Welcome, Guest. Please login or register.
June 20, 2019, 09:31:51 am

Login with username, password and session length

  • Total Members: 34481
  • Latest: gabocho
  • Total Posts: 745469
  • Total Topics: 62314
  • Online Today: 326
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 am)
Users Online
Users: 1
Guests: 134
Total: 135


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Recertification woes: 9th day without meds  (Read 1050 times)

0 Members and 1 Guest are viewing this topic.

Offline retroMan

  • Member
  • Posts: 45
  • I dream in color
Recertification woes: 9th day without meds
« on: September 11, 2018, 11:15:08 pm »
I am having issues getting my Genvoya refilled.  Around July 25th, I had 10 pills left and I sent necessary documentation for recertifcation in ADAP/Ryan White.  Since then I have gotten the runaround; the contacts asking for re-send of data, etc.  I used to be undetectable and not sure how this drug holiday will impact me.

I'm very healthy so I don't qualify for any assistance, and I still work.  Does anyone have an idea of how long the reserve last if you're undetectable and go on unplanned dosing holiday?

I'm now working directly with Gilead Patient Assistance Program.  I've since given up on ADAP.

Offline LiveWithIt

  • Member
  • Posts: 533
Re: Recertification woes: 9th day without meds
« Reply #1 on: October 08, 2018, 05:49:56 pm »
Around the year 2000 or so my doctor was a part of a research team and I would have new meds and be off meds for quite a while, like months.  I never got sick, that was when medications had side effects especially diarrhea.   I would not worry so much personally except if you are sexually active it's easier to pass the virus with a high viral load, like crazy high like 100K.
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline Expat1

  • Member
  • Posts: 208
Re: Recertification woes: 9th day without meds
« Reply #2 on: October 08, 2018, 07:18:45 pm »
Suggestions, 1.  Ask around for anyone with extras.
2.  Switch to generics temporarily while this is getting sorted.
3.  Talk to your doctor, maybe he has samples.
4. Fly to Thailand, and get meds here cheaper.  No Genovya.  But Stribild is about $200 a month if sourced at the Red Cross Clinic.
5. Buy meds online from India.  But that will take a while.
6. Buy from a buyers group, the PrEP people in Britain, have analyzed this.  They are online, search google. 

Offline CaveyUK

  • Global Moderator
  • Member
  • Posts: 1,628
Re: Recertification woes: 9th day without meds
« Reply #3 on: October 08, 2018, 07:22:07 pm »
I can't answer specifically as I don't know the in's and out's of the US medical assistance organisations, hopefully someone else will respond who does.

What I can say is that nowadays we know that drug holidays are a terrible idea. Every person is different and any treatment interruption can cause potentially long term damage, so my only advice is to work with the organisations you can to resolve this as soon as possible and don't assume you are still undetectable when it comes to any sort of sexual activity (ie. use protection).
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

Offline skeebo1969

  • Member
  • Posts: 5,898
Re: Recertification woes: 9th day without meds
« Reply #4 on: October 08, 2018, 08:14:01 pm »

  I know it's rather stressful; I had an interruption due to employment changes and did not quite anticipate having to go a month without meds myself.  Once I finally got the insurance up and running my doctor decided to play hardball and didn't want to refill my scripts without a visit.

  Talk about feeling powerless. lol

  I've decided not to worry about it, it's really out of my control.  I hope your situation gets better soon, keep your chin up.
I despise the song Love is in the Air, you should too.

Offline retroMan

  • Member
  • Posts: 45
  • I dream in color
Re: Recertification woes: 9th day without meds
« Reply #5 on: October 08, 2018, 08:26:02 pm »
Hi guys, and thanks for all your responses.  It's been almost a month and I will update and say the interruption ended up being just 9 days.  The killer is I was on Medicaid since July
AND approved for Adap with no one letting me know.  I went through this for nothing!  I just took a phenotype test just to confirm that I'm okay with viral load. 


Terms of Membership for these forums

© 2019 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.