Welcome, Guest. Please login or register.
January 23, 2018, 05:07:21 AM

Login with username, password and session length

  • Total Posts: 725444
  • Total Topics: 59143
  • Online Today: 302
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 2
Guests: 225
Total: 227


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: First regement - scared  (Read 3505 times)

0 Members and 1 Guest are viewing this topic.

Offline shinebrightly

  • Member
  • Posts: 3
First regement - scared
« on: October 23, 2006, 03:35:56 AM »
Hi everyone.

My doc tells me now is the time. CD4+264  CD4+%16  VL 58000.

Sustiva and Truvada is what he is recommending. We've discussed my concerns about the CNS side effects of efavirenz. Any tips on the beginning?


Offline sunflower99

  • Member
  • Posts: 18
Re: First regement - scared
« Reply #1 on: October 23, 2006, 04:33:30 AM »

Im in exactly the same situation as you, I was told last month by my doctor that its getting time to start. I will have a new test in 2 weeks to confirm. My numbers were almost the same as yours. I was also recommended Truvada and Sustiva (stocrin around here). I am just very worried because I am a single mom to small children and Im concerned with this "drunken" feeling people have described.

Love S

Offline shinebrightly

  • Member
  • Posts: 3
Re: First regement - scared
« Reply #2 on: October 23, 2006, 04:48:56 AM »
Thanks sunflower.

I like the odd beer, but am really worried about the "dizziness" and "Lack of concentration" like you. My job is all about problem solving.

Being a mom you need your wits about you all the time (more than I do for sure!).

When I need to go on the meds, I'll try to take time off work - a few days. Do you have a baby sitter you can get in for the adjustment time?


Offline Cliff

  • Member
  • Posts: 2,645
Re: First regement - scared
« Reply #3 on: October 23, 2006, 06:06:36 AM »
You don't have to take the regimen the doctor wants to put you on.  There are plenty of options available, so for example you could go on another popular first regimen like Reyataz (boosted with Norvir) and Truvada (Viread and Emtriva combined into one pill).  All combos will have side effects, but this one won't have the CNS side effects that are common to Sustiva.  And that are more examples like that.  Talk to your doctor about your work requirements and whether or not Sustiva is really appropriate given this.

Alternatively you can try the combo out and see how things go and then switch after giving it a month or so.  Generally the side effects will lessen over time....so you won't always feel like you feel when you first start taking Sustiva.  Just make sure you take it before going to bed and on an empty stomach and that should lessen the impact of the CNS side effects.

Offline SoSadTooBad

  • Member
  • Posts: 259
Re: First regement - scared
« Reply #4 on: October 29, 2006, 01:23:20 PM »
Shine - don't let Sustiva scare you...  I have been taking it since June 2006, along with Combivir - results have been excellent, with CD4 count rising from 78 to 226 in 3 months.  I take the pills faithfully, but I do have a drink or two about three nights a week, and I don't always take Sustiva on an empty stomach. 

If you take Sustiva right before bed, you should be fine.  I get a little warm after I take it sometimes, and a little dizzy - but not always, and it seems that high carb meals make the effect stronger for me, not high fat meals as it happens in others.  Overall, it has worked out great - I find myself able to function normally about 2-3 hours after I take it, and there is no 'hangover' in the morning. 

My job is in sales, so there is lots of client interaction and some financial aspects that require a sharp head - Overall, my mind is far sharper since I started treatment because the fatigue is gone, and I am no longer bothered by constant fever, sore throats and the other general shit that goes with a low CD4 count. 

Keep me mind there will be considerable upside to the drugs - even if there are some side effects to be managed.  You are now used to living with a huge drag on your system, which once controlled, can give you a huge boost.

Best of luck...

Offline Bizmark33

  • Member
  • Posts: 60
Re: First regement - scared
« Reply #5 on: October 29, 2006, 01:42:18 PM »
I, too, am supposed to start Sustiva+ Commbivir soon, and m worried about the side effects. good to know the long term can outweigh the short-term.  I have my first prescription filled, but waiting till I take my physical for a new job to start taking them. So, far I will start that day.

Offline gabbyny

  • Member
  • Posts: 10
Re: First regement - scared
« Reply #6 on: October 29, 2006, 08:12:27 PM »
Good luck to all you folks. I did not take my doc's recommendation to start on Sustiva and with a PI regiment (Kaletra). I had a rouhg time getting that right. As my cholesterol began to spike he asked me to consider the Sustiva Truvada combo (now in one tab Atripla in US). Some initial dreams and wooziness the first 3 or 4  mornings, but I started on a weekend so it helped. Since then (over 15 months now) nothing to speak of side effect wise and good CD4 and T-Cell numbers. Others have terrible war stories about Sustiva, but in my case I wish I had at least given it a try first time around. I could have saved myself a alot of side effect problems.

Offline blondbeauty

  • Member
  • Posts: 1,787
Re: First regement - scared
« Reply #7 on: October 30, 2006, 09:58:22 AM »
For me Sustiva is a blessing. I have never slept better in my life. I love Sustiva. I love Bristol Myers Squibb. I love Gilead Sciences...even though I am not undetectable yet.  ;)
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.