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Author Topic: Genvoya , what side effects do you have ?  (Read 1817 times)

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Offline weasel

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Genvoya , what side effects do you have ?
« on: August 05, 2018, 01:46:01 pm »

    I've been on Genvoya for 8 months , I feel dreadful !

     I am cold all the time .   I have nausea , I am exhausted most of the time .


" Live and let Live "

Offline LeftyBowler300

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Re: Genvoya , what side effects do you have ?
« Reply #1 on: August 05, 2018, 02:45:06 pm »
At first headache and dizziness.

Now, sometimes a little fatigued, light headed, slight stomach problems, i think sometimes this depends on what I eat too, but it's only sometimes, never anything that I cant ignore, and it's always short lived.
Apr 1, 2017 DX - CD4 8 , VL 820,000
OI's: Disseminated Histoplasmosis, Thrush, PCP
Apr 17, 2017 started Genvoya, Bactrim, Sporanox, Azitrhomycin
Jun 9, 2017 - CD4 42 (3%) , VL 100
Jul 17, 2017 - CD4 57 (4%) , VL 53
Sep 16, 2017 - CD4 57 (4%) , VL 130 - Ugh... wtf
Oct 20, 2017 - CD4 63 (5%) , VL 100
Dec 1, 2017 - CD4 56 (3%) , VL <20
Mar 15, 2018 - CD4 73 (5%) , VL <20
Nov 5, 2018 - CD4 104 (7%), UD
Jan 26, 2019 diagnosed with HIV-associated DLBCL with 6cm mass near liver and abdominal fatty tissue involvement
Jan 27, 2019 started R-EPOCH 6 day cycle every 21 days.
Challenge Accepted.

Offline Loa111

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Re: Genvoya , what side effects do you have ?
« Reply #2 on: August 07, 2018, 07:15:31 am »
I'm on it just 2 1/2 months. Now that it's settled in.

Similar to Lefty. Still get a bit of gas. I think I felt very slight nausea an hour or so after taking it, but I do wonder is the nausea from my milk based protein shake instead.
Maybe a little fatigued somedays.

Though in my case too, I'm still recovering from after effects of very late Dx, so the fatigue etc could be my system repairing itself again. It's hard to tell.

The initial 2-3 weeks taking it, a lot of bloating n gas, hot flushes feeling hot, fatigue, & a general weird feeling sometimes. They have all passed now.

Offline csguy1

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Re: Genvoya , what side effects do you have ?
« Reply #3 on: August 15, 2018, 11:58:52 pm »
I switched from Genvoya back to Isentress and Truvada because i couldn't handle the side effects you all mentioned. Took a while at least 6 months to feel back to normal. You should talk to your doctor about the symptoms and ask about other options that may be more tolerable to you.

Offline MarkintheDark

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Re: Genvoya , what side effects do you have ?
« Reply #4 on: August 16, 2018, 02:37:18 am »
I was in the blind Stribild/Genvoya study for about five years.  At the end it turned out I'd been on Genvoya.

The only consistently bothersome side effect I had was very vivid dreams.

HIV dx - 02/93
AIDS dx - 07/01
Rilpivirine/Cabotegravir guinea pig since 01/17

Offline weasel

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Re: Genvoya , what side effects do you have ?
« Reply #5 on: August 16, 2018, 12:45:12 pm »

     Thanks for the input  :)

       I will speak to my doctor in November .

                                                              Be well , Carl
" Live and let Live "

Offline Tony_Wanch

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Re: Genvoya , what side effects do you have ?
« Reply #6 on: October 27, 2018, 01:59:05 am »
From responses it seems that possible effects may be personal  . Advice from leaflets ( doctors) are often too generalised   I asked my doctor if he could do tests to check what med might badly affect me ( I have been on Stribild for almost 2 years with lots of odd effects)  Dic looks blank and looks to anything but the med as a cause ,using  the usual doctor's  culprits e.g age, lifestyle, diet etc  anything but what could be the DNA/ meds cause. The itching etc is another pharmaceuticlal money machine and docs only know what the Pharms tell them  . How much dermatology ( money making machine) research done for cures ?   I know of none

Online Jim Allen

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Re: Genvoya , what side effects do you have ?
« Reply #7 on: October 27, 2018, 04:11:17 am »


If you are having problems for 2 years and you feel its the meds that does not agree with you and its unmanageable than you should work with the doctor and switch to a different combo.

@ Carl

Hope things have settled down and if not that your able to make progress during your November doctors visit.  Hopefully you will get this resolved soon.

« Last Edit: October 27, 2018, 04:16:51 am by JimDublin »
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Offline Grendal

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Re: Genvoya , what side effects do you have ?
« Reply #8 on: October 27, 2018, 10:58:58 am »
Sometimes a hot flash after taking it, it took a while for the diarrhea to subside and had headaches but now other than remembering to take with food itís pretty easy to tolerate. It did take a while to get fully used to it, Triumeq gave me an intolerable level of fatigue and muscle soreness. Former doctor was unwilling to switch meds but if they arenít working there are still others.

Offline filopoz

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Re: Genvoya , what side effects do you have ?
« Reply #9 on: November 04, 2018, 12:54:18 am »
First week, the side effect is I want to sleep...like a lot...I even fall asleep in a train as if I am in my bed. I also have loose stool. ID doctor suggested exercise, healthy diet and probiotics and everything went away....now I take Genvoya as if I am just taking a multivitamin.

Offline mlgoforth

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Re: Genvoya , what side effects do you have ?
« Reply #10 on: November 07, 2018, 04:32:53 am »
 On Genvoya 2 months. 4th HIV Cocktail.  Switched to stop totally disabling extreme fatigue.  Result extreme fatigue much much less.  So no negative side effects from Genvoya, I was shocked and relieved.  Positive effect of less fatigue. Easiest Cocktail change ever.
       Sorry it is not working for you.  I tried all kinds of things to lesson the fatigue, nothing touched it until I changed drugs.  So do work with your doctor to change drugs if need be.
        Be Well, Miguel
*Infected 1980, Test+1987 | 2018=38yrs
*1998-2005 Viracept,3TC,D4T side effect extreme fatigue
*2005-2010 Sustiva,3TC,AZT side effect extreme fatigue, brain high
*2010-2018 Reyataz,Norvir,3TC,AZT.
side effect totally disabling extreme fatigue.
20180913- Genvoya extreme fatigue now less. Yeah!
*Undetectable 1998 on, CD4  1998=60(AIDS), 2018=500+
Side effects, 1998 on Metabolic Syndrome, 2003 on Extreme Fatigue gets worse @yr, 2005 on Neuropathy, 1998 on Buffalo Hump, 2013 Diabetic Ketoacidosis nearly died, now take Insulin, Cannabis re Neuropathy, Lisinopril re bp, Lipitor re Cholesterol, Testosterone re fatigue, Various supplements, Simple diet, no processed foods, lots of fermented food


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