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Author Topic: Zach's Thread  (Read 67791 times)

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Offline Theyer

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  • Current ambition. Walk the Dog .
Re: i am undetectable
« Reply #50 on: July 29, 2014, 03:19:13 am »
thanks guys

doc was hoping for faster results, but i'm ok with the long game

only drawback is he was going to let me go to every three months once i got above 100... we'll see next month, that'll be three in a row (hopefully) at UD and six months after restarting treatment

i feel good about this timeline

So you should dear heart so you should.

Any rise plus remaining UD is great and to be treated as such IMO

Lovely SUNNY start to the day in London hope it's the same for you Zack

All the best

ZenM

 
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline zach

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Re: i am undetectable
« Reply #51 on: July 29, 2014, 05:45:35 am »
the weather has been great all weekend theyer, and today is supposed to be even better. really glad to see you active!

Offline Theyer

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Re: i am undetectable
« Reply #52 on: July 29, 2014, 06:24:23 am »
the weather has been great all weekend theyer, and today is supposed to be even better. really glad to see you active!



Have just returned from an hour in the sun on Fulham Rd which is very busy on a weekday.  The buses stopping all the time disgorging patients , visitors , workers , residents very pleasant to warm the.
 body with sun

Starbucks workers know my order now.

Here,s a thing it's easier to get out to the sun on my own here than it will be at home. That is one off the reasons I plan to get to Trinity Hospice as much as possible when home. Can take the dog with me  , enjoy the Garden, use the small Cafe and look at the rooms I hope to quietly die in a long time from now.

Am looking at wether to hire a wheel chair Zack. What is holding me back is the first 400 yards from my door will be  in posable for  me to navigate alone , will wait until I am home to decide.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline zach

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Re: i am undetectable
« Reply #53 on: July 29, 2014, 07:28:18 am »
Get the chair if you need it, and then hurry up and walk again. You'll grow lazy in those things. Starbucks is a sore topic this morning, I bought beans, I know I did. I remember bringing them into the house. After that, things are not so clear. So I have no cup of coffee at this hour. No tobacco to mix in the morning pipe. It's a barbaric existence, let me tell you.

I am training puppy to attack the cane. She keeps it in the corner where it belongs. Growls menacingly if it looks like I think on touching it. Took her out for her first swim ever this weekend, threw her in the river, sure enough she floats like a labrador and swims like a seal. Swimming was good physical therapy for me too. More of that to come.

Offline zach

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Re: i am undetectable
« Reply #54 on: August 05, 2014, 02:58:11 pm »
great dr appt today. he agreed to go to two month visits until '15. everything stays cool then we go to three months and med swap to stribild. i'm going to resist the temptation to call for todays lab results, and just wait until oct. really trying not to obsess on numbers

Offline wolfter

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Re: i am undetectable
« Reply #55 on: August 05, 2014, 03:13:27 pm »
Does your doctor or lab have a patient portal where you can review your labs?  For me, it's invaluable to review them and research anything before my appointments.  Does he allow his nurse to give your results over the phone?  I think it'd drive me a little batty even after all these years if I had to wait that long for results.

Not long ago, I was labs done weekly.  It slowly became every 2 weeks then monthly.  Slowly to every 3 months and now I go 4 months.  My doctor left it up to me if I want to go every 6 months.  I'm not comfortable going that long plus I enjoy our visits.

best wishes
Being honest is not wronging others, continuing the dishonesty is.

Offline zach

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Re: i am undetectable
« Reply #56 on: August 05, 2014, 03:28:00 pm »
oh yeah, i can call my nurse. but i also know she'd call me if there is even a blip. this is an experiment, i'll fess up if i can't last

six month visits may be a minute coming, and dropping the prophylactics will be a milestone

all things in time

Offline mitch777

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Re: i am undetectable
« Reply #57 on: August 05, 2014, 06:00:50 pm »
Do you get your labs done on the day you have your Doc appointment? I always get my labs done, at my docs request, 2 weeks prior to my appointment then we discuss the results. Been doing that for decades now.
33 years hiv+ with a curtsy.

Offline zach

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Re: i am undetectable
« Reply #58 on: August 05, 2014, 06:14:32 pm »
realizing this is only four months in at this clinic. first month nurse called me. next month i called her promptly. last couple months i waited a little longer. doc and i sort of had a big talk when i got out hospital and laid out a course. since then we circle back to talk about the last labs real quick. long as we agree i'm on track we move on. personally i love the way he'll just rapid fire no bullshit, we cover alot of ground. i'll go into the city once a month, no more. when i go to three months it would be easier to start that sort of schedule. and need to find a dog sitter near the clinic, so near the dog park i hate getting that close and leaving her at home.


Offline mitch777

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Re: i am undetectable
« Reply #59 on: August 05, 2014, 08:39:58 pm »
realizing this is only four months in at this clinic. first month nurse called me. next month i called her promptly. last couple months i waited a little longer. doc and i sort of had a big talk when i got out hospital and laid out a course. since then we circle back to talk about the last labs real quick. long as we agree i'm on track we move on. personally i love the way he'll just rapid fire no bullshit, we cover alot of ground. i'll go into the city once a month, no more. when i go to three months it would be easier to start that sort of schedule. and need to find a dog sitter near the clinic, so near the dog park i hate getting that close and leaving her at home.

Understood. Waiting til October in the mean time seems logical to me. You are being treated and I'm sure the results will continue to show improvement. Can't blame you for wanting to spend time with that beautiful pup of yours.  :)
33 years hiv+ with a curtsy.

Offline zach

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Re: i am undetectable
« Reply #60 on: September 11, 2014, 02:24:24 pm »
found this cleaning the computer, posting for posterity

7/5/10, dx hiv/aids poz, cd4 8, vl 420426
7/6/10-7/16/10 hospitalized with pneumonia
8/1/10 atripla
9/1/10, cd4 83, vl 230
10/16/10 aids walk atl
11/18/10 cd4 158, vl ud
3/1/11 cd4 161 vl ud
6/26/11 sf pride
7/19/11 cd4 220 vl us
9/03/11 nola decadence

out of care

3/27/14 cd4 9 2% vl 365000
5/7/14 cd4 67 8% vl 140
6/6/14 cd4 84 10% vl ud
7/7/14 cd4 96 12% vl ud
8/5/14 pending results
9/26/14 lab appt
11/5/14 neuro appt
« Last Edit: September 11, 2014, 02:40:45 pm by zach »

Offline zach

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Re: i am undetectable
« Reply #61 on: September 26, 2014, 03:35:23 pm »
8/5/14, cd4 119, vl ud... low and slow, like good bar b que... but steady upward trend

9/26/14 labs, results pending

taken off mepron... TAKEN OFF MTHRFKN MEPRON!!!!!!!!

mri tomorrow

11/5/14 neuro appt

11/18/14 lab appt

Offline timmm55

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  • Posts: 51
  • Unapologetically HIV Undetectable
Re: i am undetectable
« Reply #62 on: September 28, 2014, 02:39:09 pm »
Congrat!

My ex got to undetectable too.

He took a drug "Holiday" for a couple of years.....totally against my advice. By the time he decided to go back on meds (I never let it go!)  his Ts were 100 and V load was very high. It took 18 months to get there, but he's undetectable.

I've been on the cocktail or whatever for a 10 years. 1000 Ts and 0 V-load.

Offline Theyer

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Re: i am undetectable
« Reply #63 on: September 29, 2014, 06:31:34 am »
You post on aids med and Facebook Miss P could , likely , has found you in 4 minutes

I am in a very snippy mood
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline zach

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Re: i am undetectable
« Reply #64 on: September 29, 2014, 06:38:37 pm »
shhhh... i know ms p's name

Offline OneTampa

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  • "Butterflies are free."
Re: i am undetectable
« Reply #65 on: September 29, 2014, 09:44:26 pm »
Why is everyone whispering?!?!?

 ;)
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline absopozilutely

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Re: i am undetectable
« Reply #66 on: September 30, 2014, 12:54:19 am »
shhhh... i know ms p's name

Isn't it David? Errr maybe...shit I can't remember. Dammit, oh well I don't think anyone on here besides Irish knows my name. Then again, he also knows my job, work number, cell number, Facebook, etc. lol
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline Irish Eyes

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Re: i am undetectable
« Reply #67 on: September 30, 2014, 10:29:08 am »
+ workplace addess, home address, dogs names, car make/model....blah blah.

P.S. car needs an oil change, rear passenger tyre is a little low, bsve.
« Last Edit: September 30, 2014, 10:32:33 am by Irish Eyes »
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline JosephP

  • Member
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  • Keep looking FORWARD... Dx'd 8/10/2013...
Re: i am undetectable
« Reply #68 on: September 30, 2014, 10:32:59 pm »
Happy for you!!! Those little buggers are now under check!! And the cd4s will have only one way to go: up! ;D
Today January 20, 2020, I have taken 2378 pills of my ARV since first pill. This means 79 bottles of 30 pills of ARVs at an average of $3950 per bottle or $313,103 USD for my treatment. I have a compliance of 99.83% taking my meds and only .17% (or 4 pills) non-compliant. Of these four pills two I forgot completely, One I lost and one I didn't have with me while traveling! I became UD 3 months after treatment start   ***We are all dealing with this. And we will live long and productive lives!! AND, yes the Lord is my shepherd. Life is good... And thanks for the meds! ***

Offline absopozilutely

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Re: i am undetectable
« Reply #69 on: October 01, 2014, 12:54:37 am »
+ workplace addess, home address, dogs names, car make/model....blah blah.

P.S. car needs an oil change, rear passenger tyre is a little low, bsve.

Well we all know I could use a lube and tuneup. Speaking of my..."friend" asked me on a date tonight! So excited!
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline BoiBoy

  • Member
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Re: i am undetectable
« Reply #70 on: October 02, 2014, 09:58:47 pm »
Congrats, Zach.  ;)

Offline zach

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Re: i am undetectable
« Reply #71 on: October 10, 2014, 03:33:28 pm »
3/27/14 cd4 9 2% vl 365000
5/7/14 cd4 67 8% vl 140
6/6/14 cd4 84 10% vl ud
7/7/14 cd4 96 12% vl ud
8/5/14 cd4 119 13%

9/26/14 cd4 113 13%

11/5/14 neuro appt
11/18/14 lab appt


well shit. small blip in the cd4. i know it's insignificant. i know. % still the same, thats how small the difference is. still ud. i don't feel bad about any of that, just don't feel great either.

mri results, brain is still there. so is the lesion. will discuss next appt.

applied for adap, officially off medicaid. am told it will be fine.
« Last Edit: October 10, 2014, 03:37:26 pm by zach »

Offline Jeff G

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  • How am I doing Beren ?
Re: i am undetectable
« Reply #72 on: October 10, 2014, 03:36:18 pm »
8/5/14 cd4 119 13%
9/26/14 cd4 113 13%


well shit. small blip in the cd4. i know it's insignificant. i know. % still the same, thats how small the difference is. still ud. i don't feel bad about any of that, just don't feel great either.

applied for adap, officially off medicaid. am told it will be fine.

With the change in those numbers you can b or lip but it aint no blip .
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Offline initforlife

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Re: i am undetectable
« Reply #73 on: October 10, 2014, 04:19:55 pm »
shhhh... i know ms p's name
SHHHHH! I know ZACH's name. but he also knows mine and phone number and has my sexy ass on his fb lol  not sure if I have seen his ass to know if it is sexy... Hey Zach post an ass pic on fb please  ;D and as for Irish I'm sure he is a troll living under the troll bridge  ;D ;D ;D ;D ;D
« Last Edit: October 10, 2014, 04:25:08 pm by initforlife »
sometimes it is best to say nothing at all. then to offend

Offline zach

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Re: i am undetectable
« Reply #74 on: October 10, 2014, 04:34:07 pm »

Offline initforlife

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Re: i am undetectable
« Reply #75 on: October 10, 2014, 04:37:35 pm »
sometimes it is best to say nothing at all. then to offend

Offline zach

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Re: i am undetectable
« Reply #76 on: October 20, 2014, 01:11:00 am »
never give up
« Last Edit: October 20, 2014, 01:15:38 am by zach »

Offline zach

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Re: i am undetectable
« Reply #77 on: October 20, 2014, 01:11:22 am »
climbed a mountain yesterday. feel good




Offline buginme2

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Re: i am undetectable
« Reply #78 on: October 20, 2014, 06:59:15 pm »
Great view!
Don't be fancy, just get dancey

Offline Oneday/undia

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  • What's the rush
Re: i am undetectable
« Reply #79 on: October 20, 2014, 07:37:45 pm »
 ;D great!
Positive nov/08. Vl 15,000 cd 400
12/08 start treatment ( norvir, truvada,reyataz)
07/12 und/cd 575/42%
12/12 start Stribild
01/13 one month on stribild cd 715/35 %
2/13 725/47% UND
08/13 709/45% UND
01/14 850/44% UND
08/14 1,200/45% UND

Offline Irish Eyes

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  • Member
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  • A closed mind is a beautiful thing to lose
Re: i am undetectable
« Reply #80 on: October 20, 2014, 07:46:13 pm »
Now go cover that bare ass.
Can't have you getting a chill now.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline zach

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  • Posts: 3,493
Re: i am undetectable
« Reply #81 on: October 27, 2014, 04:13:14 pm »
compulsions, addictions, patterns of behavior. all the labels work. as i recover they come rolling back in like the tides. i'm strong enough to be hungry i guess

i've done pretty well for a few years now off bipolar meds

haven't exactly been a choir boy with opiates

when i feel too energetic, i fear manic episodes. very self destructive. hyper sexual, heavy drug use, usually ends poorly

just getting that off my chest, i'm doing ok holding things at arms length






*i miss you irish, you bastard


Offline absopozilutely

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Re: i am undetectable
« Reply #82 on: October 29, 2014, 12:14:23 am »
compulsions, addictions, patterns of behavior. all the labels work. as i recover they come rolling back in like the tides. i'm strong enough to be hungry i guess

i've done pretty well for a few years now off bipolar meds

haven't exactly been a choir boy with opiates

when i feel too energetic, i fear manic episodes. very self destructive. hyper sexual, heavy drug use, usually ends poorly

just getting that off my chest, i'm doing ok holding things at arms length

Thinking of you :)






*i miss you irish, you bastard
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline zach

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  • Posts: 3,493
Re: i am undetectable
« Reply #83 on: October 29, 2014, 01:08:24 am »
i'm ok yall, really... i know there is a new member closer to it than i've been in years

some of this for me, just stuff i think about. sometimes it bangs around in my head a little louder than other times. you can never escape yourself, i know some of my demons will rise again

thats been a twentyfive year fight for me. the heaviest bleeding was a long time ago

Offline zach

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Re: i am undetectable
« Reply #84 on: October 30, 2014, 11:16:12 am »
Next week I have a neurologist appt. Don't really know what to expect and plan to just jump in and go with the flow. Any pointers on what to expect/how to prepare? Wasn't given any instructions, so I assume I'm good to go.

I anticipate a review of the MRI I had a couple weeks ago, compared to the one I had in March. I certainly hope the lesions on my brain are gone. The second MRI was brain only, they didn't look at my spine. Those lesions were much more distinct, even to my untrained eye. It has really frustrated me that myelopathy has been pretty much ignored and untreated.

I really hope to get out of sick/recovery mode starting next year. The recent thread about going back to work off SSD has me a little worried. No decision yet on my course of action.

Offline Miss Philicia

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Re: i am undetectable
« Reply #85 on: October 30, 2014, 02:04:17 pm »
What exactly are you being referred to the neurologist for?

My only pointers/instructions are the same for going to any specialist: make notes. It depends on what you are seeing the specialist for. Generally your GP can write up/print out what are called "Progress Notes" if your clinic is properly electronic in their record keeping. It will show a history of present illness with attendant details/summary of doctor's relevant notes, etc. A past medical history, past surgical history, medication list, allergy list, family medical history, social history (alcohol, drug use, etc.), immunizations, vitals, physical examination notes, assessment with medical codes, and treatment plan (btw, if you wonder why I am so detailed I just happen to still have the manila folder of all the paperwork I took to my first neurologist visit. My neurologist was a personal friend of my HIV doctor and he knew that the guy was a strong stickler for paperwork)

Otherwise I also received a letter before my appointment from the neurologist office specifying clearly that I was to also bring "reports from the referring physician, pathology report, X-ray, MRI/MRA, CAT scan films"

At the end of the day after I fussed and fussed about gathering all of this information, which including traipsing into the dungeon of a hospital downtown for copies of ancient EMGs from 2011 that for some reason my podiatrist no longer had copies of, my neurologist barely looked at much in there save perhaps my most recent 2013 EMG report, the "summary/interpretation" portion of which he laughed at and then said "Oh, this man once took a class of mine!"

The rest of our session consisted entirely of a ~30-40 minute verbal interview and assessment, with the exception of some brief reflex crap with some metal instruments.

ps: Am I reading correctly below that you have been mountain climbing recently? Is your neuropathy that much improved now?
"Iíve slept with enough men to know that Iím not gay"

Offline zach

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Re: i am undetectable
« Reply #86 on: October 30, 2014, 03:23:33 pm »
What exactly are you being referred to the neurologist for?

Why? I'm assuming the lesions on my brain and spine, and mostly the way I walk.

Neuro is inhouse at my clinic, and the clinic is affiliated with the hospital I was in, so they have all my records (at least going back to dx). I've had a couple assessments by members of that team, I did expect at least the touch/reflex appreciation tests. I've been doing those to myself, at this point there are only a few places I don't fully feel touch on feet and hands. Reflexes are still sensitive, a simple knee tap causes my whole body to jolt.

In hospital last March they spent quite a bit of time with me. The last time a woman walked around the clinic with me, we talked about the way I step, what my body is doing when I'm not walking correctly. She gave me exercises and stretches to do, and I've been more than diligant with that.

Mountain climbing? Nah, a day hike. No ropes, nothing technical, just a trail up a tall hill. Maybe symantics, but a whole different beast to me. I did less than 5 miles that day. Still, first I've done that much in over a year. And it felt great.

As far as pain. It has improved, significantly. Some part of me is convinced I actually feel better after pushing through it. If I exert myself, pump the muscles and really work, a few days can go by with less shooting pains. Tends to get worse after I've been still; sitting, or sleeping.

Normal motion is what I'm reaching for. I'm still working against a lot of spasticity of the muscles. Numbness, cold, or just stiff, it's hard to describe. I've been able to get my full range back with a lot of daily stretching. Most of my muscles I can relax on my own now.  My legs don't jerk around anymore when I move, but the motion isn't exactly graceful.

I can't run, not even jog. When I increase my pace, it all falls apart.
 
Really MsP, when these issues first started up, you gave me one piece of advice. Probably more true than anything anyone has told me.

Give it time, and I have been

Offline Miss Philicia

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Re: i am undetectable
« Reply #87 on: October 30, 2014, 04:29:55 pm »
Why? I'm assuming the lesions on my brain and spine, and mostly the way I walk.

Sorry, zach -- somehow I missed that you were dealing with all of that. Must be buried in this thread somewhere and all. I only recalled your neuropathy issues and our discussion of same. But still, 5 miles is nothing to sneeze at never mind the speed. I'm lucking to manage walking 1.5 miles in one take. It's a long slog, but I assume things will improve for me at some point and they will for you too.

Good luck with your appointment.
"Iíve slept with enough men to know that Iím not gay"

Offline zach

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Re: i am undetectable
« Reply #88 on: October 30, 2014, 04:34:21 pm »
nah, i had another thread i kept most of this in, but i let it die off. i'll keep all my treatment related issues in this thread from now on.

when i was in hospital, i had three mri's brain, spine, and lungs. the lesions on my brain were faint, on the frontal lobe. the lesions on spine were distinct. my right lung... well, its wrecked

*edit to add a link for my own use really, that thread is pretty much dead
http://forums.poz.com/index.php?topic=53555.msg631679#msg631679
« Last Edit: October 30, 2014, 04:41:58 pm by zach »

Offline tryingtostay

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Re: i am undetectable
« Reply #89 on: October 30, 2014, 09:41:09 pm »
I too didn't know you were dealing with so much.  What really hit  me was you say "at this point there are only a few places I don't fully feel touch on feet and hands"  Last thing I really recall was the hiking you did and the walk you had with your dog.   

Offline Jeff G

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Re: myelitis anyone
« Reply #90 on: October 30, 2014, 10:09:07 pm »
nah, i had another thread i kept most of this in, but i let it die off. i'll keep all my treatment related issues in this thread from now on.

when i was in hospital, i had three mri's brain, spine, and lungs. the lesions on my brain were faint, on the frontal lobe. the lesions on spine were distinct. my right lung... well, its wrecked

*edit to add a link for my own use really, that thread is pretty much dead
http://forums.poz.com/index.php?topic=53555.msg631679#msg631679

I merged it all into one for you .
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline zach

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zachs treatment thread
« Reply #91 on: October 30, 2014, 10:51:49 pm »
thanks jeff, i changed the subject title as well, hope that doesn't wonk anything up

hey kids (the noobs, not yall that know) what jeff just did for me, merging my treatment threads, serves a few purposes.

one, makes it easier for me to backtrack the timeline for dates of hospital, various procedures. thats the self serving part.

for yall, i'm sort of a near worst case example of what not to do, and what can go horribly wrong if you do. i can live with being a bad example, at least i'm living.

it also helps to be able to follow along with what each of us is going through. so when the mods tell you to keep in your own thread, there really is a reason

lesson i hope people take from my experience

take your meds, just take them. this is good advice, shut up, calm the fuck down and take a deep breath. go slow, there is no rush to do anything. i lost it early, when really i was in better control than i thought. it took a lot of effort to regain a grip mentally and by that time i was faced with salvaging my physical health next.

couple times of single digit cd4s, couple stays in a hospital... that puts things in stark perspective. it was a wake up call to fight back.

i say near worst case. i'm alive. i came back from it. don't follow me down that hole. life is a one take shot, make it count

this forum has lost members who went off meds, and stayed off. they died yall. it is personal to many in here. so when we swoop in harping about your meds... remember it comes from a good place. nobody wants to see that happen again.

its taken me nearly five years to fully process and move past the newly diagnosed phase. i'm living with it now, and i know i will continue to.
« Last Edit: October 30, 2014, 10:57:50 pm by zach »

Offline Miss Philicia

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Re: myelitis anyone
« Reply #92 on: October 31, 2014, 07:19:32 am »
Thanks, now I'm really going to get confused.
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

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Re: myelitis anyone
« Reply #93 on: October 31, 2014, 08:39:09 am »
Zack, I identify with being the do not try this at home guy . With few exceptions I never read much on this forum I haven't felt or dabbled in myself ... Hot mess and HIV positive are not a good combo LOL .   
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline zach

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Re: zachs treatment thread
« Reply #94 on: October 31, 2014, 08:54:02 am »
yall don't get confustifated now, like i said i've got my own reasons for this.

jeff, don't merge anything else, i can find them here easy enough... hot mess, smh, that phrase has always made me laugh

1st post, September 24, 2010http://forums.poz.com/index.php?topic=34532.msg429641#msg429641
background story about billy, January 11, 2011
http://forums.poz.com/index.php?topic=36147.msg450019#msg450019
asking for help, December 07, 2011
http://forums.poz.com/index.php?topic=40996.msg509614#msg509614
venting frustrations, April 10, 2012
http://forums.poz.com/index.php?topic=42842.msg530538#msg530538
humble apology, December 25, 2013
http://forums.poz.com/index.php?topic=51970.msg617762#msg617762
who in hope, believed against hope, February 28, 2014
http://forums.poz.com/index.php?topic=52933.msg626029#msg626029
weird leg muscle thing, March 13, 2014
http://forums.poz.com/index.php?topic=53118.msg627627#msg627627
zach's in hospital, March 28, 2014
http://forums.poz.com/index.php?topic=53344.msg629534#msg629534
myelitis/undetectable/treatment thread, April 14, 2014
http://forums.poz.com/index.php?topic=53555.msg631679#msg631679



Offline Buckmark

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Re: myelitis anyone
« Reply #95 on: October 31, 2014, 09:53:18 am »
Zach,

As they used to say in the '60s and '70s:  You've come a long way, baby!

(Wasn't that an ad for cigarettes -- Virginia Slims, or something silly like that? Miss P will tell us)

Gawd, I shudder to think back at all the threads documenting my trials and travails: meds, depression, shingles, Bell's palsy, lymphoma).  OyÖ

Cheers,

Henry
« Last Edit: October 31, 2014, 09:55:34 am by Buckmark »
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Miss Philicia

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Re: myelitis anyone
« Reply #96 on: October 31, 2014, 12:59:11 pm »
Miss P will tell us

Seriously girl, you got me on the brain today or what?
"Iíve slept with enough men to know that Iím not gay"

Offline zach

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Re: zachs treatment thread
« Reply #97 on: November 05, 2014, 07:28:03 am »
neuro here i go

notes compiled, only have a few questions, physically stronger than i've felt all year

only lingering anxiety are the lesions on my brain, if he tells me they're gone, cause for celebration

yall wish me luck. i'm feeling great, but thats usually when i look for the other shoe to fall

the cheese puts me in a good mood
https://www.youtube.com/watch?v=869OMmrMLdU

Offline tryingtostay

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Re: myelitis anyone
« Reply #98 on: November 05, 2014, 08:49:00 am »
good luck, Zach.  let us know how it goes

Offline mitch777

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Re: myelitis anyone
« Reply #99 on: November 05, 2014, 01:38:23 pm »
Best of luck Zach!
33 years hiv+ with a curtsy.

 


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