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Author Topic: New member, New Questions I hope New Friends  (Read 2730 times)

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Offline ZeldaDC

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New member, New Questions I hope New Friends
« on: March 26, 2019, 04:46:09 pm »
Good day everyone, I am 30 years old I was diagnosed on Feb 18 after routine exams I started the treatment on March 22, Ill recieve the results of CV and C4 this week.

The pill that was prescribed to me is called ACRIPTEGA (Dolutegravir / lamivudine / tenofir disoproxil fumarate) according to my doctors it is last generation and good adherence, although looking for it by google I have found little information, at the moment the side effects that I feel are gastric as diarrhea , dyspepsia and colic for now acceptable, the doctors told me to avoid egg, milk, preservatives, fish and others for the period of 15 days in order to avoid allergies.

In my country the treatment is free along with several laboratory tests, I currently travel to the US for six months each year to work and after that I return to my country, I am very afraid of my situation in the United States on the subject of the medication, every time I am admitted with a tourist visa and I understand that the treatment is not free there, I have looked for support groups but I do not find anything concrete.

Someone who has experience with those medications? Someone to guide me a little on the subject of travel and medication? Any advice is welcome, sorry for the wording and syntax

 :-\ :-[

Offline Jim Allen

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Re: New member, New Questions I hope New Friends
« Reply #1 on: March 26, 2019, 05:29:14 pm »
Hiya,

Sorry to hear about the diagnosis.

Quote
The pill that was prescribed to me is called ACRIPTEGA

Tenofovir/lamivudine/dolutegravir (TLD), solid combination of drugs.

Give yourself few weeks to settle into it, time to adjust so to speak.  If you are currently taking it after or before eating, you could try taking it without food instead (Unless your doc has said otherwise). If the diarrhea does not settle do check with your local doctor, as its good to keep them posted & plenty of things can make you sick, co-incidences also happen.   

https://www.poz.com/basics/hiv-basics/nausea-vomiting-diarrhea

I have this issue with antibiotics, what works for me is probiotics yogurt. Are you taking any additional meds besides the HIV treatment?

Quote
I currently travel to the US for six months each year to work and after that I return to my country, I am very afraid of my situation in the United States on the subject of the medication, every time I am admitted with a tourist visa and I understand that the treatment is not free there, I have looked for support groups but I do not find anything concrete.

So you live for 6 months of the year in the US? Cool, hmmm I suppose its not possible to at least get a few months (90 days) at a time of the meds from home?

I've not had an issue myself when entering the US with my meds, normally I don't bring more than 3 months worth with though and I have a note from my doctor if i am asked (Never have been) that its for personal use due to a medical condition. 

Best, Jim 

HIV 101 - Everything you need to know
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Offline ZeldaDC

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Re: New member, New Questions I hope New Friends
« Reply #2 on: March 26, 2019, 06:27:27 pm »
Hi Jim, I've been reading several post and you're very helpful in all of them... Thank u for your patience and knowledge

I Was diagnosed with irritable bowel syndrome, then almost all my life I've taken probiotics, several months ago Im taking the composition of (Lactobacillus acidofilus, Lactobacillus paracasei, Bifidobacterium lactis and Lactobacillus plantarum) there are so many types that sometimes there is confusion, some off them improve the diarrhea others the constipation.

It is a good idea to take the pills with a note from the doctor, thanks for the experience, then would not have to declare them? Only if they ask me I should present the note? I'd Still need pills for the other three months, but it gives me a chance to get help over there.


Offline Jim Allen

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Re: New member, New Questions I hope New Friends
« Reply #3 on: March 26, 2019, 06:37:39 pm »
I've never been asked at US customs but I bring the note with me just encase.

http://www.hivtravel.org/Default.aspx?PageId=143&CountryId=12

Quote
Customs regulations require people entering with prescription medication like antiretroviral drugs to carry a doctor’s certificate in English, stating that the drugs are required to treat a personal condition. This requirement applies to all prescription drugs.
HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline harleymc

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Re: New member, New Questions I hope New Friends
« Reply #4 on: March 28, 2019, 12:56:50 am »
Hi Zelda, welcome

I've not been on your particular combination but have taken both lamivudine and TDF for several years each.

I have slightly modified my diet over the years, I don't know if it's to do with medications or with inflammation caused by the virus. 

For me I had to cut out milk and cream but yoghurts and other fermented foods have become my friend.

I'm not in the USA, but I'm sure others will advise  on what support may be available.

Offline ZeldaDC

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Re: New member, New Questions I hope New Friends
« Reply #5 on: April 04, 2019, 06:57:34 pm »
Thanks for your help and words.

I received my results and my doctor was a little impressed.

CD4: 201    CD8: 957  CD3: 1197 
VL:  49.430 copies

I feel a little nervous but I have started to read what foods help to raise the CD4 ... The only discomfort I have now is pain in the stomach and some fatigue. I just have to have patience and faith. :-\ :-\ :-\

Are there some interpretation guide websites?

Offline MarkintheDark

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Re: New member, New Questions I hope New Friends
« Reply #6 on: April 04, 2019, 07:45:09 pm »
Welcome Zelda!  Unfortunate as the dx has been, I'm really pleased you seem to have jumped right on getting treatment.  Since this is so new to you, yeah, there's going to be an adjustment period...not just for your IBS on this regimen, but frankly, for your head, too.  That's perfectly normal.  You'll have plenty of support here.

If we're talkin' numbers:  It's natural to use the CD4 as a convenient measuring stick.  And it's natural to use the CD4 absolute as a measure.  However, you'll find the CD4 percentage is a more consistently reliable measure.  I've consistent run an absolute around 200 +/-50 and percentage of 10-11%.  Mark's unofficial goal has been to get that to 14%.  So, too, any single draw is just a snapshot.  It can be affected by time of day of the draw, other infections, etc.  If possible, at least try to schedule your draws at the same time of day.

While you'll undoubtedly be focused on numbers for a while - almost everyone does it - I've found the best indicator is simply, "How do I feel?"

More importantly, the goal is for an undetectable VL.  With current technology that's <20-50 copies.  That means there's less HIV putting a strain on your immune system.  Quite often that will be accompanied by an increased CD4.  Don't be discouraged.  An undetectable VL could take months.  Again, however, the idea is to quell the HIV in the first place.

You also mentioned concerns about your stint in the U.S.  I don't know your country, but let me offer an organization, AHF, that has worldwide offices that may be able to help you navigate and even help you with treatment while you're in the States: https://www.aidshealth.org/global/
« Last Edit: April 04, 2019, 07:56:57 pm by MarkintheDark »
HIV dx - 02/93
AIDS dx - 07/01
Rilpivirine/Cabotegravir guinea pig since 01/17

 


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