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Author Topic: hospital stay and hiv meds  (Read 926 times)

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Offline initforlife

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hospital stay and hiv meds
« on: November 16, 2018, 10:49:20 am »
Hi y'all just want to let y'all know something that happened to me over the weekend, and to inform people so this doesnt happen to you..I was admitted to the hospital in St Louis  I had recently moved here and hospital didnt have my hiv meds nor did they offer to order them I was asked to have someone bring from home which  w as fine as my family knows my dx but for those who dont i would fine someone you can trust to be able to get your meds to you ... anyway this was the first time being in hospital since my dx in 2014 so i was caught off guard  on this so just wanted to share it with y'all
sometimes it is best to say nothing at all. then to offend

Offline Jim Allen

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Re: hospital stay and hiv meds
« Reply #1 on: November 16, 2018, 01:38:57 pm »
Sorry to hear about your hospital stay. Hope whatever it was you are feeling better and doing well.

Take care, Jim
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Offline kentfrat1783

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Re: hospital stay and hiv meds
« Reply #2 on: November 16, 2018, 09:13:30 pm »
I'm sorry to hear that but my partner had a similar situation earlier this year.  They were able to order his meds but couldn't get it till the next evening.  I brought one of his pills with my while taking him to the hospital as I had a hunch they might have issues with it.    They had no issues with him taking it and even encouraged it. 

Just seems odd how they "needed to order it from the pharmacy".  Why would the "pharmacy" be closed in a hospital? 

But I think this is just a good reminder that it's always a good idea to have a few extra pills with you at all times.  I know I've heard some people that keep a pill container with them with a few pills and rotate them monthly. 

Just glad he was able to get his medication.
06/08/2020 - CD4 257 (20%) VL <20
03/17/2020 - CD4 285 (19%) VL 101       (2.00)
09/17/2019 - CD4 218 (16%) VL (?)
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January 2019 - Started Triumeq
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Offline initforlife

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Re: hospital stay and hiv meds
« Reply #3 on: November 17, 2018, 09:32:06 am »
Yes  Im good now.. three days of Iv antibiotics and sent home and doing good thanks for the well wishes 
sometimes it is best to say nothing at all. then to offend

Offline hippo1010

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Re: hospital stay and hiv meds
« Reply #4 on: November 17, 2018, 03:02:18 pm »
Thank you. I had a different experience once I was admitted in a hospital, but also requires caution. The nurse brought HIV meds for me to take, but they were not as were prescribed to me. First, she brought only one of the three I was taking, and second the one that she brought was Videx. I was taking Videx EC, which is not the same. Simple mistake that could create complications.

Your word of caution is very real and valuable. Thank you.

Offline MarkintheDark

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Re: hospital stay and hiv meds
« Reply #5 on: November 17, 2018, 03:43:27 pm »
I'll echo with my two bits.  During last month's hospital stay they had outdated info on my meds that could have screwed up my current regimen.  Regrettably, more than once I had to insist that, no, that was NOT my current medication and that I refused to take it.  (During an earlier stay, too, I had to insist that I was on Genvoya, NOT Stribild).

It's a lousy time to have to do it, but personal vigilance is a necessity.  I'll add that hospital personnel and even docs aren't necessarily familiar with HIV meds.  Considering the variety of patients with whom they have to deal, why would they be?

That's to say, sometimes you have to be your own advocate.  If that means pissing off the nurse or doc, so be it.  In fact, yeah, sometimes we DO know better than them.
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Offline MadDog125

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Re: hospital stay and hiv meds
« Reply #6 on: November 17, 2018, 09:45:21 pm »
This brings up a question I had recently.
My family has been suggesting since I was diagnosed to get a medical I'd bracelet.  Originally they were worried about me being an infection hazard.  Now that there better informed they still think it's a good idea for medical adherence in case of hospitalization.   
Anyone carry an med bracelet or a medication card in their wallet?
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17APR19, cd4 157, VC <20
24MAY19, cd4 340, VC <20
12AUG19, cd4 304, VC 51
30DEC19, cd4 385, VC <20

 


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