla
8/1/08 Vl 130  CD4 667/31% CD8 .70
9/18/08 Vl un  CD4 not tested
12/19/08 Vl un CD4 723/32% CD8 .80
4/3/09 Vl un CD4 615/36% CD8  .98
8/7/09 vl un CD4 689/35% CD8 .9
12/11/09 vl un CD4 712/38% CD8 .89
4/9/10 vl un CD4 796/39% CD8 1.0
8/20/10 vl un CD4 787/38% CD8 1.0
4/6/10 vl un CD4 865/35% CD8 .9
8/16/10 vl un CD4 924/37% CD8 1.0
12/23/10 vl un CD4 1006/35% CD8 .9
5/2/10 vl un CD4 1040/39% CD8 .9
8/7/13 vl un CD4 840/39% CD8 .
11/29/18 vl un CD4 1080/39% CD8  .86

Offline wardp

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Re: All about adherence during Day to Day Life
« Reply #7 on: May 24, 2019, 08:26:54 pm »
I have a 3g samsung phone. The alarm comes on every 10 mins at 8.30am without fail then I snooze it till I take them. I store them in a drawer..
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28% 14th nov 2019 ud. Cd4 414 .27% cd8 444 29%,may 16 2020,ud ,cd4 741"19.62.

Offline JosephP

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  • Keep looking FORWARD... Dx'd 8/10/2013...
Re: All about adherence during Day to Day Life
« Reply #8 on: May 24, 2019, 10:41:58 pm »
I carry one pill with me every single day and I try to take it at the same time every day. When on Genvoya I had to take it with food which created some ackward situations but now on Biktarvy I don't need to plan around food...In 5 years I have missed one dose only..
Today January 20, 2020, I have taken 2378 pills of my ARV since first pill. This means 79 bottles of 30 pills of ARVs at an average of $3950 per bottle or $313,103 USD for my treatment. I have a compliance of 99.83% taking my meds and only .17% (or 4 pills) non-compliant. Of these four pills two I forgot completely, One I lost and one I didn't have with me while traveling! I became UD 3 months after treatment start   ***We are all dealing with this. And we will live long and productive lives!! AND, yes the Lord is my shepherd. Life is good... And thanks for the meds! ***

Offline CraigJ

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  • Posts: 25
  • Enjoying Life...why hate it!!!
Re: All about adherence during Day to Day Life
« Reply #9 on: May 27, 2019, 01:21:41 pm »
Hey I use a fitbit and have a daily reminder set for 0930 then again at 1000. I only have one tab a day to take and set myself a 30 min window rather than specific time so first buzz on wrist tells me time to get pill an if not taken by second i class by my own standard as out with window period. Never missed one yet!
Being from UK I am fortunate to not be at the mercy of insurance companies so I can get meds well in advance and currently on 4 month supplies with 3 monthly visits so always seem to have 2 months stock!
All the best C.
Dx Nov 2018 (likely Oct 2018 ex)
Dec 2018 - VL- 30,996 - CD4 - 485/33%
Jan 2019 - VL - UD <40 - CD4 not done
Feb 2019 - VL - UD <40 - CD4 - 719/43%
Apr 2019 - VL - UD <40 - CD4 not done
July 2019 - VL - UD <40 - CD4 1313/41%
Nov 2019 - VL - UD <40 - CD4 1132/37%

 


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