Welcome, Guest. Please login or register.
July 19, 2019, 12:11:35 am

Login with username, password and session length

  • Total Members: 34537
  • Latest: Anxi
  • Total Posts: 746098
  • Total Topics: 62413
  • Online Today: 262
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 am)
Users Online
Users: 4
Guests: 248
Total: 252


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Out of the blue!  (Read 459 times)

0 Members and 1 Guest are viewing this topic.

Offline Hope4life

  • Member
  • Posts: 34
Out of the blue!
« on: November 29, 2018, 12:38:21 am »
Hi everyone,
Today, while driving some thoughts came in. Which I would like to share with you all and moreover I want your inputs over the same.
What was your reaction towards POZ or HIV condition before you got infected with the same?
I am from the madical profession and i alwasya knew about the medicines being used for maintanece of the d condition. However till today i have always read about them cos they were part of my curriculum not because I was eager to 8).
I never knew that the condition is progressed to that level. I always used to see the hoardings stating the HIV AIDS protection etc. and used to wonder this is not that prevalent disease (However its deadly). However i suppose that misunderstanding made me fall in the trap of "Stupid HIV". Though i was always very kind towards patients of every kind. I still remember i used to give kind gesture (pat) to patients suffering from communicable diseases. cos i used to feel that they should not feel rejected. Though that is another thing that sometime i ended up to get the same disease like (Mumps, chicken pox etc.). But i never always kept to kind attitude towards all patients but i never met any HIV patients (to my knowledge  :( ) . Though now i am the one. Moreover because of my less experience in the HIV medicines i never knew that the medicines has advanced to that extent that now the disease is a manageable disease. and never knew about the UD=UT. I suppose that na´ve knowledge is still prevailing in the HIV negative people and that's why hiv patients still feel the social taboo.
Before my detection i always used to think hiv as deadly disease but now i came to knwo about the true maths behind and living happily on treatment.
Pardon my english. I am bad in wrting over phone keypads.

Offline CaveyUK

  • Global Moderator
  • Member
  • Posts: 1,631
Re: Out of the blue!
« Reply #1 on: November 29, 2018, 04:57:57 am »
Most people still have images of AIDS in the 80s and 90s in their heads when they think about HIV. I was the same at one point, although before my diagnosis I had read up on it, so didn't have to make the mental leap to understanding it as a controllable condition at the time I found out I had it.

It's the biggest driver of stigma of course, and something you would expect to improve over time, but to be honest, unless people are directly impacted by HIV in some way there is little motivation to read up on it, so it's still a major challenge.
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

Offline leatherman

  • Member
  • Posts: 7,593
  • Google and HIV meds are Your Friends
Re: Out of the blue!
« Reply #2 on: November 29, 2018, 09:15:14 am »
unless people are directly impacted by HIV in some way there is little motivation to read up on it, so it's still a major challenge.
Life is really hard and people just don't know much about things that don't affect them or their immediate family.

I know nothing about diabetes, breast cancer, or alzheimer's (even though my grandfather died many years ago from alzheimers and a maternal aunt is dealing with breast cancer), because I don't have any of those problems. I know a little bit about non-hodgkins lymphoma and pancreatic cancer because those illnesses took the lives of one of my partners and one of my friends. I know a lot about HIV because I've lived with it 34 years. I know little about high blood pressure or cholesterol (even though one of my brothers and my grandmother deal with those issues) but I better read up as my doc is sure to bring those up at my next appointment.

I've always believed that education is the answer to reducing stigma; but it's a long slow almost one-by-one process because, really, who wants to learn about a disease that you don't have?
leatherman (aka mIkIE)

chart from 1992-2017

Offline fabio

  • Member
  • Posts: 269
Re: Out of the blue!
« Reply #3 on: November 29, 2018, 01:26:41 pm »
In all honesty,I knew there was treatment (from school biology),but I didn't think that it would be so effective. I have thought that,the first time I was diagnosed,that I had a very short life and felt weak from my symptoms (mentally and physically).
I also had that 70s 80s image of hiv/aids and I felt very depressed.
Even the people,I didn't expect the hate and dehumanization I would face,especially by healthcare "professionals". However I also saw faces who,like me,had  hiv and were waiting for their annual blood work. At that time we stared at each other and said nothing,but somehow I got that feeling of comfort that I am not alone in this fight. I also got to talk to people in this forum,which I believe helped me the most,since I had many questions and insecurities (being 23 and newly diagnosed).
Flash forward to  now,where I have hope that all will be fine,I feel healthy and I also feel that this thing won't  define me or anyone that has it,I will live life as best as possible with no regrets :).
« Last Edit: November 29, 2018, 01:28:53 pm by fabio »


Terms of Membership for these forums

© 2019 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.