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Author Topic: Recertification woes: 9th day without meds  (Read 518 times)

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Offline retroMan

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  • I dream in color
Recertification woes: 9th day without meds
« on: September 11, 2018, 11:15:08 pm »
I am having issues getting my Genvoya refilled.  Around July 25th, I had 10 pills left and I sent necessary documentation for recertifcation in ADAP/Ryan White.  Since then I have gotten the runaround; the contacts asking for re-send of data, etc.  I used to be undetectable and not sure how this drug holiday will impact me.

I'm very healthy so I don't qualify for any assistance, and I still work.  Does anyone have an idea of how long the reserve last if you're undetectable and go on unplanned dosing holiday?

I'm now working directly with Gilead Patient Assistance Program.  I've since given up on ADAP.

Offline LiveWithIt

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Re: Recertification woes: 9th day without meds
« Reply #1 on: October 08, 2018, 05:49:56 pm »
Around the year 2000 or so my doctor was a part of a research team and I would have new meds and be off meds for quite a while, like months.  I never got sick, that was when medications had side effects especially diarrhea.   I would not worry so much personally except if you are sexually active it's easier to pass the virus with a high viral load, like crazy high like 100K.
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline Expat1

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Re: Recertification woes: 9th day without meds
« Reply #2 on: October 08, 2018, 07:18:45 pm »
Suggestions, 1.  Ask around for anyone with extras.
2.  Switch to generics temporarily while this is getting sorted.
3.  Talk to your doctor, maybe he has samples.
4. Fly to Thailand, and get meds here cheaper.  No Genovya.  But Stribild is about $200 a month if sourced at the Red Cross Clinic.
5. Buy meds online from India.  But that will take a while.
6. Buy from a buyers group, the PrEP people in Britain, have analyzed this.  They are online, search google. 


Offline CaveyUK

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Re: Recertification woes: 9th day without meds
« Reply #3 on: October 08, 2018, 07:22:07 pm »
I can't answer specifically as I don't know the in's and out's of the US medical assistance organisations, hopefully someone else will respond who does.

What I can say is that nowadays we know that drug holidays are a terrible idea. Every person is different and any treatment interruption can cause potentially long term damage, so my only advice is to work with the organisations you can to resolve this as soon as possible and don't assume you are still undetectable when it comes to any sort of sexual activity (ie. use protection).
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Offline skeebo1969

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Re: Recertification woes: 9th day without meds
« Reply #4 on: October 08, 2018, 08:14:01 pm »


  I know it's rather stressful; I had an interruption due to employment changes and did not quite anticipate having to go a month without meds myself.  Once I finally got the insurance up and running my doctor decided to play hardball and didn't want to refill my scripts without a visit.

  Talk about feeling powerless. lol

  I've decided not to worry about it, it's really out of my control.  I hope your situation gets better soon, keep your chin up.
I despise the song Love is in the Air, you should too.

Offline retroMan

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  • Posts: 45
  • I dream in color
Re: Recertification woes: 9th day without meds
« Reply #5 on: October 08, 2018, 08:26:02 pm »
Hi guys, and thanks for all your responses.  It's been almost a month and I will update and say the interruption ended up being just 9 days.  The killer is I was on Medicaid since July
AND approved for Adap with no one letting me know.  I went through this for nothing!  I just took a phenotype test just to confirm that I'm okay with viral load. 

 


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