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Author Topic: 6.5 years after diagnosis: still no meds. Didn't expect that.  (Read 1581 times)

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Offline auspoz

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Hi everyone. I haven't been here for ages, but for some reason thought I'd check in and say hi.

Maybe it's because I'm still off meds, normal CD4 and low VL, and experiencing my first ever 6 month space between bloods rather than every 3 months. I know I'm very lucky. And yep: pure luck.

I remember how fucked up I was on diagnosis. Geez, I was even locked up in a psych ward. Against my will.

But, for those of you looking for inspiration here, as I did then; I just got a fucking great new job, a big promotion, am very well, and have a beautiful relationship with my family. Favourite uncle here! (Swoon).

It DOES get better. Ditch the idiots and fake friends. Embrace the real.

Best of health to all. Talk to people here. What a vital resource this is!!!


Offline auspoz

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Re: 6.5 years after diagnosis: still no meds. Didn't expect that.
« Reply #1 on: July 07, 2014, 06:11:18 AM »
If my story can make anyone here feel any better, I'll be happy. I used to come here for comfort too.

Offline eric48

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Re: 6.5 years after diagnosis: still no meds. Didn't expect that.
« Reply #2 on: July 07, 2014, 09:47:46 AM »
6.5 years after diagnosis: still no meds. Didn't expect that.

Actually, not that rare. The stats goes like this: median from infection (not diagnosis) and being sick  : 9.8 years (ca. 10 years)

So after 10 years, 50 % of infected people notice... nothing

Recently some poster here have experienced 'sudden collapse' of CD4 counts. That is what you want to avoid: you want to go on med early enough, certainly not too late

Which is why the recommandation, here, is 3 months test for people not on meds.

NVP/ABC/3TC/... UD ; CD4 > 900; CD4/CD8 ~ 1.5   stock : 6 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: Clin. Trial NCT02157311 = 4days ON, 3days OFF ; 2015: https://clinicaltrials.gov/ct2/show/NCT02157311 ; 2016: use of granted patent US9101633, 3 days ON, 4days OFF; 2017: added TDF, so NVP/TDF/ABC/3TC, once weekly

Offline auspoz

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Re: 6.5 years after diagnosis: still no meds. Didn't expect that.
« Reply #3 on: July 18, 2014, 07:44:42 AM »
Um, Yes. Thank you. I AM familiar with the statistics and averages, actually.

My hope was to help others feel ok.


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