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Author Topic: HIV-Survivor?  (Read 1981 times)

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Offline Common_ground

  • Member
  • Posts: 292
« on: August 01, 2012, 01:11:20 PM »
Hello all!
This little thing just hit me and I need to get some feedback.....

People who are diagnosed post -96 and call themselves HIV survivors.

Could I call myself a HIV survivor?
I dont feel like a survivor because death isnt imminent, at least I try to tell myself that. Maybe if I had AIDS and were in the hospital the term would fit.

It feels very strange especially since the odds are quite favorable on my side to live. I mean you could call yourself a survivor if you survived a plane crash or by some incredible luck you survived a catastrophe, me thinks.

I can understand "long term (HIV) survivor" (dx pre -96) that makes sense to me. But HIV-Survivor, what am I missing here? ???

Anyone else met people using it or do you use it yourself (for post -96 dxed)
2011 May - Neg.
2012 June CD4:205, 16% VL:2676 Start Truvada/Stocrin
2012 July  CD4:234, 18% VL:88
2012 Sep  CD4:238, 17% VL:UD
2013 Feb  CD4:257, 24% VL:UD -viramune/truvada
2013 May CD4:276, 26% VL:UD

2015 CD4: 240 , 28% VL:UD - Triumeq
2015 March CD4: 350 VL: UD

Offline Billy B

  • Member
  • Posts: 385
Re: HIV-Survivor?
« Reply #1 on: August 01, 2012, 01:59:01 PM »
Hello Common- I am just "living" and that is OK with me. I do fall into the LTS group but I don't really like labels. At almost 57 I have outlived most of my friends and only a few of them passed from AIDS.
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13
VL  UD   CD4 450 CD4% 29.8 09/10/13
VL  UD   CD4 430 CD4% 31.0 04/29/14
VL  UD   CD4 520 CD4% 34.8 11/05/15
VL  UD   CD4 440 CD4% 33.5 03/10/15
VL  UD   CD4 450 CD4% 30.5 08/23/16

Offline mecch

  • Member
  • Posts: 13,386
  • red pill? or blue pill?
Re: HIV-Survivor?
« Reply #2 on: August 01, 2012, 02:13:41 PM »
I get your point - its about semantics or language.  But what does it matter to you how other people label themselves.  Like you I don't consider myself having "survived" HIV but if some other HIV+ person likes that label, have at it.  For one, they may really feel like survivors.  Or, they may not be concerned about accuracy in language.  It might mean the same to them as the term PLHIV - person living with hiv.

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Mishma

  • Member
  • Posts: 234
  • HIV drugs are our Allies but hardly our Friends
    • Marquis de Vauban
Re: HIV-Survivor?
« Reply #3 on: August 01, 2012, 02:30:25 PM »
I consider myself a long term HIV sufferer but I try not to let the suffering get in the way of living.
2016 CD4 25% UD (less than 20). 30+ years positive. Dolutegravir, Acyclovir, Clonazepam, Lisinopril, Quetiapine, Sumatriptan/Naproxen, Restasis, Latanoprost, Asprin, Levothyroxine, Restasis, Triamcinolone.

Offline bmancanfly

  • Member
  • Posts: 761
  • Medicare For All !
Re: HIV-Survivor?
« Reply #4 on: August 01, 2012, 04:42:51 PM »
The nomenclature of this website is a little convoluted as it relates to survivors,  but never the less,  why not just live your life without a label.
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Online leatherman

  • Member
  • Posts: 7,291
  • Google and HIV meds are Your Friends
Re: HIV-Survivor?
« Reply #5 on: August 01, 2012, 06:35:31 PM »
A person who survives, esp. a person remaining alive after an event in which others have died: "the sole survivor of the massacre".
The remainder of a group of people or things.
don't you have to actually overcome something to be a "survivor"?

After 27+ yrs of being HIV+, I haven't really "survived" HIV yet, I'm still "living with it".
However I am definitely an AIDS-survivor, as I've overcome that 3 or 4 times ;)
leatherman (aka mIkIE)

All the stars are flashing high above the sea
and the party is on fire around you and me
We're gonna burn this disco down before the morning comes
- Pet Shop Boys

chart from 1992-2015

Offline eric48

  • Standard
  • Member
  • Posts: 1,361
Re: HIV-Survivor?
« Reply #6 on: August 01, 2012, 06:41:26 PM »
Just another sexually transmitted condition that ultimatly ends up with death:

Life itself

(and you get a bonus badge for transmitting it ;-)

NVP/ABC/3TC/... UD ; CD4 > 900; CD4/CD8 ~ 1.5   stock : 6 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: Clin. Trial NCT02157311 = 4days ON, 3days OFF ; 2015: https://clinicaltrials.gov/ct2/show/NCT02157311 ; 2016: use of granted patent US9101633, 3 days ON, 4days OFF; 2017: added TDF, so NVP/TDF/ABC/3TC, once weekly


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