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Author Topic: Muscle pain  (Read 721 times)

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Offline muchtolearn

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Muscle pain
« on: December 04, 2018, 04:21:46 pm »
I'm on descovy + tivicay for 3mos. Started 201,000 VL, 170 CD4; now UD VL and 550 CD4 (hurray!). Symptoms for ~1.5 years before diagnosis --- constant sinus infections, exhaustion, dry feet, joint and muscle pain. All went away after ART except for the muscle pain (dull ache in both arms and legs). I need 2-5 Advil a day to cope with muscle aches. Creatine kinase normal, negative for other things like rheumatoid arthritis and auto-Antibodies. I don't see much on this topic . At least for me, it seems more likely to be HIV not the drugs since it started before my (delayed) diagnosis. It would be great to have a sense if it will always stay or not.
« Last Edit: December 04, 2018, 04:26:06 pm by JimDublin »
CD4 at diagnosis Aug 2018 = 170
VL at diagnosis Aug 2018: 201,000
Began treatment (Descovy + Tivicay) Aug 2018
Current labs (Dec 2018): CD4=558, 17%, VL=<20
Current meds: Descovy + Tivicay

Online Jim Allen

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Re: Muscle pain
« Reply #1 on: December 04, 2018, 04:33:27 pm »

Glad to hear you're UD and starting to feel better.

To be honest it can take time to heal, give it time and if in doubt check with your doctor. I think the first year or two on meds was the hardest for me, not due to meds at all but just healing from the damage.

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Offline newbie2016

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Re: Muscle pain
« Reply #2 on: January 18, 2019, 04:53:21 am »
I have muscle pain and weakness... it was a side affect of the medication
I was having sharp burning up my arms which seems to have sessed but happens time to time.

Offline Chop

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Re: Muscle pain
« Reply #3 on: January 20, 2019, 01:39:50 pm »
Hi, I am on an identical combination. Two and a half years in...the aching in my arms and hips has just started to ease. My consultant concurs with Jim, I needed time for my body to reset and heal...and she predicted about two years. It is much much better now.
10.08.2016   Admitted to Hospital during Seroconversion   
16.08.2016   Diagnosis Day   
17.08.2016   VL > 10 million (test only went to 10m) CD4 170   
24.08.2016   Start ART - Truvada and Tivicay
05.09.2016   VL 187,000 CD4 301 (98% decrease)   
20.09.2016   VL 16,400 CD4 432 (91% decrease)   
10.10.2016   VL 835 (95% decrease)
07.11.2016   VL 185 CD4 368 (77% decrease)   
05.12.2016   VL 80 (57% decrease)
03.01.2017   VL 56 (30% decrease)
05.01.2017   Change ART to Triumeq due to Kidneys
13.01.2017   VL UD (< 40) (28% decrease)


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