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Author Topic: Advise  (Read 1166 times)

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Offline Matland

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Advise
« on: March 23, 2018, 12:00:46 pm »
Hello dear forum members;

You may not remember me very well but when i was diagnosed two years ago, i was very active in the forum. Everything is so good so far. And time to time i am trying to guide new diagnosed people in my country Turkey where  the number of new diagnosed people is dramatically rising.

Anyways, a couple of months ago my doc called me and requested me to give a speech for a conference which aims to educate nurses at our hospitals. Well, i wish more experienced one would fulfill this duty but i think i will undertake this task. I haven't hospitalized so far as i dont know exactly what kind of problems hiv positive people might encounter. I know some problems that occurs and definitely i will take them into my agenda but i wonder if you could give me some opinions about the topics that would be beneficial or not.

I am gonna ask to our national forum as well but especially i am looking for the stories of the long term survivors. I am gonna talk about ''living with hiv'' and i am planning to talk how fast our lifestyle has changed. For example the number of drugs we take. From 24 pills each day to 1 or 2. Any other idea?

Thank you for your help in advance

Offline Jim Allen

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Re: Advise
« Reply #1 on: March 23, 2018, 03:50:49 pm »
Excellent update and well done.

On April 5th im doing a 30 min presentation about living with HIV . Ill be happy to share what I have with you next week ( I'm still finishing it up) might give you a starting point or structure to work from or not  ;D

Also no hurt in talking inspiration from others so not sure what angle of living with hiv you want exactly but the past vs now well this recent recording on ted talks was pretty good ad used that approach, might give you something to think about at least

https://www.ted.com/talks/arik_hartmann_our_treatment_of_hiv_has_advanced_why_hasn_t_the_stigma_changed/up-next

Jim
« Last Edit: March 23, 2018, 03:54:15 pm by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

Offline Matland

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Re: Advise
« Reply #2 on: March 23, 2018, 04:32:51 pm »
oh thank you so much jim. I would really appreciate if you share what you have after you finish your work. and definetely the link you shared will work for me.

Actually, the conference is going to be held to educate nurses. HIV is a still big taboo and stigma is quite common here. Our purpose is just putting a mirror to reflect themselves what they do false. erase the wrong image of hiv positive people. They should understand we are in the society and we are not only homosexuals, sex workers or coming from third world. On the contrary, we are doctors, lawyers, heterosexuals, muslims or catholics or non believers etc.

I would want to make an impact on their mind by saying something which is shocking. But what could it be? My plan is showing a healthy positive person diagnosed 30 years ago. Actually it is not easy to find someone like this in Turkey.

Offline Jim Allen

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Re: Advise
« Reply #3 on: March 23, 2018, 08:57:38 pm »
Quote
I would want to make an impact on their mind by saying something which is shocking. But what could it be? My plan is showing a healthy positive person diagnosed 30 years ago. Actually it is not easy to find someone like this in Turkey.

Well sounds like you have the idea its just finding the story to do it.

Idea well ... just throw this out

Perhaps your shock should be to make them think about there own biased and stigma towards HIV.

As you start give the audience 30 seconds and ask them to use the time to imagine "what if" they themselves or their own son/daughter was diagnosed with HIV tomorrow. How do you feel and what are your concerns?

Leave them for 30 seconds, and just look at a stopwatch and than tell them that thankfully whatever they are thinking its not the truth about living with HIV in 2018, its the past or own biased and take it from there.

p.s

I'm sure you will come up with something better and prehaps that someone healthy and happy is presenting to them is already a shock factor to any outdated thoughts. Hopefully you will think of something and maybe the other forum members will spare a thought or two with you

Jim
« Last Edit: March 23, 2018, 09:11:00 pm by JimDublin »
HIV 101 - Everything you need to know
HIV 101
Transmission and Risks:
HIV Transmission and Risks
Read more about Testing here:
HIV Testing
Read about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read about HIV prevention here:
HIV prevention
Read about PEP and PrEP here
PEP and PrEP

 


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