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Author Topic: Just been diagnosed  (Read 1720 times)

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Offline Woundedgirl123

  • New Member
  • Posts: 1
Just been diagnosed
« on: February 21, 2019, 04:53:56 pm »
Hello everyone

I was only diagnosed the end of last month I'm not on meds yet still waiting for some blood results but my head is all over the place, I don't know what to think or even do. I try to stay positive about things but I just can't. I would like to talk to more people who know what I need to expect in the coming weeks :)

Offline lightalltheway

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  • Posts: 142
Re: Just been diagnosed
« Reply #1 on: February 21, 2019, 05:43:58 pm »

Depending on where you are, the next few weeks may vary in terms of procedures. Nonetheless, your labs will be probably a lot but what you will need to know are two things:

1. Your CD4 Count: it is your immunity cell that infected by HIV and by then used to reproduce other virus in the blood. The higher the number, the better. But dont stress a lot about it as it may vary among individuals and its so hard to know your actual numbers before the transmission. Normally any number that is above 200 is considered good.

2. Your HIV viral load: It is the virus in the blood and the main aim of your medication will be to minimise it to " Undetected " levels in your blood so it will give space and time for your immunity to recover.

Modern HIV medication are very good, you will experience mild side effects the first few weeks and then you will be ok with it completely. It worthís discussing with your health care provider your treatment options depending on your life and again, where are you based, hence the accessibility for your medication.

You will also need to enlighten yourself by reading about HIV, medication and other positive individuals experiences. For me, this platform helped me alot and we help each other by sharing our concerns and question. Its home away from home.

HIV in this modern era is a chronic disease same as Diabetes and high blood pressure. They are some arguments in the research field that HIV positive individuals live a better-quality life because their health is closely monitored compared with the negative population. This advancement in science is a game changer, and yet we hope for more to come.

Rest assured that HIV will change your life to a better place, in which you will be more aware about your health by taking control over it. Itís all in the mind, again, depending on your location, counselling might help essentially after diagnosing where you will need time to digest it all. Just give time some time.

Please keep me (us) posted and should you have any question, i am more than happy to help as long as i can.

Light all the way,

Offline Jim Allen

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    • HIV Lessons
Re: Just been diagnosed
« Reply #2 on: February 21, 2019, 07:32:49 pm »

Welcome to the forum, sorry to hear about the diagnosis though.

How were you diagnosed, I ask as you say you are waiting for blood results?
Was it just an antibodies test?

Anyhow over the next few weeks you will have more appointments to take more bloods, this is also to figure out what treatment would best suit you and than the goal is to start treatment.  As mentioned by the other poster, with treatment living with HIV is exactly that, living.

So try not to stress too much and keep us posted on how you are getting on.

Best, Jim

P.S there is also a lot, yet easy to digest information in the lessons


HIV 101 - Everything you need to know
HIV 101
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline TexasDragon

  • Member
  • Posts: 98
Re: Just been diagnosed
« Reply #3 on: February 22, 2019, 08:03:33 am »
Woundedgirl123 -

While Iím sorry you find yourself here, you are in the right place...and among friends that understand.

We have all been where you are now - for me it was just a few months ago, Nov. 2018 when I got the news.

So since then, Iíve had three doctors appointments each lasting maybe an 30 minutes or so, mostly talking and three blood draws. Thatís about it really.

Started on meds (Biktarvy) in December. Zero side effects.

So thatís where I am now - and so many others. We take one pill a day and do what we can do to stay healthy, no different than anyone else. Eat healthy, excercise, donít smoke. Live. Love. And laugh (I know that doesnít seem possible now.)

You will be ok...ok?

Know we care, and we understand!
Exposure 10-04-2018
Dx 11-08-2018
1st Appt 11-15-2018
11-15-2018 Blood Draw - CD4 468 11% VL 316,000
2nd Appt 12-04-2018 - Hep A and B Vaccines
Start of Biktarvy 12-14-2018
3rd Appt 01-15-2019 - All Good - 2nd Hep B Vaccine
01-16-2019 Blood Draw - CD4 934 28% VL 98
4th Appt 04-16-2019 - All Good - Final Hep B Vaccine
04-16-2019 Blood Draw - CD4 873 30% VL <20
01-13-2020 Blood Draw - CD4 1064 34% VL <20


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