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Author Topic: vampires  (Read 7637 times)

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Offline Jim Allen

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Re: vampires
« Reply #50 on: March 11, 2019, 06:48:34 am »
So follow up with the GP this morning, BP 100/165 & 100/145.

Because whenever I visit them i keep having higer BP readings then they like over the past 2 years on Friday they will fit me with a 24 hour monitor to have a correct measurement of what's going on.

Told the GP I'm happy to do it, sure why not, but I'm pretty confident it's fine

Jim
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Offline beanstalk

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Re: vampires
« Reply #51 on: March 12, 2019, 05:32:59 pm »
Just waiting now for 6 more months worth of Truimeg at the hospital pharmacy


I wish my hospital would give us the 6 bottles. Whenever I try to take more than one the farmacists just start saying they are low on stock blablabla (even tho I have the prescription for the 6 months). I'm thinking of when I actually have to go abroad for work to just tell them that if they do not give me the bottles I'm going anyway and it's not my problem if they get a pandemic when I come back with a raging sexual appetite ::)

Offline fabio

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Re: vampires
« Reply #52 on: March 13, 2019, 01:39:38 am »
For one moment I thought it was a "cult" of vampires 👿.
Nice numbers. I gave blood to the vamps a week ago,but they didn't tell me my results cuz they take 2 days to look at them. In general they told me I'm a good boy for taking meds and that it's showing.

Offline Jim Allen

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Re: vampires
« Reply #53 on: March 13, 2019, 03:26:04 am »

I wish my hospital would give us the 6 bottles. Whenever I try to take more than one the farmacists just start saying they are low on stock blablabla (even tho I have the prescription for the 6 months). I'm thinking of when I actually have to go abroad for work to just tell them that if they do not give me the bottles I'm going anyway and it's not my problem if they get a pandemic when I come back with a raging sexual appetite ::)

Being limited to a monthly supply and having to come back each time hmmm that sucks, i know this is common in some of the less fortunate locations of the world but, i did not know that its a problem in Lisbon.

Is it like this everywhere in Portugal? Perhaps something to start making noise about though the ASO?
Though I agree its worth telling them you need to travel for work and hence require your prescription to be filled.

BTW How are you doing ?

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Offline leatherman

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Re: vampires
« Reply #54 on: March 13, 2019, 06:25:53 am »
i know this is common in some of the less fortunate locations of the world
like America where people who receive drug assistance from the Ryan White ADAP (aids drugs assistance program) and many others on private insurance who can only get 1 fill per month.  :(
leatherman (aka mIkIE)


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Offline Jim Allen

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Re: vampires
« Reply #55 on: March 13, 2019, 06:47:45 am »
If I'm blunt it's one of the places that jumped to mind. As an outsider like a lot of things about the US, but how health care is managed would not be one of them

I know within the EU it varies as well, last time I had meds in The Netherlands is was 6 months script, but collect 3 months max at a time as example, being limited to a monthly supply like the Lisbon within the Europe feels pretty limiting.

Although in Ireland there is no postal service for meds (would fucking love it) and the only pharmacy that carries HIV meds for treatment are located in the major hospitals,  prehaps that factors into larger allowances

For one moment I thought it was a "cult" of vampires 👿.
Nice numbers. I gave blood to the vamps a week ago,but they didn't tell me my results cuz they take 2 days to look at them. In general they told me I'm a good boy for taking meds and that it's showing.

Not sure if I would call the heatlh service a "cult" but this did make me laugh  :)
« Last Edit: March 13, 2019, 07:00:01 am by JimDublin »
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Offline leatherman

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Re: vampires
« Reply #56 on: March 13, 2019, 01:09:19 pm »
Although in Ireland there is no postal service for meds (would fucking love it)
when I first starting using this doctor across the state line, the pharmacy would mail my meds to me every month. Except for the times I was up in town at some health dpt quality management meeting or a client meeting at my clinic, and then I would pick up in person. But the pharmacy got busted (and sadly had to pay a fine) for not having the right licenses to mail medications across the state line. Somehow 30 miles apart in the same nation is a big deal.  ::) It's been a year and a half that I've been waiting, but finally, as a great birthday present to me, they got things worked out and have mailed my meds to arrive tomorrow!

I saw the vampires not long ago. I think this was my 415th blood draw in all these years. My doctor is all atwitter because my cd4s dropped when they've been finally climbing towards 500. But I lol-ed at him when he wanted more blood for a do-over test. I lived with a 250 average for nearly 2 decades so I'm pretty sure that's around my normal and the 465 was the abnormality. LOL
leatherman (aka mIkIE)


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Offline beanstalk

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Re: vampires
« Reply #57 on: March 13, 2019, 05:12:08 pm »
Being limited to a monthly supply and having to come back each time hmmm that sucks, i know this is common in some of the less fortunate locations of the world but, i did not know that its a problem in Lisbon.

Is it like this everywhere in Portugal? Perhaps something to start making noise about though the ASO?
Though I agree its worth telling them you need to travel for work and hence require your prescription to be filled.

BTW How are you doing ?

It doesn't happen in all the hospitals, I heard Hospital Egas Moniz for example is giving more than a month. I'm in a more central hospital (Curry Cabral) and they probably have much more demand. By the way, there's a lot of talk in the news right now about some Trivicay that disappeared (stolen) from our storages (https://observador.pt/2019/03/12/desapareceram-mais-de-60-unidades-de-medicamento-usado-no-tratamento-do-vih/).

I'm doing OK. I got an infection of Campylobacter Fetus from something I ate at a restaurant (which is very strange since I don't even eat meat, I'm blaming undercooked eggs), spent some time at the hospital (fever, anemia, pain...) but the antibiotics worked wonders. My biggest problem right now is the red face that doesn't go away... I had my appointment with the autoimmune disease doctor in february, got blood drawn (again, a lot), but it seems there is too much demand for the doctors so I have to wait until the very last day of may. Someone told me about this ointment called Mirvaso that seems to work for people with lupus but I don't seem to be able to get it without a prescription. So here I am, waiting with a forever burning face, looking like a pikachu. Both my first HIV appointment after UD and the SLE one will be at the same time so I'll make a post by then. Next time I'll bring the pill bottle situation to the HIV doctor.

Offline fabio

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Re: vampires
« Reply #58 on: March 14, 2019, 05:42:41 am »
Here in Greece we only get meds in the big state hospitals once every month. Thankfully they can send them on express mail and they arrive the next day,as I and probably other people,live in islands and can't access immediate meds from the hospital.
I do have to go with the ferry though every 3 or 4 months for my appointments,which I think it's better,Because nobody really knows me there and I feel more comfortable waiting on the "hall of shame" lol.

Offline Jim Allen

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Re: vampires
« Reply #59 on: March 15, 2019, 09:53:10 am »
when I first starting using this doctor across the state line, the pharmacy would mail my meds to me every month. Except for the times I was up in town at some health dpt quality management meeting or a client meeting at my clinic, and then I would pick up in person. But the pharmacy got busted (and sadly had to pay a fine) for not having the right licenses to mail medications across the state line. Somehow 30 miles apart in the same nation is a big deal.  ::) It's been a year and a half that I've been waiting, but finally, as a great birthday present to me, they got things worked out and have mailed my meds to arrive tomorrow!

I saw the vampires not long ago. I think this was my 415th blood draw in all these years. My doctor is all atwitter because my cd4s dropped when they've been finally climbing towards 500. But I lol-ed at him when he wanted more blood for a do-over test. I lived with a 250 average for nearly 2 decades so I'm pretty sure that's around my normal and the 465 was the abnormality. LOL

Glad to hear the mail service is back up and running for you. I would love that hear but they don't even have the meds outside of the hospital pharmacy yet mainly sue to knowledge issues with pharmacy's here and insurance i was once told.

Well once you do hit the 500 ill bake you a cake  ;)

It doesn't happen in all the hospitals, I heard Hospital Egas Moniz for example is giving more than a month. I'm in a more central hospital (Curry Cabral) and they probably have much more demand. By the way, there's a lot of talk in the news right now about some Trivicay that disappeared (stolen) from our storages (https://observador.pt/2019/03/12/desapareceram-mais-de-60-unidades-de-medicamento-usado-no-tratamento-do-vih/).

I'm doing OK. I got an infection of Campylobacter Fetus from something I ate at a restaurant (which is very strange since I don't even eat meat, I'm blaming undercooked eggs), spent some time at the hospital (fever, anemia, pain...) but the antibiotics worked wonders. My biggest problem right now is the red face that doesn't go away... I had my appointment with the autoimmune disease doctor in february, got blood drawn (again, a lot), but it seems there is too much demand for the doctors so I have to wait until the very last day of may. Someone told me about this ointment called Mirvaso that seems to work for people with lupus but I don't seem to be able to get it without a prescription. So here I am, waiting with a forever burning face, looking like a pikachu. Both my first HIV appointment after UD and the SLE one will be at the same time so I'll make a post by then. Next time I'll bring the pill bottle situation to the HIV doctor.

 >:( stealing tivicay that sucks.  I could think of much more cool drugs to steal that would have a bigger market  ;D

Sorry to hear about the rough time and the infection, yeah under cooked eggs cab be nasty although I love it when the yoke still has some softness

As for the face sounds painful and waiting till May to get results even more so, has nothing OTC helped reduce the issue?

Hope you feel better soon.

Here in Greece we only get meds in the big state hospitals once every month. Thankfully they can send them on express mail and they arrive the next day,as I and probably other people,live in islands and can't access immediate meds from the hospital.
I do have to go with the ferry though every 3 or 4 months for my appointments,which I think it's better,Because nobody really knows me there and I feel more comfortable waiting on the "hall of shame" lol.

So Greece (no offence) can get it shit together and Ireland can't   >:( Typical.

 
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Offline Jim Allen

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Re: vampires
« Reply #60 on: March 15, 2019, 09:55:13 am »
So follow up with the GP this morning, BP 100/165 & 100/145.

Because whenever I visit them i keep having higer BP readings then they like over the past 2 years on Friday they will fit me with a 24 hour monitor to have a correct measurement of what's going on.

Told the GP I'm happy to do it, sure why not, but I'm pretty confident it's fine

Jim

Well got it fitted, and its pumping away every 15 mins of so, checked it once to look 161/108 .. I've decided to not look at it and to stop jerking off for today ;D
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Offline leatherman

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Re: vampires
« Reply #61 on: March 15, 2019, 10:10:09 am »
stop jerking off for today
stop taking your bp WHILE your doing it ;)
leatherman (aka mIkIE)


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Tivicay/Prezcobix

Offline Jim Allen

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Re: vampires
« Reply #62 on: March 15, 2019, 10:12:50 am »
stop taking your bp WHILE your doing it ;)

lol. See the thing is the Nurse said don't take it off and do what you normally do and she would call if the readings get too high

Ohhh ... I just had a thought now  ;D I will not share it
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Offline fabio

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Re: vampires
« Reply #63 on: March 15, 2019, 02:35:43 pm »
Oh they don't have their shit together hahaa,but at least they do on us and cancer patients. Plus I'm in a university hospital,they invest a lot in these hospitals and the army hospitals,so the services are good.
However all other hospitals are quite shite......
Also we are quite a small country and shipping a box of meds next day is the easiest thing ever. All because the saints of the wards secretaries.

Offline Jim Allen

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Re: vampires
« Reply #64 on: March 19, 2019, 11:22:40 am »
So got the results of the 24 hours BP thingy
Averages:

143/83 - Daytime
132/71 - Nighttime

Edit: it's better results than I expected

Not too high but they want me to come in on Thursday to chat and go over the results.  From what i gather talking to the nurse they are more concern that it was not dropping (lowering) more during the night.

Jim
« Last Edit: March 19, 2019, 04:08:08 pm by JimDublin »
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Offline Jim Allen

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Re: vampires
« Reply #65 on: March 21, 2019, 06:18:25 am »
So met with the doctor this morning.

Long story short day and night my blood pressure is off with spikes even at night off the charts. ( 210/x)

This combined with family history and my own medical  past they would start me on blood pressure meds today but they are reaching out to my HIV doc fist to sync up and to check what treatment options are best  :( I had to listen to the no salt, eat healthier speech as well of course.

Oh well not happy about it but it's not the end of the world, in fact without living with HIV I would not have known about this issue so in way I am Lucky I can do something about it earlier rather than later 😉

Best Jim
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Offline Jim Allen

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Re: vampires
« Reply #66 on: March 21, 2019, 12:39:07 pm »
So met with the doctor this morning.

Long story short day and night my blood pressure is off with spikes even at night off the charts. ( 210/x)

This combined with family history and my own medical  past they would start me on blood pressure meds today but they are reaching out to my HIV doc fist to sync up and to check what treatment options are best  :( I had to listen to the no salt, eat healthier speech as well of course.

Oh well not happy about it but it's not the end of the world, in fact without living with HIV I would not have known about this issue so in way I am Lucky I can do something about it earlier rather than later 😉

Best Jim

So they gave me "Perindopril" to take for the blood pressure, sure it will be grand

Jim
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Offline leatherman

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Re: vampires
« Reply #67 on: March 21, 2019, 02:50:56 pm »
my hubby and I are taking lisinopril. While he had the mild "it feels like you have to clear your throat" coughing side effect at first, it didn't have the ED issues of some of the other meds he tried first. I've had no issues with it....except I had to have the doctor cut the dosage. It was getting so that every time I stood up I almost passed out. So I went from hardly any hypertension to hypotension  ::) ::)
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Offline Jim Allen

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Re: vampires
« Reply #68 on: August 13, 2019, 10:20:21 am »
So I changed Blood pressure meds.  It was giving me a dry cough not to mention I think it was messing up my sleep & giving me a feeling my heart was racing (It was not, just a mental thing).

Switched to Olmesartan 10 days ago and the coughing is gone and, sleep pattern back to normal & no more racing heart feeling.

Jim
« Last Edit: August 13, 2019, 10:29:22 am by Jim Allen »
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Offline Jim Allen

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Re: vampires
« Reply #69 on: August 13, 2019, 10:28:04 am »
P.s

Next check up with the vampires is the 23rd of Aug, List of things to do include this round

- Discussing pain management (Need to up my meds)
- Pneumococcal vaccine
- Run thyroid panel (GP is concerned. i'm not)

In addition still on the waiting list to have a biopsy of the "rashes" the GP is panicking about at this stage, although i'm hoping the ID Consultant might have an idea just by looking given his extensive experience   

Jim
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Offline wardp

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Re: vampires
« Reply #70 on: August 13, 2019, 12:53:43 pm »
Hi Jim how often do you get your vaccination?
Diagnosed 20,July 2017. Cd4 289, 21% vld .3,462 Started atripla 4 Aug 2017 5oct 2017 cd4 384 21%, vl ud less than 20. Switch to complera 4 Nov 2017 switched to stribild 15 the Nov. Switched to truvada efavirence 200mgx2 14 Dec 2017, 2 Feb 2018, us cd4  466, 25%  CD 8 ,595, 32%..1 may 2018
switched  to instgra truvada.7th june switched to truvada  nevirapine stavudine. .21 june switched to truvada nevirapine. X 2 a day...9 aug 2018 ud. 2n Nov 2018 CD 4. 455..22.70% 13th Nov switched  to lamivir and nevirapine  due to kidney issues...jan 10,2019 UD..may 13 2019 ud  cd4 482 28%

Offline leatherman

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Re: vampires
« Reply #71 on: August 13, 2019, 01:33:25 pm »
So I changed Blood pressure meds.
i kind of changed mine too :) I stopped taking it at all. :D BP has been fine and I don't almost pass out just by standing up (which was making yard work at the new house this spring quite an adventure)

i also had to quit the gabapentin for the PN in my feet. It just made me too fuzzy and doped up. I've lived all these years with my feet feeling like I'm walking on hot sand (thanks zerit  >:( ), so I guess I'll just keep visualizing beaches.

rashes?! ugh. is it itchy? everything makes me itchy.  ::)
leatherman (aka mIkIE)


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Offline Jim Allen

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Re: vampires
« Reply #72 on: August 13, 2019, 02:51:51 pm »
Quote
rashes?! ugh. is it itchy? everything makes me itchy.  ::)

Nah just ugly and freaking the GP out a bit ... I'm not as concerned, as stressing about it will not change it.  Below example



Quote
kind of changed mine too :) I stopped taking it at all. :D BP has been fine and I don't almost pass out just by standing up (which was making yard work at the new house this spring quite an adventure)

"Changed" aha, dropped more like it. Well glad the BP is still fine though, do you monitor it at home? Glad you are feeling better though

Quote
i also had to quit the gabapentin for the PN in my feet. It just made me too fuzzy and doped up.

Yeah I hear that a lot from people taking Gabapentin. I'm on pregabalin so slightly different but in the same ballpark, not had too many issues myself although it makes my leg feel totally alien at times like it's not part of my body, it's preferable for me personally to deal with that instead of waking up screaming in pain during the night
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Offline Jim Allen

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Re: vampires
« Reply #73 on: August 14, 2019, 11:57:07 am »
Hi Jim how often do you get your vaccination?

Meningococcal is every 5 years booster (could be shorter time-frame though I don't really recall)  and Pneumococcal they want to do again due to my health. Last two times they were out of stock when i was finally in the chair waiting the labs so fingers crossed this time.

The other is just the flu vaccine yearly, I tried the Heb B vaccine, 2 x the 3 times 1 shot and both attempts failed.
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