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Author Topic: My mom had PCP  (Read 2931 times)

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Offline nami123

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My mom had PCP
« on: July 14, 2015, 12:20:06 pm »
Hi guys,
 New to this forum, new to any forum actually. Well the past couple of months have been completely awful. My mother spent a grand total of 90 days in the hospital from a case of PCP and a new diagnosis of HIV. She was admitted April 6 with shortness of breath and heart palpitations and transferred to the ICU on  April 17. She was intubated and on a ventilator for the better part of two months. It bad real quick. Buuuttttt through prayer and awesome medications she's home now. when she was in the ICU she was sedated and some times purposely paralyzed for most if the time so she spent almost two months without moving so her muscles have atrophy. She's getting physical/occupational therapy and is getting better everyday.
At first  her viral load was 30,000-40,000 but in a little over a month she is now undetectable, her CD4 was 3, but upon being discharged (July 7) it was 51. She's on bactrim isentress, epzicom, Zithromax , and mepron. At home now she's still on 2.5 L of oxygen (which is not too much)  and is really weak and tired. I know that her lungs have suffered some permanent damage but I have faith that she will get back to some sense of normalcy. This is her story/my story and I guess what I'm looking for is some encouragement, inspirational stories, and any tips on how long of a journey we still have to go and anything we can do to make sure we remain on the right track.  ;D :D 

Offline Ptrk3

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Re: My mom had PCP
« Reply #1 on: July 14, 2015, 12:50:44 pm »
As long as your mother remains on the drug therapy regimen, she will be fine.  It does get better as time goes on.  I was diagnosed in hospital with PCP, too, and a CD4 of 9, nearly two years ago.  My viral load was 111,000.  After a few weeks of Atripla, I was non-detect.  My CD4's have improved slowly, which is usually the case, and was 179 last time it was checked.  I do feel much better, but it does take some time.  Best wishes to you and your mother.  Keep the faith, keep to the regimen, and things will improve faster than you think!
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Offline ImisstheOldTimes

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Re: My mom had PCP
« Reply #2 on: July 27, 2015, 01:13:04 pm »
Hi Nami,

Well it sounds like your mom has been to war and back...the best thing is she is back and they have her on some really good meds, and hopefully she will get stronger and stronger.  Chances are she is still on oxygen, and will probably be for a while, but I am really glad that she is ND and her CD4s are rising...

YOU have every reason to be hopeful!!

Life is a BANQUET, and most poor suckers are starving to death!

                             ~Auntie Mame


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