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Author Topic: Recently tested positive  (Read 1711 times)

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Offline friendsfirst68

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  • Posts: 5
Recently tested positive
« on: April 14, 2019, 08:05:31 am »
So as a family we gave blood on Feb 22 in memory of my daughter who passed at the age of 3 16 years ago from leukemia. Giving back to help others. Unfortunately I got notification from Red Cross that my blood had issues. I was told I was HIV positive. It was devastating. My own fault as I had unprotected sex after getting divorced 3 years ago but thought I was careful about picking people that would be safe. At first it was overwhelming. I told my adult sons first they are 20 and 23 and still live at home with me. Then I my best friend. She has been my friend over 20 years and told me that things are not the same as they used to be and that she will be there for me through everything. I then notified any of the men I slept with since my last negative test which was Aug 2017. Talk about a horrible thing to have to do as I am still friends with some of them. Told them all to get tested and hope that I did not pass the virus to them. I was in to see my primary care doc within 3 days of diagnosis and then she referred me to specialist within the week. He was excellent with giving information. My best friend went with me to that visit for support but also because she knew I was still in shock and might forgot to ask certain questions.They started me on meds that day. I am on Biktarvy. My numbers prior to meds were 321 for immune system and 61,200 for viral load. After 2 weeks on meds they needed to get another vial of blood to test something and they said my viral load had dropped to 778. That gave me hope that I will be ok. I guess the hardest part is the Stigma of having HIV. I feel like a leper or a pariah. That I will be alone forever relationship wise and that is the part that is hard. My focus is to get myself healthy so I can enjoy life as much as possible.

Offline Jim Allen

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Re: Recently tested positive
« Reply #1 on: April 14, 2019, 09:10:47 am »
Hiya,

Thanks for sharing & welcome to the forum. I understand it was many years ago but I am sorry to hear about the loss of your daughter.   

Regarding the diagnosis it can be a lot to digest,  but I'm glad to hear you have supportive friends and a good doctor by the sounds of it.

Quote
After 2 weeks on meds they needed to get another vial of blood to test something and they said my viral load had dropped to 778. That gave me hope that I will be ok. I guess the hardest part is the Stigma of having HIV. I feel like a leper or a pariah. That I will be alone forever relationship wise and that is the part that is hard. My focus is to get myself healthy so I can enjoy life as much as possible.

Within only 2 weeks of being on treatment this is a truly fantastic result!

I know its a lot to digest still and its early days, and you are feeling bad at the moment about this illness. However HIV is not a barrier with treatment to a healthy long life and relationships, maybe now is not the right time yet but trust me when I say HIV does not mean you have to be alone for the rest of your days, that is simply not true unless you choose to be alone.

Take it easy

Jim

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Offline DanielGA

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  • Posts: 29
Re: Recently tested positive
« Reply #2 on: April 14, 2019, 11:48:16 am »
Iím so sorry to read about your diagnosis. It seems like youíve taken all of the right steps to keep yourself healthy.

Youíve shared some legitimate concerns about living with hiv. Have you considered seeing a therapist to work through the psychological struggles? Itís so important to have support from loved ones, but a therapist can offer objective insight to help you.

Youíre not alone. This forum is a haven for us. Glad you found it!
Exp: 12/30/18
Dx: 3/29/18
Conf: 4/4/18
CD4 623/17% on 4/5/19
VL 50300 on 4/5/19
CD4 580 25% on 4/24/19
Biktarvy first dose on 4/24/19
VL Undetectable on 5/30/19
CD4 1170 34% on 9/24/19
CD4 821 35% on 12/24/19

Offline friendsfirst68

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  • Posts: 5
Re: Recently tested positive
« Reply #3 on: April 14, 2019, 01:25:03 pm »
I have not reached for counseling or a support group yet. I have not shared with anyone family wise except my 2 sons who live with me. My best friend has been my support she checks in with me every day and we get together for dinner etc every couple of weeks. I do plan on looking into counseling soon. I am happy that the meds..Biktarvy .....have brought my viral load down so much in 2 weeks and am hoping maybe by my next visit may 7 to be close to undetectable.... Thank you for reaching out

Offline DanielGA

  • Member
  • Posts: 29
Re: Recently tested positive
« Reply #4 on: April 14, 2019, 02:31:00 pm »
Your dx is just that: YOUR dx. You only need to disclose to the people you want. Iím glad the Biktarvy is having such a great effect. I am still waiting to start my meds. My joint appointment with my primary doctor and specialist on his team wonít be until the week of the 22nd sometime. My diagnosis is early, my CD4 is in normal range, and my VL is relatively low because of early detection. I am anxious to begin, though, so I will feel like Iím doing something.

May 7 will be a good day for you. Your VL will be much improved. Iím glad youíre going to seek counseling. Iím also waiting for insurance to find a therapist for me.

Youíre not alone. You will be well. You will live a long and happy life.
Exp: 12/30/18
Dx: 3/29/18
Conf: 4/4/18
CD4 623/17% on 4/5/19
VL 50300 on 4/5/19
CD4 580 25% on 4/24/19
Biktarvy first dose on 4/24/19
VL Undetectable on 5/30/19
CD4 1170 34% on 9/24/19
CD4 821 35% on 12/24/19

 


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