Welcome, Guest. Please login or register.
November 22, 2017, 09:36:37 PM

Login with username, password and session length

  • Total Posts: 722671
  • Total Topics: 58734
  • Online Today: 342
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 4
Guests: 255
Total: 259


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Ah, neuropathy  (Read 3571 times)

0 Members and 1 Guest are viewing this topic.

Offline aztecan

  • Member
  • Posts: 5,517
  • 32 years positive, 60 years a pain in the butt
Ah, neuropathy
« on: July 03, 2013, 10:18:28 AM »
My legs are causing some consternation.

They ache almost constantly now, making life less than grand.

I am going to go back up to the maximum dose of naproxen the doctor will let me take to see if that helps.

I had cut down to preserve my stomach, but . . .

On the work front, the state has scheduled a training for the new expanded Medicaid (sorry you southerners are being left out in the cold) and the new insurance exchange.

The training lasts for five days. It is mandatory that I attend, not that I wouldn't anyway.

It also takes place the last week in September, right before we start enrolling people in these new programs.

Should be interesting, to say the least.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Calison

  • Member
  • Posts: 22
  • Struggling for 30 + years Ready for Next Big Leap!
Re: Ah, neuropathy
« Reply #1 on: July 03, 2013, 11:32:54 AM »
Sorry that The Neuropathy  is rearing its painful self for you.

 When I switched some HIV meds and It became less pronounced. I tried many things before the switch including cayenne pepper oil,Tramadol,Lidocaine patches,and the drug you mentioned you are using and those things helped a small bit however when on my feet for any period of time it was more pronounced but was also awful at night just lying in bed.
 Now With the newer med I seem to be able tolerate the lessened pain I experience better without the other meds. I still feel it and the burn down the side of my legs is there but the knife/needle sharp feelings in my toes and feet and fingers has also lessened and it has become tolerable. I am amazed this happened for me. The Burning along the side of my legs is still there however at this point I am not needing any med for it. The Numbness is there in my fingers and sometimes things slip through the fingers. Opps :-[

I hope you can find relief and stomach settles down. The meds can do a number on my stomach as well.  It is a difficult thing this neuropathy. Best of luck in your planning sessions.
We are all in the gutter, but some of us are looking at the stars. ~ Oscar Wilde

Offline J.R.E.

  • Member
  • Posts: 7,540
  • Joined Dec-2003 Living positive, since 1985.
Re: Ah, neuropathy
« Reply #2 on: July 03, 2013, 11:56:57 AM »

Sorry to hear about the legs and the neuropathy, I hope you get some relief from the naproxen. I understand hoe painful it can be.

On the work front, the state has scheduled a training for the new expanded Medicaid (sorry you southerners are being left out in the cold) and the new insurance exchange.

The training lasts for five days. It is mandatory that I attend, not that I wouldn't anyway.

It also takes place the last week in September, right before we start enrolling people in these new programs.

Should be interesting, to say the least.

Remember that invention, that scrambles eggs inside the shell,..Well,  sometimes my brain feels that way, trying to sort out all this ACA , Ryan White and health exchanges.... I get a headache thinking of it.

Have you seen the following Webcast? It's over an hour long, but I am going through it a little at a time.
I am not sure if this link works, but if it ask for a register and sign in just , just use Ryan White, and your state.

See if this link works.... please take care of yourself...


This web cast was from 6/25/13. You may find it informative. I may have to watch this a couple of times, and let Ed watch it , to tell me what I missed !

Take care---Ray

Current Meds ; Viramune, Epzicom, 20mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 9/24/2017

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 9/18/2017,  Viral load remains <40
CD 4 @358 /  CD4 % @ 13

 65 years young.

Offline pozniceguy

  • Member
  • Posts: 1,232
  • Niceguy Dallas
Re: Ah, neuropathy
« Reply #3 on: July 03, 2013, 03:14:33 PM »
Mark   so  sorry  to hear  about the  Neuropathy  flare up.... mine used to be all the  way to the  knees   and  could not  set a foot  down  without something padded  underneath.... once I was  changed to the  prezista    it  has  gradually  settled  down  to the feet  and  is  worst  when just getting up in the  morning ..so  I am  convinced  that the  med  change did  something  to  break the  cycle   most of the  specific  meds  (  like  Neurontin  did  little or  nothing  so  stopped them  long ago)

have'nt  found any  real  data  that says  the  med change   works  just telling you it  sure made a difference  for me

remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,785
Re: Ah, neuropathy
« Reply #4 on: July 04, 2013, 05:26:35 AM »
Ah Mark,

As I'm sure you know, I've posted a lot about the issues I've had with neuropathy.  So I can sympathize with you.  Mine was started with the early meds, aggravated by uncontrolled diabetes, and still bothers me.  I was just telling a friend last night, when I cross my left leg over my right, my right foot feels like it's on a hot plate.  Anyway, I'm sorry you're going through this.  I'm on Lyrica, and the doctor just added Cymbalta.  I also take Celebrex, though have cut this back to every other day.  Please keep at least me, updated on how the Naproxen is doing. 

I also have a training in September on the new health care law, but our training is only a day.  I hate those multiple day long trainings, ugh.  Good luck; I know the information is welcome, but the trainings themselves can suck. 

You and I should exchange numbers and I could pick your brain on being in case management for as long as you have, while being positive.  I'm coming up on my third year, and know you've been in this much longer.  I'm going to pm you my number.  Thanks Mark, for always posting interesting info. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info http://www.aidsmap.com/Condoms/page/1044833/
Please check out our lessons on PEP and PrEP. http://www.poz.com/factsheets/fs_2014_09_prep.pdf


Offline bear60

  • Member
  • Posts: 4,105
Re: Ah, neuropathy
« Reply #5 on: July 04, 2013, 03:11:59 PM »
Hey there! 
I feel for you Mark.  Hugs.
Poz Bear Type in Philadelphia

Offline wolfter

  • Member
  • Posts: 5,470
Re: Ah, neuropathy
« Reply #6 on: July 04, 2013, 10:09:00 PM »
I don't envy you be required to understand all the details first.  Neuropathy is not something I've experienced first hand but am sending you positive thoughts.
Being honest is not wronging others, continuing the dishonesty is.


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.