Welcome, Guest. Please login or register.
November 28, 2020, 08:43:01 pm

Login with username, password and session length


Members
Stats
  • Total Posts: 757264
  • Total Topics: 64066
  • Online Today: 318
  • Online Ever: 4912
  • (November 13, 2019, 02:56:14 am)
Users Online
Users: 0
Guests: 240
Total: 240

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: "HOPE DIES LAST"  (Read 18136 times)

0 Members and 1 Guest are viewing this topic.

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #50 on: May 26, 2017, 02:23:01 pm »


        ojo       Thanks you...your reply made me feel good...cyber hug whereever you are, I really appreciate your kind words, I really need that sometines   ;p         ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #51 on: September 06, 2017, 09:34:46 pm »


       ojo         Hello everyone again...Well, it was time again to see Dracula and the ID doctor, I went yesterday and today I got my vampire's results...cd4=737, cd4%=32, VL wasn't ready yet but I expect it to be UD...It is amazing and sad a the same time, to me, why I couldn't get this kind of results when I was diagnosed, I wouldn't had lost some battle to hiv/aids, like being legally blind due to CMV Retinitis, but I'm greatful that I'm still alive, here, sharing with all of you my story...I never thought I would get these kind of numbers, two tears ago, I was around 300-400 for eight years, even when in 2006 I was sent home to wait for an OI to kill me because there was no more treatment where to chose from for me (resistance)...In January of 2007, started a new treatment, it wasn't aproved by the FDA then, a year later was approved, That treatment is PREZISTA/NORVIR, INTELENCE AND ISENTRESS, (after three months of taking this treatment, I was UD  for the first time since my dx in November 1994 and my cd4 went up from 36 to 350), almost eleven years after, the same treatment is still kicking the virus ass/ Isn't this greaat?...Even though, I'm not one of the lucky members of this hiv club whom are taking just ONR PILL A DAY, I'm very greatful to be arounnd and witness, the great changes there are on the treatment of hiv...I always think about the people who are not that lucky like us, people who are still taking multiple pills a day, (I take four, twice a day), and older medications,  good meds tho, and I think about people from other countries who have to drive around five hours away from their home, to find the closest hiv clinic where they are treat it and get their once supply medication, and they have to do this every month, get their med, (I get my three months supply in the mail), and I think about all of us LTS, what we went through all those initial years of pandemia and the amount of pills we had to take, toxic and, do you guys remember the taste of the NORVIR in liquid form?, YIKES, also, I think about all of those friend of ours, and all the people who didn't have any option to survive this virus, millon of people...So, let's all of us, newbies and not that new members, before we complain about"I have to take a pill a day for the rest of my life", how easy we have it and let's think about the people a mentioned previously...just a thought...best of luck to all of you...hugs    ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #52 on: November 29, 2017, 07:29:54 pm »


        ojo      hello everyone

One more year living with hiv/aids...23 years already, who would have thought i would live this long. i lost some battles to aids, but i have won, a bunch of nephews, nieces, even seven great nephews/nieces...OMG, i'm an old fart...just wantes to share the good news, there is TONNY2 for another 23 years more, ..hugs                     ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #53 on: March 15, 2018, 08:44:38 pm »

       ojo      hello everyone

last tuesday i went to see my id doctor and dracula, it was time for my new blood work test, the previos one was on september 5, 2017, where my cd4 were 737, cd4% 32 and vl-ud,,,,today, i got the results from tuesday's visit to the vampire, cd4 638, cd4%35, no viral load yet but i'm expecting a vl undetectable...my doctor can not believe these numbers, after he sent me home eleven years and a half ago, to wait for an oi to kill me because he told me, he couldn't do anything else for me due to my history of resistance to all the meds there were in those days. well, i guess, good things come to those who wait, to bad i didn't get these kind of results before i lost almost all my eyesight, as a good friend said to me earlier, at least you can still see something , he is right, not only can see, but i have been living overtime in this game called life, where i have been witnessed  the birth of so many nephews, nieces, even great nephews/nieces, i can not complain...on the other hand, i have made lots of good friend on this site, sharing experiences and getting to know lots of good people, fighters, people who want to live, but they need a kind word of support, a cyber hug, sometimes, a slap on the face with a white glove with the intention to make them understand, that life goes on even with a hiv diagnosis, just look at my story as proof of what i'm saying...best of luck to all...hugs                                                     ojo
« Last Edit: March 15, 2018, 08:54:33 pm by Tonny2 »

Offline Archimexican

  • Member
  • Posts: 31
Re: "HOPE DIES LAST"
« Reply #54 on: March 15, 2018, 10:14:49 pm »
Congrats! you are a great person and an inspiration to us all! thanks for all your advice and support, We love you man! Abrazos!  :D

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #55 on: March 18, 2018, 02:24:39 pm »


       ojo        thanks compatriota, you are so kind...you will see that, the sooner you guys learn how to live with this virus, the better, so you can go back to live a pretty normal lives, well, there are somethings that we have to change, hut first let's learn how to live with the virus...hugs to everybody                                              ojo

Offline DANIELtakashi

  • Member
  • Posts: 852
Re: "HOPE DIES LAST"
« Reply #56 on: March 21, 2018, 08:25:21 am »
Hi, TONNY,

   
LONG TIME NO WRITNG AND I AM VERY SORRY.
I WILL CHECK IN MORE OFTEN FROM NOW.
Japanese National.
Language:  Japanese and English
Reside in TOKYO
Have visited 45 US states, DC, and Guam and Saipan.
Wishing to visit American Samoa someday.

Offline Chel

  • Member
  • Posts: 13
  • Aloha!
Re: "HOPE DIES LAST"
« Reply #57 on: March 21, 2018, 07:50:54 pm »
Hello Tonny,
You have a great history. I'm really touched by this.  :'(
It's inspiring!
Let's keep on fighting!
Chel :)

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #58 on: March 22, 2018, 01:56:10 pm »
Hi, TONNY,

   
LONG TIME NO WRITNG AND I AM VERY SORRY.
I WILL CHECK IN MORE OFTEN FROM NOW.


      ojo     Hello my friend, how nice to hear from you again. It makes me happy to know that you finally learned how to live with the virus, so now, you have taken back control of your life and have been enjoying life again...welcome to your new normal, because there is a good life even wihen living with hiv...hugs amigo                                                                                                                                       ojo                           

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #59 on: March 22, 2018, 02:01:19 pm »
Hello Tonny,
You have a great history. I'm really touched by this.  :'(
It's inspiring!
Let's keep on fighting!

          ojo      hello there, thanks for replying and for your kind words...it has been a difficult and long jouney, but, here we are, still fighting, I have a mother to take care of and a great family and friends to keep giving them hard time, lol...welcome to the forum...hugs                                                                                ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #60 on: October 19, 2018, 09:46:29 pm »


     ojo.      Hello there.  Here I'm again, with my latest blood work results.

Cd4=725

Cd4%=31

VL= UD

If you read my original post, you will notice that I'm pretty lucky in having this kind of numbers...all that it takes is discipline in taking our meds as prescribed and a good attitude towards life...by the way, I've been taking the same treatment for the last twelve years and it's still kicking ass... just wanted to share the good news with all of you...hugs.                            ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"time
« Reply #61 on: April 20, 2019, 10:43:53 pm »


      ojo.       Hi,  I visited Dracula last Tuesday results are in
Still UD after taking the same treatment for 12 years...cd4 631,% 31

Offline Mindless

  • Member
  • Posts: 291
Re: "HOPE DIES LAST"
« Reply #62 on: April 21, 2019, 04:07:50 am »
Happy for you Tonny!

Keep up with the good work.


Hugs

Offline DANIELtakashi

  • Member
  • Posts: 852
Re: "HOPE DIES LAST"
« Reply #63 on: April 30, 2019, 05:26:44 pm »


HI TONNY,

  SORRY FOR MY LONG SILENCE.
I AM STILL HERE.
Japanese National.
Language:  Japanese and English
Reside in TOKYO
Have visited 45 US states, DC, and Guam and Saipan.
Wishing to visit American Samoa someday.

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #64 on: October 25, 2019, 04:15:14 pm »


      ojo.        Hello everybody

Last Tuesday I visited Dracula, latest results: cd4=734, cd4%=33 and still UD, same treatment for the last 13 years...great news for someone who was told in the summer of 2006, "we can't do anything else for you"...here I'm, still. All it takes to defeat HIV is, discipline and a positive attitude...hugs.                             ojo

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #65 on: March 26, 2020, 04:57:22 pm »



       ojo.      Hello everyone!

I will like to share with all of you my ladies lab results...cd4 674, still undetectable after taking the same treatment for the last 13 years...hugs

PS. Due to my poor vision, I dictated this post, if you notice an error please forgive me.

Offline baylav

  • Member
  • Posts: 13
Re: "HOPE DIES LAST"
« Reply #66 on: April 02, 2020, 04:07:14 pm »
Hello Tonny it’s me here. Thanks for
Always being an inspiration to all. I remember when I was suicidal you checked up
On me regularly with words of Encouragements. God bless you for me. I have my life back thanks to adhering to your advice.

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #67 on: September 22, 2020, 05:09:35 pm »


         ojo.        Hello everyone, hoping everyone is hanging in there...well, I’ve been dealing with a córnea infection for a long time, my doctor was considering stitching my eyelids close for three to four weeks blind, because, it’s the only eye functioning, and my right eye is blind. Anyway, it wasn’t necessary to go under the knife because the infección went away, we switched eye drops and, voila!, infection gone, so, my vision it’s getting better little by little which makes me happy...the other day, when I couldn’t see to well for the infection (I saw everything too foggy), how many thing have I gone through since my AIDS dx almost 26 years ago, and, I have decided to keep fighting, although, I should admit, that I was about to throw the towel after dealing with this córnea infection for almost a year, going to see the specialist every two weeks was driving me crazy (I have to ask someone to take me see the doctor an hour away from where I live), but, like I said before, as long as my mom doesn’t quit, I will not quit, she is fighting along my side for all these years, now she is 86 years old and has more energy than me. THANKS MOM!...well, we are still here, it hasn’t been easy but IM STILL ALIVE, almost blind but still breathing...hugs.                        ojo

Offline DANIELtakashi

  • Member
  • Posts: 852
Re: "HOPE DIES LAST"
« Reply #68 on: October 10, 2020, 06:40:05 am »
HELLO, TONNY.

THIS IS DANIEL.
SORRY FOR MY LONG SILENCE.  I AM DOING WELL.
Japanese National.
Language:  Japanese and English
Reside in TOKYO
Have visited 45 US states, DC, and Guam and Saipan.
Wishing to visit American Samoa someday.

Offline Fareast4116

  • Member
  • Posts: 23
Re: "HOPE DIES LAST"
« Reply #69 on: October 16, 2020, 11:11:52 am »
I just came across this and really, Tonny, you are one strong man. Where many (including me) wouldve given up, you fought and won!

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #70 on: October 16, 2020, 09:23:45 pm »



         ojo.           @Fareast, thx for your reply, it hasn’t been easy, I’m sure that there are other LTS with stories more dramatic than mine, but, for some reason, we are still here sharing our stories so, the newly diagnosed see that there is hope...best of luck to you and you are not alone anymore.

@daniel, how nice to hear from you...hugs

Offline DANIELtakashi

  • Member
  • Posts: 852
Re: "HOPE DIES LAST"
« Reply #71 on: October 18, 2020, 03:37:39 am »


TONNY2,

THANK YOU FOR YOUR REPLY.
THE OLYMPIC GAMES 2020 TOKYO WAS CANCELLED AND THE CORONA ISSUE IS STILL GOING ON HERE BUT I AM DOING WELL.  TAKE CARE.
Japanese National.
Language:  Japanese and English
Reside in TOKYO
Have visited 45 US states, DC, and Guam and Saipan.
Wishing to visit American Samoa someday.

Offline Tonny2

  • Member
  • Posts: 2,362
Re: "HOPE DIES LAST"
« Reply #72 on: October 20, 2020, 04:24:18 pm »


         ojo.        Hello everyone!

I just got my blood work results from my visit with Dracula last week...VL=UD, cd4=848, cd4%=34...it’s been 13 years  on a “salvage treatment “, it still kicking ass my combo and I’m very happy for it.

Also, I got news from my father, he is doing great, no need for oxigen, doctor said, he is sad and feels abandoned. Tomorrow we will have a video conference with him, hopefully he will feel better...hugs

 


Terms of Membership for these forums
 

© 2020 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.