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Author Topic: Weight gain and meds?  (Read 2368 times)

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Offline RobbyR

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Weight gain and meds?
« on: May 22, 2019, 08:08:28 pm »
Hey everyone hope everyone in here is doing well. Iíve got a question about meds and effect on body weight. I started Atripla in 2010, stayed on it about 4 years then started Stribild but have been on Genvoya the last couple years. Getting off Atripla helped my mental state a lot, coupled with intensive treatment that I went through and my mental health is better now than ever. However, I am a little worried about body changes. Before I was diagnosed, I was thin, flat stomach, never gained much. I was too thin, but I was very physically active and able to do what I wanted. After starting meds, slowly I put on weight but it has mostly been belly fat and not much anywhere else. I just canít seem to get rid of it. Iím tall and thin so it doesnít show too much and I try to hide it as best I can. But Iím just wondering if itís lipo. Maybe natural aging too? But Iím interested to see if maybe my meds could be changed or tweaked to try another combination that might enable me to lose this belly fat. Is there a test they can do to see if itís med related or just natural? Itís driving me nuts I was always able to do what I wanted and eat what I wanted and never gained any. Maybe I just need to try to add more cardio in. Thanks for any thoughts!
"I survived because I was tougher than anybody else".--Bette Davis

Atripla
2010-2015

Stribild
2015-2016

Genvoya
2016-

Offline MarkintheDark

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Re: Weight gain and meds?
« Reply #1 on: May 23, 2019, 07:13:12 am »
I can only speak to my own experience.  Genvoya ballooned me 20lbs.  A few of the other folks here have related similar and I hope they respond, as well.
HIV dx - 02/93
AIDS dx - 07/01
Rilpivirine/Cabotegravir guinea pig since 01/17

Offline RobbyR

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Re: Weight gain and meds?
« Reply #2 on: May 26, 2019, 01:39:24 pm »
Yea Iím over this shit. Iíve always been a skinny person but since Iíve been on meds Iíve had a stomach I canít get rid of. Is there any alternative regimen I might try that doesnít cause weight gain?
"I survived because I was tougher than anybody else".--Bette Davis

Atripla
2010-2015

Stribild
2015-2016

Genvoya
2016-

Online Jim Allen

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Re: Weight gain and meds?
« Reply #3 on: May 26, 2019, 06:04:58 pm »
Better fat than dead though  ;)

Anyhow could be a combo of things, Meds, but also like you mention aging might be playing a role, time to up the activity and, reduce the intake prehaps. Before you run out and do anything however talk to your doctor and see what they think.

Best, Jim

Integrase Inhibitors May Be Tied to Weight Gain
https://www.poz.com/article/integrase-inhibitors-may-tied-weight-gain#search-query=weight%20gain

Weight Gain and Immune Activation May Be Linked in People With HIV
https://www.poz.com/article/weight-gain-immune-activation-may-linked-people-hiv#search-query=weight%20gain

HIV makes you fat
https://forums.poz.com/index.php?topic=69386.msg
« Last Edit: May 27, 2019, 02:23:38 am by Jim Allen »
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Offline leatherman

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Re: Weight gain and meds?
« Reply #4 on: May 26, 2019, 09:04:03 pm »
Iím tall and thin so it doesnít show too much and I try to hide it as best I can.
how tall and what's your weight?

but I was very physically active and able to do what I wanted. . . . Itís driving me nuts I was always able to do what I wanted and eat what I wanted and never gained any. Maybe I just need to try to add more cardio in.
what are you not able to do nowadays?

also, I'd point out that you're 10 yrs older now.  ;) age does change things no matter how much we try to hold back the years
leatherman (aka mIkIE)


chart from 1992-2017
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Offline crisbarcelona

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Re: Weight gain and meds?
« Reply #5 on: May 27, 2019, 10:09:55 am »
Hello to everybody,
I want only to say that I am on genvoya for 1 year and I got 2 kg more and its imposible to lose them. I eat healthy, exercise, gym....but the 2 kg are here...jeje

Greatings from Barcelona

Offline RobbyR

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Re: Weight gain and meds?
« Reply #6 on: May 27, 2019, 06:41:01 pm »
how tall and what's your weight?
what are you not able to do nowadays?

also, I'd point out that you're 10 yrs older now.  ;) age does change things no matter how much we try to hold back the years

Iím 5í11 about 178-180. Kinda hate my bod though. I have long legs and thin arms but when I gain it goes straight to belly. Literally anything I eat goes there. Not sure what to do. Planning on starting to workout regularly and see if that helps any. When Iíve talked to trainers they always say I need more calories to gain muscle mass but Iím always on the go and so usually just have to grab what I can. What body fat I have is love handles and belly fat but my arms and legs are skinny. About 10 years ago before meds I was a beanpole though. Was underweight then. So I def need to stay at a good weight, just not where it is on my body.
« Last Edit: May 27, 2019, 06:44:06 pm by RobbyR »
"I survived because I was tougher than anybody else".--Bette Davis

Atripla
2010-2015

Stribild
2015-2016

Genvoya
2016-

Offline filopoz

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Re: Weight gain and meds?
« Reply #7 on: June 29, 2019, 07:38:43 am »
i have gained weight as well during my first 3months on Genvoya. Then I've decided to go on low carb diet (with my doctor's approval) and this helps me to regulate my fat level. Still eat ice cream and dessert every now and then but most of the time I eat whole foods with low carbs now. As a bonus, it helps with my triglycerides and fasting glucose..

Offline virgo313

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Re: Weight gain and meds?
« Reply #8 on: June 29, 2019, 11:35:32 am »
I weight around 68 kg before it dips fast to 52kg when sick and hospitalised.
Now back to normal 68-70kg but belly balloon figure. Not sure if it is related to ART.
Just told myself that I am happy to be alive. Also i have no choice in alternative meds.
Try to eat healthy food but hard to follow unless I wear blinker every time I go out. Too many street food operating round the clock here  ;D.
I will settle with the fact I am alive.
RVD Nov 2015. VL --> Log 5.32 HAART on 23/11/15
TDF+FTC+EFV / Chemo KS - 25/11/15 - 20/01/16.
CD4 - 4 (3/11/15) / VL - 225,000   ~ CD4 - 65 (7/03/16) / VL - UD
CD4 - 153 (8/09/16) / VL - UD (20) / CD4% -6%   ~   CD4 - 215 (11/03/17) / VL - No Result / CD4% -8%
CD4 - No Result (10/04/17) / VL - UD (20)   ~   CD4 - 455 (11/05/18) / VL - UD / CD4% -14%
CD4 + CD4% (18/10/18) - Dr not going to  do this anymore / VL - To test only yearly. This Sucks..!
CD4 - 472 (10/04/19) / VL - UD / CD4% - 42%

Offline fabio

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Re: Weight gain and meds?
« Reply #9 on: June 29, 2019, 12:40:40 pm »
A bit of weight isn't all that bad. As Jim said better fat than dead.
Personally I used to be 72 kg and now am at 80 height 181cm . I feel more full and enjoy life a lot more now than I did before,plus I eat without limiting myself or cutting anything. Of course I do all that in moderation.
Also I thankfully started to fit on my old jeans hehe.

Offline Loa111

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Re: Weight gain and meds?
« Reply #10 on: July 03, 2019, 03:17:05 am »
Yes Iíve put on weight and belly is fatter than ever. Just on treatment over one year. Normallywas about 83kg, then when I got sick as advanced case went to 74kg now Iím better and 92kg! Not sure if the immune recovery caused me to eat like a pig lol plus was eating comfort food like chocolate in bed at night! Iím exercising a few times a week so hoping to get 6-7 kilos off this year. Just a bit too fat n ballooned looking.

Offline fabio

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Re: Weight gain and meds?
« Reply #11 on: July 03, 2019, 07:21:48 am »
It's probably stress eating. It might be the impact (psychological) of the diagnosis makes you overeat or skip going out/exercising and you get the effect of weight gain.

Offline crisbarcelona

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Re: Weight gain and meds?
« Reply #12 on: July 03, 2019, 09:44:53 am »
Hello Again to everybody,
I have to explain that I have now my normal weight before treatment. Perhaps the boy only needs some time to be all right with the meds.
I hope I can continue like this. I eat healthy, I walk a lot and go to the gym.
Greatings.

Offline newone

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Re: Weight gain and meds?
« Reply #13 on: July 21, 2019, 06:56:24 pm »
I am sure getting older is a factor in changing body weight and belly fat but coincidentally since I switched from Strilbild to Gevonya I gained 10kgs despite increasing my gym attendance and eating as before
I wonder how easy it will be for the Dr to agree for a different regime if one is available.
Sustiva, Atripla, Complera, Stribild, Gevonia.

Offline newone

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Re: Weight gain and meds?
« Reply #14 on: November 12, 2019, 07:23:16 pm »
Stopping Gevonya and going back to the new version of Complera, (Odefsey).
Sustiva, Atripla, Complera, Stribild, Gevonia.

Offline newone

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Re: Weight gain and meds?
« Reply #15 on: November 15, 2019, 07:29:53 pm »
(talking to myself)
Apparently my switch from Genvoya to Odefsey is a waste of time as the probable culprit for weight gain is present in both pills.
Sustiva, Atripla, Complera, Stribild, Gevonia.

Offline fabio

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Re: Weight gain and meds?
« Reply #16 on: November 16, 2019, 09:17:18 am »
I have thought too that my meds might be making me gain weight. However,since getting better psychologically I am taking care of myself a lot more,going for hikes,cycling etc.
I mean a bit of weight wouldn't hurt,it's better than being skeletor  .
Did you start with the odefsey? Did it give you any side effects?

Offline newone

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Re: Weight gain and meds?
« Reply #17 on: November 17, 2019, 03:24:06 am »
Hi, Fabio,
I have been on Genvoya for the last two years and put on lots of weight despite working out and eating sensibly, still not sure if it is a coincidence or due to Genvoya, the only noticeable side effect was/is some feeling fatigued some 2 hours after taking my daily dose, changing to Odefsey next week and as I used to be on Complera before Genvoya I should tolerate Odefsey without any major problems, we 'll see.
Sustiva, Atripla, Complera, Stribild, Gevonia.

Offline fabio

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Re: Weight gain and meds?
« Reply #18 on: November 17, 2019, 11:53:37 am »
Hopefully it does work out great for you.
It's weird that even though I'm taking meds I don't have any weird side effects (except in the first week) and I kinda don't know if my body is or isn't normal.
I mostly gained weight when I was in the army 4 years ago,where I was a cook (I ate a lot of good stuff,even chocolate pie made for the colonel 😉 hehe). However now I am getting in a normal weight as I get more active.
Also,something off topic,who the heck makes up these weird med name's 😂😂.

Offline MitchMiller

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Re: Weight gain and meds?
« Reply #19 on: November 28, 2019, 05:37:29 pm »
Here's another article I ran across integrase inhibitors and weight gain authored by an HIV doc.  I'm thinking about switching to dolutegravir at some point and wouldn't mind adding a few pounds so long as it was not around the waist.  I work out as much as I can but am still noticably shriveling as I age (now 63).

https://www.thebodypro.com/article/top-weight-gain-hiv-antiretrovirals
« Last Edit: November 28, 2019, 05:40:50 pm by MitchMiller »

Offline J.R.E.

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Re: Weight gain and meds?
« Reply #20 on: December 01, 2019, 08:23:57 pm »
 >:(


I thought I mentioned this in perhaps another thread,  But without a doubt, I have gained weight. I've been keeping track of my weight, since 2003. I weigh and record it every Sunday Morning. My weight in April of 2018, on old regimen, was 176 pounds. Also noticed the weight gain after about the third month on Triumeq.

My weight on 12/1/19, is 190 pounds !  :o

I started on Triumeq on 4/23/18, and  remained on it until 7/17/19, when I started on  Biktarvy,  but the weight gain has been horrendous. I am still on Biktarvy.

I thought the once a day dosing would be nice,  but on my next visit to the Doctor,  I am going to ask to go back to Viramune, twice a day and Epzicom once a day.

I've gained at least minimum of 12 pounds since 4/23/18, and a good portion of that weight has been put on since starting on Biktarvy.

It's just plain uncomfortable now. Would sure like to be able to tuck my shirts back into the pants again.  ::) clothes don't even fit right. Waist is now about a 39, from
36. A 3 inch waist gain.  All in the waist and belly ! I haven't changed anything in my daily routine and diet.

I have had the highest CD4 counts since 4/23/18, On These once a day meds,  But I rather go back to the regimen I was on for about 15 years. I was undetectable all the time, on the original viramune and epzicom. I did have some weight gain on Viramune and Epzicom, but no where near, what I am experiencing now.


Take care---Ray

« Last Edit: December 01, 2019, 08:28:46 pm by J.R.E. »
Current Meds ; Biktarvy, 10mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 8/28/19

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 10/16/19,  Viral load remains <40

CD 4 @577 /  CD4 % @ 17 %

  
 68 years young.

Offline Loa111

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Re: Weight gain and meds?
« Reply #21 on: December 02, 2019, 10:27:50 am »
Interesting. I've a bit of a belly on me, and regardless of what training, jogging or gym I do, it seems to stay there, and I am very fit for my age. Of course I lost about 10kgs when I ended up in hospital and found out I'd an advanced Dx. Since then I've put on about 12-13kgs so I am certainly 3ish kilos above where I'd naturally would be. Belly has put a few inches on my pants size to. I could do without this fat belly and was beginning to wonder if this is treatment related?
I'm on Descoy and Tivicay pill combo.
« Last Edit: December 02, 2019, 10:33:18 am by Loa111 »

Online Jim Allen

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Re: Weight gain and meds?
« Reply #22 on: December 02, 2019, 11:50:21 am »
Interesting. I've a bit of a belly on me, and regardless of what training, jogging or gym I do, it seems to stay there, and I am very fit for my age. Of course I lost about 10kgs when I ended up in hospital and found out I'd an advanced Dx. Since then I've put on about 12-13kgs so I am certainly 3ish kilos above where I'd naturally would be. Belly has put a few inches on my pants size to. I could do without this fat belly and was beginning to wonder if this is treatment related?
I'm on Descoy and Tivicay pill combo.

Could be untreated HIV kept you weight lower for years as you had an AIDS ,(Advanced HIV) dignosis so natural level would be hard to pinpoint I presume, chiming in as I had similar experience

 i had a belly starting to form , more like the pregnancy look  ;D tried exercise did nothing next to just hurting so started instead with more routine daily activity i.e walking on breaks, morning walk, walk to the shops  and sticking to 3 meals a day instead of munching fixed things for me within a 3-4 month time frame. I doubt I can blame the meds for it, just aging and more movement needed

When starting treatment I did gain about 10 kg, (I could check the exact number) within a short few months , although, it was needed. I had become seriously underweight before starting and been living with HIV for a long time untreated so very skinny for a long time before the final decline in weight set in.

My point is multiple factors could and do often play a role, that vary per person. Although in short better fat than dead or the skinny "AIDS," look . Do keep an eye on it and if its bothering people discuss what options you have with your healthcare provider
« Last Edit: December 02, 2019, 12:02:02 pm by Jim Allen »
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Online Jim Allen

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Re: Weight gain and meds?
« Reply #23 on: December 02, 2019, 12:03:38 pm »
@RobbyR

As its your thread just wanted to check how you are getting on and if any progress has been made?

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