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Author Topic: "salvage treatment"  (Read 2573 times)

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Offline Tonny2

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  • Posts: 2,275
"salvage treatment"
« on: January 07, 2016, 09:48:49 pm »

        ojo        Hello everyone

Nine years ago, today, I started a life saving treatment, "salvage treatment", that was offered to people like me, who were out of options, no more medications to take because of resistance, and who were told, "we can't do anything else for you, my friend"...so, in January 2007 was offered this treatment, it wasn't even approved by the FDA then, even it was free, I didn't pay for the meds for one year, tho, I had to sign some papers before I started,it(my own risk)..three months after starting the salvage treatment (prezista e Intelence), my VL went for the first time since my dx in Nov. 1994, UD, nine years later, still taking the same plus Isentress, my VL is still UD and my cd4 between 400-500...let's celebrate nine years more of enjoying life, lovedones and being on these forum sharing experiencies...hugs                     ojo

Offline Wade

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Re: "salvage treatment"
« Reply #1 on: January 08, 2016, 08:09:17 am »
Tony, I for one am glad they salvaged you !
I've been pulled out of the junk yard myself , and here we are...
Guess we fooled them right and proper .
Cheers to the past nine years and to many more !!!
Wade
HIV 101 - Basics
 HIV 101
 You can read more about Transmission and Risks here:
 HIV Transmission and Risks
 You can read more about Testing here:
 HIV Testing
 You can read more about Treatment-as-Prevention (TasP) here:
 HIV TasP
 You can read more about HIV prevention here:
 HIV prevention
 You can read more about PEP and PrEP here
 PEP and PrEP

Offline leatherman

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  • Posts: 7,739
  • Google and HIV meds are Your Friends
Re: "salvage treatment"
« Reply #2 on: January 08, 2016, 04:29:17 pm »
AH! How I remember hearing the words "salvage routine". :( Scary words, worrisome times.

Congratulations on getting the right regimen doing the right job!
leatherman (aka mIkIE)


chart from 1992-2017
Tivicay/Prezcobix

Offline Tonny2

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  • Posts: 2,275
Re: "salvage treatment"
« Reply #3 on: January 08, 2016, 05:42:06 pm »


         ojo       Thanks Wade and Mikie...I still remember when I was told, "Tonny2, you are a smart guy and know we have tried everything", those were the ID doctor's words, and it was said to me on the day of my 44 birthday, also on my bithday, was myy last day at work, how could I forget...I still kept taking my meds, eventhough I knew they were not working anymore, even I has an eye surgery on November of that year, I never gave up, then I started the treatment, and I'm still here, since then the only mayor problem I has, nobody knew if I got it because of HIV, or something else, I got Hemolitic anemia, this was on August 2010, and guess what, I spent my bd in the hospital, again, how could I forget all this memorables moments, six days in ICU, three in a regular room, got a small heart attack for the lack of hemoglobine in my body, went through an angioplasty, no fun at all, very painful, got a estem in one of my blood vessels...so, in these past nine years, bonus years, I can't complaint, should I?...thanks again guys, hopefully this combo will kill hiv's ass for a longer time, while I can get a new combo that I'm not resistance to...hugs and the show must go on!!!   8-)                                                                             ojo                 

Offline PittGurl

  • Member
  • Posts: 338
Re: "salvage treatment"
« Reply #4 on: January 08, 2016, 06:55:45 pm »
Tonny2 so glad they had a salvage cocktail for you.....and even more happy that you didn't give up. I'm not sure how i would have handled it :(  But am thankful you are here!!!!  Lots o luv buddy!!!!
Infected ~5/16/15-7/19/15
8-2-15    CD4=286; VL=43800; 15% WB Pos Test Confirmed (waiting for genotype to start Triumeq)
9-4-15    Started Triumeq thanks to the people on board encouraging me :)
9-21-15    CD4=570; VL 26; 30% 16 days on Triumeq…. HOLY COW it's working!
10-27-15   CD4=522; VL=UNDETECTABLE!!!; 29%    7 wks, 4 days on Triumeq
1-28-16    CD4=479; VL=UD; 31% almost 5 mo on Triumeq
4-27-16    CD4=580; VL=UD; 32% almost 8 mo on Triumeq
7-28-16    CD4=991; VL=UD; 38% almost 1 year on Triumeq
8-3-16    ONE YEAR DX
10-27-16    CD4=765; VL=UD; 39%
3-8-17   CD4=709; VL=27; 39%
7-13-17   CD4=942; VL=UD; 41%
10/12/17   CD4=626; VL=UD; 39%
1/21/18    CD4=650; VL=UD; 40%
4/26/18   CD4=893; VL=UD; 39%
8/9/18   CD4=858; VL=UD; 41%
12/27/18   CD4=841; VL=UD; 41%
4/24/19   CD4=751; VL=UD; 39%
8/27/19   CD4=719" VL=UD; 36%

Offline wolfter

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Re: "salvage treatment"
« Reply #5 on: January 08, 2016, 07:01:33 pm »
OH yeah, I think many of us have heard this.  :)  My salvage treatment mostly works. 
Being honest is not wronging others, continuing the dishonesty is.

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: "salvage treatment"
« Reply #6 on: January 08, 2016, 07:18:51 pm »
LOL TONNY2  ;D
I was in the hospital on several of my birthdays also. No better way to celebrate growing older than when you're not certain you're actually going to be getting any older.  ;) :D
leatherman (aka mIkIE)


chart from 1992-2017
Tivicay/Prezcobix

Offline Mightysure

  • Member
  • Posts: 425
Re: "salvage treatment"
« Reply #7 on: January 10, 2016, 02:39:06 pm »
That's great.  I'm so happy you have something that works.  And for 9 years and counting!! Integrase inhibitors are definitely a game changer.  These stories give us hope.

Offline Egyptianman

  • Member
  • Posts: 106
  • ...and kept wishing that I could go back in time
Re: "salvage treatment"
« Reply #8 on: April 16, 2016, 07:57:35 am »
So as anewbei... I will return to the same question... Does treatment regimen have alife span?does everyone has anumber of options then he will find no treatment options as what happened for u?does resistance still occur even with complete adherence? Or is it inveitable... I'm really scared

Offline CaveyUK

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Re: "salvage treatment"
« Reply #9 on: April 16, 2016, 08:26:07 am »
So as anewbei... I will return to the same question... Does treatment regimen have alife span?does everyone has anumber of options then he will find no treatment options as what happened for u?does resistance still occur even with complete adherence? Or is it inveitable... I'm really scared

And you have had this answered previously.

No, treatment regimen does not have a 'life span'

Modern HIV treatments have a really good resistance profile.

There are many, many options of drugs out there - even for people with very rare highly resistant strains.

Look through the forums. How many people do you see who have recently complained about having zero treatment options open to them, leaving them no choice but to let HIV run it's course? Answer = None

That should answer your question...
HIV - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here:
PEP and PrEP

Offline Egyptianman

  • Member
  • Posts: 106
  • ...and kept wishing that I could go back in time
Re: "salvage treatment"
« Reply #10 on: April 16, 2016, 09:17:08 am »
And you have had this answered previously.

No, treatment regimen does not have a 'life span'

Modern HIV treatments have a really good resistance profile.

There are many, many options of drugs out there - even for people with very rare highly resistant strains.

Look through the forums. How many people do you see who have recently complained about having zero treatment options open to them, leaving them no choice but to let HIV run it's course? Answer = None

That should answer your question...
Do u think I'm obsessive of treatment failure and resistance?

Offline zach

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  • Posts: 3,453
Re: "salvage treatment"
« Reply #11 on: April 16, 2016, 09:35:58 am »
Do u think I'm obsessive of treatment failure and resistance?

YES!!!

Offline Egyptianman

  • Member
  • Posts: 106
  • ...and kept wishing that I could go back in time
Re: "salvage treatment"
« Reply #12 on: April 16, 2016, 09:51:58 am »
YES!!!
The story of Tonny always in my imagination... He was diagnosed 1994 and combination therapy i think firstly introduced 1996...he said he was mutidrug resistant and people here wishing his salvage therapy to continue longer and longer...it's all about uncertainty... Do u understand me zach?

Offline zach

  • Member
  • Posts: 3,453
Re: "salvage treatment"
« Reply #13 on: April 16, 2016, 09:58:39 am »
yes i understand you

completely

do you understand us? you're obsessing over irrational fears

tonny is a long term survivor, they faced med challenges you and i will never have to think about... at all

you cannot compare their experience to a newly diagnosed person

listen, face what is ACTUALLY in front of you... the things you fear, aren't the things that are going to happen

you will face challenges, promise you that... but they won't be what you expect

just settle down, crawl up out of the worry well

Offline Wade

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  • Member
  • Posts: 3,447
Re: "salvage treatment"
« Reply #14 on: April 16, 2016, 10:15:56 am »
Zach is absolutely right !
I'm a LTS like Tony, We had very few med options available to us .
This is not even close to what you are facing now or have to worry about.
Read Caveyuk and Zachs words carefully they have both given you excellent
advice and information.

Stop worrying and start enjoying your life !

Best, Wade
HIV 101 - Basics
 HIV 101
 You can read more about Transmission and Risks here:
 HIV Transmission and Risks
 You can read more about Testing here:
 HIV Testing
 You can read more about Treatment-as-Prevention (TasP) here:
 HIV TasP
 You can read more about HIV prevention here:
 HIV prevention
 You can read more about PEP and PrEP here
 PEP and PrEP

Offline Egyptianman

  • Member
  • Posts: 106
  • ...and kept wishing that I could go back in time
Re: "salvage treatment"
« Reply #15 on: April 16, 2016, 10:26:30 am »
I will try to settle down...maybe I'm naturally obsessive... Maybe because I didn't see many hiv patients in my country... But being here help me to calm down...nice pic btw zach


completely

do you understand us? you're obsessing over irrational fears

Offline Egyptianman

  • Member
  • Posts: 106
  • ...and kept wishing that I could go back in time
Re: "salvage treatment"
« Reply #16 on: April 16, 2016, 10:27:50 am »
Zach is absolutely right !
I'm a LTS like Tony, We had very few med options available to us .
This is not even close to what you are facing now or have to worry about.
Read Caveyuk and Zachs words carefully they have both given you excellent
advice and information.

Stop worrying and start enjoying your life !

Best, Wade
Thank you for your support wade

Offline Tonny2

  • Member
  • Posts: 2,275
Re: "salvage treatment"
« Reply #17 on: April 16, 2016, 03:42:38 pm »
So as anewbei... I will return to the same question... Does treatment regimen have alife span?does everyone has anumber of options then he will find no treatment options as what happened for u?does resistance still occur even with complete adherence? Or is it inveitable... I'm really scared

        ojo       Hello Egyptianman....I THINK YOU ARE WORRYING TO MUCH, JUST TAKE YOUR MEDICATION, STOP READING TO MUCH ABOUT hiv, TRY TO GO BACK TO YOUR NORMAL LIFE....lIKE ZACK AND WADE TOLD YOU, i'M A OLD FART lts, WHEN i GOT DX'ED, WE HAVE NOT MANNY MEDS OTIONS, AND i ASKED MY DOCTOR RECENTLY ABOUT WHY i GOT RESISTANCE TO THE MEDS, HE TOLD ME, THAT THEY (DOCTORS) WERE DOING EVERYTHING WRONG, THAT WE WERE RIGHT WHEN COMPLAINING ABOUT THE DOSAGE OF THE MEDS, THAT THE MEDS WERE MAKING US FEEL SICKER, WE ALL WERE LEARNING THEN...NOW, AFTER 30 YEARS, THE MEDICATIONS ARE BETTER, THEY HAVE LEARNED A LOT ABOUT THEM, THANKS TO ALL OF US lts, AND SOME THAT SADLY DIDN'T MAKE IT, SO YOU GUYS DON'T HAVE TO WORRY ABOUT RESISTANCE AND BAD SIDE EFFECTS

i'VE BEEN ON THE SAME TREATMENT FOR NINE YEARS, STILL UNDETECTABLE AND CD4=619, CD% 29, AND i ...SO, PLEASE DO NOT WORRY ABOUT RESISTANCE, JUST TAKE YOUR MEDICATION AS PRESCRIBED, IF,, IF, YOU WERE TO GET RESISTANCE (BECAUSE YOU DON'T TAKE YOUR MED S ORDERED), THERE ARE OTHER MEDS FOR YOU TO TRY, AND MORE IN THE PIPELINE...WISHING YOU THE BEST, RELAX AND ENJOY LIFE, BECAUSE THERE IS LIFE AFTER A hiv DIAGNOSIS, EVEN AFTER AN aids DIAGNOSIS...HUGS                OJO

 


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