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Author Topic: Skin problems a nuisance, uncomfortable, and expensive to treat:  (Read 1597 times)

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Offline jm1953

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Skin problems a nuisance, uncomfortable, and expensive to treat:
« on: December 16, 2012, 11:37:13 PM »
Seem to be spending alot of time and money at the dermatologist the past three years.  Due to alot of sun exposure while living in Hawaii, but mostly the virus, skin cancers, folliculitis, a rare condition called Grover's Disease, weird rashes, lipoatrophy of the face, you name it, I got it.  All together they actually control my life and what I can and can't do.  Since I am a long termer, my primary and derm have given me a major arsinol of topicals and antibiotics to keep outbreaks at bay.  Sculptra and botox are a huge expense to keep my face looking normal.  And the treatments for the skin cancers and other stuff, well no fun.  Not to complain, but I'm trying to get myself to a place where I can just get on with life while continuing necessary treatment, not let it all control my life.  I've brought skin problems up before on this forum, but I am about at my wit's end with this stuff, both emotionally and financially.  I'm sure there must be others having issues like this.  Would love to hear your stories and how you are coping with it. 
Thank you all,
Positive 29 years. Diagnosed 10/1987.  Current CD 4: 720: Viral load: almost 100.  Current drug regimen, Tivicay, Emtriva, Endurant, Wellbutrin, Clonazepam, Uloric, Losartan Potassium,Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline Ann

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Re: Skin problems a nuisance, uncomfortable, and expensive to treat:
« Reply #1 on: December 17, 2012, 06:07:18 AM »
I had severe eczema as a baby, kid and teen (which contributed to being bullied) so I can empathise with how skin issues affect you emotionally.

Have you considered seeing a counselor or therapist with whom you could work through some of the emotional aspects of this? I did, and it helped immensely.

I was lucky in that I eventually outgrew the eczema by my mid twenties, but the emotional scars and low self-esteem took longer to come to terms with. If I hadn't had the counseling, it would probably be something that still haunted me.
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Offline elf

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Re: Skin problems a nuisance, uncomfortable, and expensive to treat:
« Reply #2 on: December 18, 2012, 01:40:48 PM »
I get nonpurulent red bacne once a month, but everything goes away after a day or two (or even within a few hours if I apply vinegar).
I haven't been able to link to any specific cause.  :o
« Last Edit: December 18, 2012, 01:45:54 PM by elf »
Getting used to my breakfasts with a pill of Complera.


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