"HOPE DIES LAST"

[Grasshopper]

So, you are you going to take Fosamax (Alendronic acid) ?

Goodluck, and I hope it helps

[Tonny2]

             ojo.     Hello grasshopper, I was diagnosed two years ago with osteoporosis. I think the range is -3 so since then I’ve been using Forteo which is an injection once every night, so last night was my last injection now I am going to continue the treatment for osteoporosis, taking a pill once a week, Fosamax of. (Aledronate sodium) to make my bones stronger and prevent fractures. I am going to be taking this bill for too long years, but to tell you the truth, it seems like it was yesterday when I started poking myself to years ago. Time goes by quickly…. thanks for the good energy…hugs

[Grasshopper]

My mother had to take that too, years ago, but she quit because of the side effects. (Not going to mention them as to not influence you    )

You have to take it on an empty stomach,  sitting-standing upright or walking around for at least half an hour.

Takes at least 5 years before you notice any strenghtening of the bones.

 

[Tonny2]

                ojo.          Yea my friend, my mom also took that med a while ago she is 90 years old, never gave had a broken bone even though she has fallen twice. next week, I will start taking this new treatment. Hopefully it will help me because I already had a broken bone off my foot.… Thanks for replying and for your feedback… Hugs.

[Tonny2]

             ojo.       Hello everyone!… I hope everybody’s doing OK. Well, tomorrow I will start the second phase of my osteoporosis treatment, fortunately it is just one pill a week and no more poking myself every night. Like I said, my mother used this medication before and she did OK and I know that I will do OK too.


The pain in my bionic eye is still there, I guess I will learn to live with it too because I do not one more surgery.… I do have some problems with bunions on my feet (painful) due to my drop toes, my doctor recommends surgery, no way Jose. Ever since I started living with AIDS/HIV has been constant fight first to survive the opportunistic infections then, deal with some of those for infections that they don’t kill you but they leave you with painful consequences like neuropathy, vasculitis, writing of attachments, that’s why I’m legally blind, and dealing with my eye pain and all this ass results of too many surgeries, and more complications. I know that there are other people that have dealt with worse complication like cancer and I’m glad that I haven’t had that problem. Anyway, hopefully our stories help other people.


Hopefully nowadays, nobody has to go through what we win through back in the days thanks to the new medication of course a people who were actively engaging in unsafe sex and had afraid to take the HIV test they may have some of these problems. That’s why it’s important to get tested…hugs



Ps. Sorry for the typos

[Tonny2]

                 ojo.           Hello everyone!… I hope and everybody’s doing well.

I just want to share with you that living with HIV when you share it with your family is something that affects of the family. And there are other illnesses in the family that also becomes affect all the family, including myself. I want to share with you as some of you might now already about my sisters breast cancer. I turned almost 20 months after dealing with this terrible situation, thankfully everything went well with the chemical and radiotherapy that last Monday after her breast reconstruction was done and today she was given the OK, finally, to end this terrible episode in her life. Now she has to recover for the surgery physically and mentally for four weeks in her summer house in playa Del Carmen in the Riviera Maya would it be nice for all of us to one day our doctors tell us, OK guys, no more pills you are down with HIV infection go and celebrate!. It is what it is, we will keep hoping for that situation… I just wanna let you guys know that I feel so proud of my sister because she was a very strong lady and she was always smiling, even though losing all her hair which now looks even nicer that has grown back up and we are hoping that damn cancer never comes back… Hugs


Ps. unfortunately, my cousin passed away. she dealt with her column cancer that metastasize to her liver and pancreas for a long time. Make sure rest in peace.

[leatherman]

It's good that your sister is doing well with all her issues. I wish her a good recovery!

And I'm sorry to hear that your cousin lost the battle to cancer. R.I.P.

[Tonny2]

          ojo.          Thanks Michael For taking the time to read my post and especially for replying to it and for caring…hugs

[Tonny2]

                   ojo.            Hello everyone!… I saw my cornea specialist yesterday to replace my contact lens. He seems like everything is stable in my eye. I keep reading 20/150, but in real life I feel like my vision is lower. But it is what it is.

I just got the bill for my bionic eye which is just like a big contact lens, piece of plastic, where they paint my Irish and pupil. When I got it done, they told me that he might cost like $4000, I was amazed when I saw the bill, $8000 OMG!! I wonder how many people like to have fed with that money.. I don’t have any out-of-pocket expenses because my insurance paid for it, but still, it is a lot of money… well, I just wanted to let you know how I am doing, the pain in my blind eye is still there, but it is what it is like I said before, I will learn to live with it. I don’t want more surgeries… Hugs.

[Tonny2]

               ojo.            Hello everyone!… November 29, 1994. How could I forget that day if it was a day when I received a diagnosis that changed my life forever. Since then I have gone through a lot of opportunistic infections and on the verge of dying three or four times but, I’m still here, I don’t know why, sharing with all of you my life experience, fighting, and surviving AIDS/HIV. Fortunately, for all new diagnosed new members, getting and advance HIV infections (AIDS) it’s not the same like 30 years ago, time has changed, lucky you. Although getting this diagnosis is still shocking.

I just want to share with you my happy 30th HIVERSARY , Who would have thought I was going to be here sharing with you the story of my life….hugs


PS. in memoriam of our friend numberguy82. we are going to keep supporting and helping in  others ways n Your Honor

[leatherman]

Happy 30th hiversary!!!

So many holidays to celebrate this time of year certainly brighten things up. Thanksgiving, Christmas, New Years and an Hiversary! You can't beat not dying and outliving AIDS for a grand celebration.

[Tonny2]

           ojo.           Thanks for replying, Michael and yes, I remember 30 years ago. I thought that I was spending my last Christmas my last New Year’s because I was told that I would leave two more years and I’m still here celebrating each day as was going to be the last day of my life meaning that I live every day at the fullest even with my Health restrictions. Life is good even with an HIV diagnosis. Thanks again for replying… Hugs.


PS. i’m sorry for my typos

[Brian1966]

Thursday had me reflecting a lot about where I was just 2 years ago. I spent Thanksgiving and Christmas of 2022 in the hospital after my AIDS diagnosis in early November.  The first World AIDS Day where I wasn’t just think about the lost friends from the early days, but pondering how close I was to joining them while laying in my hospital bed. At the time, hearing that life goes on and that I could live a normal life with this disease seemed like a fantasy. I was so weak and I sort of doubted if I had that sort of recovery as a possible outcome in my future. I was not sure of anything, of how my family and close friends would react.  I was not sure about what impact AIDS would have on almost every single aspect of my life.  I decided to be honest with my mom and siblings and a few good friends. I knew it could be risky but it wasn’t an issue for them other than concern about me and my well being.

I didn’t fully believe it was possible but it definitely is possible. I wish I had known about this forum earlier and I am thankful for the work of the moderators and the encouragement from the community.

[Tonny2]

                   ojo.            Hello there!… It is tough to be in the hospital not knowing if you are going to survive specially during the holidays, but you made it out of the hospital alive and you’re still here with us and I’m sure that you’re gonnabe around  for long time like Some of us  love ng time survivors whom for some reason, we are still here while others aren’t. just keep taking your metd as prescribed and live life at the fullest because, there is life after an HIV diagnosis…hugs

[Tonny2]

                  ojo.             Hello everyone!… This post is to wish all of you happy holidays. As long as you keep taking your medication as prescribed, you will be celebrating these holidays for a long time as I have been doing for the next 30 years. I hope everybody has a good time during and beyond this holiday season…hugs

Hey, you don’t see me around during this time it’s because I’m going to San California, running away from the cold weather of Ohio….hugs


FELUZ NAVIDAD!!!

[leatherman]

Merry Christmas!
Happy and safe travels to you!

[Tonny2]

                ojo.             Thank you, Michael, same to you. Hawks from warmer than Ohio, Los Angeles, California

[Tonny2]

            ojo.        Hello.positive family!!… wishing all of you happy holidays…hugs           
L

[Tonny2]

                  ojo.          Hello everyone!!… Finally back home again. Happy new year to everybody.

One more year of checking my calendar for my doctor’s Appointments. One more year of trying to live life The best I can do to my limitations caused Buy my long bottle against HIV/AIDS, but I’m still alive.

My first appointment for the year is with the eye surgeon, which I’m planning to cancel because I don’t think that I need to see him anymore at least for now. The pain in my eye after the surgery is still there, although it is not that often, thankfully. Now that I was visiting family and friends in California, they couldn’t even tell that I was wearing a prosthetic eye so I could smile for the pictures.

My second appointment and related to HIV, is January 27, having a root canal done. I hate Dentist.

February 5, I will see my cornea specialist just to replace my bandage contact lens, this has to be done every three months to avoid an infection of my cornea. Consequences of too many surgeries due to CMB retinitis.

April 5, I will see my ID DOCTOR for my Six months check up, a week before that I will see the vampire so we can talk about my bloodwork results. The same day I will see the bone specialist doctor to talk about my osteoporosis progress. I’m down with The two long years of injections and I just finished with my first three months of taking a pill, this pill treatment would be for two years too.

That’s all when my calendar shows and I hope it stays like that. No more new doctors appointments, just the regular ID, cornea and bone specialists.

Remember that there is life after an HIV/AUDS diagnosis this is a matter of a good attitude because we cannot take back time, but we can make life even better knowing that we are taking treatment for this chronic condition.… Wishing you the best… Hugs.

[LWHIV]

I am so happy for you.

[Tonny2]

              ojo.             Hello there!… Thanks for replying.I read your story and I’m sorry about the passing of your mom and finding out about your diagnosis. I’m glad you finished your college and now we have a new chef. I hope You find A good job. Again, thanks for replying and welcome to the forum, we are here for you and remember, there is life after an HIV diagnosis… Hugs