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Author Topic: How many people get help form the Ryan White fund  (Read 930 times)

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Offline gafry53

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  • Posts: 11
How many people get help form the Ryan White fund
« on: December 18, 2018, 07:11:44 pm »
I would you to know if you get help paying for your HIV medication from the Ryan Whttps://forums.poz.com/Smileys/default/smiley.gifhite Fund?  How has it work out for you and how easy is it to get??

Offline gafry53

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Re: How many people get help form the Ryan White fund
« Reply #1 on: December 23, 2018, 08:08:10 am »
I went to the local Office of the Aging for a summary of Medicare benefits and what is a good choice. When selecting the Prescription part D I used Genvoya and Biktarvy.
The cost for me per year is over $5000 dollars for the medication. How can I retire and not run out of money?? Maybe stop  drugs when retired to save money??

Offline leatherman

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Re: How many people get help form the Ryan White fund
« Reply #2 on: January 06, 2019, 07:40:32 am »
did you speak with anyone at your clinic (case manager, Ryan White administrator) or with your state's Ryan White dpt. about what sort of assistance you might be eligible for?
leatherman (aka mIkIE)


chart from 1992-2017
Tivicay/Prezcobix

Offline DK57

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Re: How many people get help form the Ryan White fund
« Reply #3 on: March 15, 2019, 07:45:15 pm »
They helped me a TON here in Texas!

Offline AndyArrow

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Re: How many people get help form the Ryan White fund
« Reply #4 on: March 16, 2019, 08:16:49 am »
The Ryan White Program is run differently in every state unfortunately.  In Illinois the program is run very well although you have to re-apply every 6 months which doesn't make a lot of sense because my HIV isn't going away.  Find an ASO in your area (or somewhere in your state) so they can get you started.
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline leatherman

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Re: How many people get help form the Ryan White fund
« Reply #5 on: March 16, 2019, 01:04:46 pm »
you have to re-apply every 6 months which doesn't make a lot of sense because my HIV isn't going away.
I think most states require reapplication every 6 months (I think it's a requirement at the federal level). And it's not because your HIV status may change but that your financial status may have changed. ;)
leatherman (aka mIkIE)


chart from 1992-2017
Tivicay/Prezcobix

Offline DK57

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Re: How many people get help form the Ryan White fund
« Reply #6 on: March 16, 2019, 10:49:48 pm »
  Yeah...the every 6 months thing sux buttttttt.....It is a lot of help! Little effort on my part is more than fair.

Offline emililadjet

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Re: How many people get help form the Ryan White fund
« Reply #7 on: March 17, 2019, 08:11:26 am »
I went to the local Office of the Aging for a summary of Medicare benefits and what is a good choice. When selecting the Prescription part D I used Genvoya and Biktarvy.
The cost for me per year is over $5000 dollars for the medication. How can I retire and not run out of money?? Maybe stop  drugs when retired to save money??
$ 5,000 a year is really very expensive for the drugs, but you must continue taking your medication
With our  outdoor speakers, you can build your very own pro audio quality sub. Indulge

Offline LiveWithIt

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Re: How many people get help form the Ryan White fund
« Reply #8 on: March 18, 2019, 10:38:37 am »
I went to the local Office of the Aging for a summary of Medicare benefits and what is a good choice. When selecting the Prescription part D I used Genvoya and Biktarvy.
The cost for me per year is over $5000 dollars for the medication. How can I retire and not run out of money?? Maybe stop  drugs when retired to save money??

You can try to get a generic version of the medication,  some people get it from India.   You may also qualify if your income is lower when you are on Social Security and can't pay for the meds.   If you have an AHF Aids Healthcare Foundation near you go there and get a case manager.  If not call them and see where they can refer you .
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

 


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