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Author Topic: Disclosure - Leading by example  (Read 2331 times)

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Offline AIDS2HIV

  • Member
  • Posts: 96
    • www.aids2hiv.com
Disclosure - Leading by example
« on: December 06, 2006, 03:11:30 PM »
ok, i know many on here, have varied opinions on disclosure. But i must say, through my own personal experiences, disclosure has not only set me free, it has allowed me opportunity to educate. So far through disclosure i have been on TV in my area, and now here's my latest......my local newspaper*

and before it gets said, the area of ohio live in, is just as afflicted with the stigma as anywhere else is, the difference being, I'm doing something about it, by seizing the opportunities.

i challenge those who arent already to become active in thier communities, to set your Fears aside, and seize the opportunity that lies behind the mask of adversity*


(part 2 gets published next week)
Its the future of Hiv Education, and Resources www.aids2hiv.com      Got Community?

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 31,889
Re: Disclosure - Leading by example
« Reply #1 on: December 06, 2006, 04:14:12 PM »
Cochise, good for you, man! That's a big step towards breaking down the isolation that continues to haunt so many who are living with HIV.

On the other hand, as far as disclosure in general is concerned, I still say that's a totally personal decision to make. Each person has to decide what's right for them.

If you will, keep us posted on responses you get to this action.

Andy Velez

Offline AIDS2HIV

  • Member
  • Posts: 96
    • www.aids2hiv.com
Re: Disclosure - Leading by example
« Reply #2 on: December 06, 2006, 04:23:18 PM »
i sure will Andy...back in febuary, i did a 3 day news special that generated a 60% increase in people getting tested in northwest ohio.....We are working on another newcast as we speak.

i agree about disclosure. however, i also know that many times, in most circumstances, we feed the Fear monster so much, that it only holds us back. I have yet to find, anyone who is active in both openingly disclosing, and educating about HIV, that have more bad come from it, than good. Some just take longer than others to get to that point of disclosure. The level of Acceptance of "self" is key in comfortability of disclosure  :)
Its the future of Hiv Education, and Resources www.aids2hiv.com      Got Community?

Offline Queen Tokelove

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  • Posts: 6,033
  • Smokey the Smurf
Re: Disclosure - Leading by example
« Reply #3 on: December 06, 2006, 07:38:09 PM »
Disclosure is a touchy subject for me. I am happy for those who are able to disclose. Everytime I tried to disclose, it ended up badly. That is why I won't disclose to anyone. But at the same time, I'm not sexually active so I do not have to worry about infecting anyone. I hope one day that I will be able to open up but for the time being with me, silence is golden......
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline J.R.E.

  • Member
  • Posts: 7,540
  • Joined Dec-2003 Living positive, since 1985.
Re: Disclosure - Leading by example
« Reply #4 on: December 06, 2006, 08:43:56 PM »

Thanks for the link. It was a very good read. Thanks for putting yourself out there, for the community. Took a lot of courage to do that. Wishing you the best on your site ! The only place I won't disclose, is at my workplace. When the time is right, that will change.


Current Meds ; Viramune, Epzicom, 20mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 9/24/2017

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 9/18/2017,  Viral load remains <40
CD 4 @358 /  CD4 % @ 13

 65 years young.


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