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Author Topic: Out of the blue!  (Read 382 times)

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Offline Hope4life

  • Member
  • Posts: 21
Out of the blue!
« on: November 29, 2018, 12:38:21 am »
Hi everyone,
Today, while driving some thoughts came in. Which I would like to share with you all and moreover I want your inputs over the same.
What was your reaction towards POZ or HIV condition before you got infected with the same?
I am from the madical profession and i alwasya knew about the medicines being used for maintanece of the d condition. However till today i have always read about them cos they were part of my curriculum not because I was eager to 8).
I never knew that the condition is progressed to that level. I always used to see the hoardings stating the HIV AIDS protection etc. and used to wonder this is not that prevalent disease (However its deadly). However i suppose that misunderstanding made me fall in the trap of "Stupid HIV". Though i was always very kind towards patients of every kind. I still remember i used to give kind gesture (pat) to patients suffering from communicable diseases. cos i used to feel that they should not feel rejected. Though that is another thing that sometime i ended up to get the same disease like (Mumps, chicken pox etc.). But i never always kept to kind attitude towards all patients but i never met any HIV patients (to my knowledge  :( ) . Though now i am the one. Moreover because of my less experience in the HIV medicines i never knew that the medicines has advanced to that extent that now the disease is a manageable disease. and never knew about the UD=UT. I suppose that na´ve knowledge is still prevailing in the HIV negative people and that's why hiv patients still feel the social taboo.
Before my detection i always used to think hiv as deadly disease but now i came to knwo about the true maths behind and living happily on treatment.
Pardon my english. I am bad in wrting over phone keypads.


Offline CaveyUK

  • Global Moderator
  • Member
  • Posts: 1,619
Re: Out of the blue!
« Reply #1 on: November 29, 2018, 04:57:57 am »
Most people still have images of AIDS in the 80s and 90s in their heads when they think about HIV. I was the same at one point, although before my diagnosis I had read up on it, so didn't have to make the mental leap to understanding it as a controllable condition at the time I found out I had it.

It's the biggest driver of stigma of course, and something you would expect to improve over time, but to be honest, unless people are directly impacted by HIV in some way there is little motivation to read up on it, so it's still a major challenge.
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

Offline leatherman

  • Member
  • Posts: 7,516
  • Google and HIV meds are Your Friends
Re: Out of the blue!
« Reply #2 on: November 29, 2018, 09:15:14 am »
unless people are directly impacted by HIV in some way there is little motivation to read up on it, so it's still a major challenge.
Life is really hard and people just don't know much about things that don't affect them or their immediate family.

I know nothing about diabetes, breast cancer, or alzheimer's (even though my grandfather died many years ago from alzheimers and a maternal aunt is dealing with breast cancer), because I don't have any of those problems. I know a little bit about non-hodgkins lymphoma and pancreatic cancer because those illnesses took the lives of one of my partners and one of my friends. I know a lot about HIV because I've lived with it 34 years. I know little about high blood pressure or cholesterol (even though one of my brothers and my grandmother deal with those issues) but I better read up as my doc is sure to bring those up at my next appointment.

I've always believed that education is the answer to reducing stigma; but it's a long slow almost one-by-one process because, really, who wants to learn about a disease that you don't have?
leatherman (aka mIkIE)

There's no rain, there's no storm, though the blue sky makes you wonder
Don't you fear what will come will come
And right now we're in the sun
Sure enough, seasons change
But don't let today get lost 'cause today the sun's on us
Today the sun's on us
- Sophie Ellis-Bextor

chart from 1992-2017
Tivicay/Prezcobix

Offline fabio

  • Member
  • Posts: 167
Re: Out of the blue!
« Reply #3 on: November 29, 2018, 01:26:41 pm »
In all honesty,I knew there was treatment (from school biology),but I didn't think that it would be so effective. I have thought that,the first time I was diagnosed,that I had a very short life and felt weak from my symptoms (mentally and physically).
I also had that 70s 80s image of hiv/aids and I felt very depressed.
Even the people,I didn't expect the hate and dehumanization I would face,especially by healthcare "professionals". However I also saw faces who,like me,had  hiv and were waiting for their annual blood work. At that time we stared at each other and said nothing,but somehow I got that feeling of comfort that I am not alone in this fight. I also got to talk to people in this forum,which I believe helped me the most,since I had many questions and insecurities (being 23 and newly diagnosed).
Flash forward to  now,where I have hope that all will be fine,I feel healthy and I also feel that this thing won't  define me or anyone that has it,I will live life as best as possible with no regrets :).
« Last Edit: November 29, 2018, 01:28:53 pm by fabio »

 


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