Welcome, Guest. Please login or register.
April 19, 2019, 08:43:23 am

Login with username, password and session length


Members
Stats
  • Total Posts: 743245
  • Total Topics: 61990
  • Online Today: 176
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 am)
Users Online
Users: 4
Guests: 127
Total: 131

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Welcome to Am I Infected

Welcome to the "Am I Infected?" POZ forum.

New members -- those who have posted three or fewer messages -- are permitted to post questions and responses, free of charge (make them count!). Ongoing participation in the "Am I Infected?" forum -- posting more than three questions or responses -- requires a paid subscription.

A seven-day subscription is $9.99, a 30-day subscription is $14.99 and a 90-day subscription is $24.99.

Anyone who needs to post more than three messages in the "Am I Infected?" forum -- including past, present and future POZ Forums members -- will need to subscribe, with secure payments made via PayPal.

There will be no charge to continue reading threads in the "Am I Infected?" forum, nor will there be a charge for participating in any of the Main Forums; Meds, Mind, Body & Benefits; and Off Topic Forums. Similarly, all POZ pages, including our "HIV Transmission and Risks" and "Am I Infected? (A Guide to Testing for HIV)" basics, will remain accessible to all.

NOTE: HIV testing questions will still need to be posted in the "Am I Infected?" forum; attempts to post HIV symptoms or testing questions in any other forums will be considered violations of our rules of membership and subject to time-outs and permanent bans.

To learn how to upgrade your Forums account to participate beyond three posts in the "Am I Infected?" Forum, please click here.

Thank you for your understanding and future support of the best online support service for people living with, affected by and at risk for HIV.

Author Topic: Testing negative but symptoms persist...  (Read 628 times)

0 Members and 1 Guest are viewing this topic.

Offline tristan2403

  • Standard
  • New Member
  • Posts: 2
Testing negative but symptoms persist...
« on: January 31, 2019, 10:07:09 am »
In Jan of 2018 went to a massage parlor, oral, protected sex, and a quick finger prostate massage.

In March had night sweats, hot pin prick sensations on top of head and arms that would come and go real quick.

Between March and May it was like someone daily injected me with a poison, like the feeling of a bunch of locusts swarming through my system. Eventually even felt it in my tongue which I have to this day. Inflamed scalloped tongue. Thinning arms and legs and growing stomach.

In May I had 1 oral HIV test and 2 blood tests all 4th Gen test.
About 3 weeks ago I had another blood based 4th Gen test and a Qualitative RNA.
All negative... so all good right?

Only thing other bloodwork tell me me is high sed rate at 30 and CRP level was 7.4
PCP just said something is causing inflammation, low testosterone at 212, but I already had that before and it was from anxiety/depression, I take Androgel already.

My legs keep thinging and a few time a week I get these tiny red marks on my hand that appear and then vanish within 10 mins or less.

Back of Hand:

https://drive.google.com/file/d/15Xx9afy0uJv5iX99a6ABItvrK-o7U4wl/view?usp=sharing

Negative for HTLV, HEP C as well... just ran some Lupus tests...

Biggest concern is this wasting of  my legs... anyone have anything similar to this progression/symptoms?

Thanks so much for any help, searching for a diagnosis for a year now almost.

T.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 11,476
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Testing negative but symptoms persist...
« Reply #1 on: January 31, 2019, 10:26:54 am »
In Jan of 2018 went to a massage parlor, oral, protected sex, and a quick finger prostate massage.

Hiya,

Sorry to hear that you feel unwell and hope you feel better soon. Nothing you mentioned is HIV specific & some of it simply nothing to do with HIV regardless of HIV status. Keep working with your doctor or a better one.

Anyway our focus here is risk assessments and what you posted was no HIV risk whatsoever. Not even theoretical, it lacks exposure and the biological conditions needed for acquiring HIV.

So good news is if this was your only sexual encounter than HIV is simply not the issue.

Here's what you need to know in order to avoid hiv infection:
Use condoms for anal or vaginal intercourse, correctly and consistently, every time, no exceptions. Consider starting PrEP as an additional layer of HIV protection going forward.

Keep in mind that some sexual practices which may be described as ‘safe’ in terms of HIV transmission might still pose a risk for transmission of other STI's, so please do get fully tested regularly and at least yearly for all STI's including but not limited to HIV and test more frequently if unprotected intercourse occurs
Also note that it is possible to have an STI and show no signs or symptoms and the only way of knowing is by testing.

More information on HIV Basics, PEP, TaSP and Transmission can be found through the links in my signature to our POZ pages, this includes information on HIV Testing

Kind regards

Jim

Please Note.
As a member of the AM I Infected Forum you are required to only post in this one thread no matter how long between visits or the subject matter. You can find this thread by going to your profile and selecting show own post and it will take you here . It helps us to help you when you keep all your thoughts or questions in one thread and it helps other readers to follow the discussion. Any additional threads will be deleted

« Last Edit: January 31, 2019, 12:46:27 pm by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline tristan2403

  • Standard
  • New Member
  • Posts: 2
Re: Testing negative but symptoms persist...
« Reply #2 on: January 31, 2019, 11:07:59 am »
Thank you much Jim for your quick response.  I even had a CD4 run twice, in May it was 900 and then Dec it was 1254.

How often do cases like this occur do you know? I suppose rarely...
https://www.cdc.gov/mmwr/preview/mmwrhtml/00040569.htm

My Primary Dr. says well there's lots of viruses and bacteria out there, can be something else.  Well, like what?  Has anyone on here thought it was HIV but then it was something else that mimics HIV?

I keep testing and working with my Dr., after a year it gets frustrating.

Thanks again,
T.

Offline Jim Allen

  • Administrator
  • Member
  • Posts: 11,476
  • Twitter @JimAllenDublin
    • HIV Lessons
Re: Testing negative but symptoms persist...
« Reply #3 on: January 31, 2019, 12:38:27 pm »
Hiya

Look I hope you feel better soon, however you need to stop focusing on HIV that you simply at this point in time do not have.

Cases like what? I looked the case is suspected unprotected intercourse leading to HIV infection and testing tools from back in the early 90's... Yes, unprotected intercourse meets all the biological conditions needed for acquiring HIV, that has not changed. I'm struggling to see how this (poorly written) infection case from unprotected sex in the early 1990's, relates to your no-risk scenario in 2019?

What you posted was no HIV risk whatsoever. Not even theoretical, it lacks exposure and the biological conditions needed for acquiring HIV. So you simply did not acquire HIV from this encounter. 

Hence I said
Quote
if this was your only sexual encounter than HIV is simply not the issue.


Quote
My Primary Dr. says well there's lots of viruses and bacteria out there, can be something else.  Well, like what?  Has anyone on here thought it was HIV but then it was something else that mimics HIV?

Look nothing you mentioned would be specific HIV symptoms to start with, so no need to look at mimics. Instead focus on working with your doctor on finding the cause, and stay away from Dr.Google in the meantime. Truly do hope you start to feel better soon.

Here's what you need to know in order to avoid hiv infection:
Use condoms for anal or vaginal intercourse, correctly and consistently, every time, no exceptions. Consider starting PrEP as an additional layer of HIV protection going forward.

Keep in mind that some sexual practices which may be described as ‘safe’ in terms of HIV transmission might still pose a risk for transmission of other STI's, so please do get fully tested regularly and at least yearly for all STI's including but not limited to HIV and test more frequently if unprotected intercourse occurs
Also note that it is possible to have an STI and show no signs or symptoms and the only way of knowing is by testing.

More information on HIV Basics, PEP, TaSP and Transmission can be found through the links in my signature to our POZ pages, this includes information on HIV Testing

Kind regards

Jim

Please Note.
As a member of the AM I Infected Forum you are required to only post in this one thread no matter how long between visits or the subject matter. You can find this thread by going to your profile and selecting show own post and it will take you here . It helps us to help you when you keep all your thoughts or questions in one thread and it helps other readers to follow the discussion. Any additional threads will be deleted
« Last Edit: January 31, 2019, 01:11:59 pm by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

 


Terms of Membership for these forums
 

© 2019 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.