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Author Topic: stressing big time  (Read 3741 times)

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Offline johnnyl

  • Member
  • Posts: 35
stressing big time
« on: June 15, 2012, 07:08:18 PM »
Still waiting for my CD4 count but got the viral load test back and it was 174,000...
Is that bad?? I dont feel sick at all, have a mild case of thrush, doc says not to worry about it though... Its just on the tongue.

I am still trying to grasp this whole thing. My doc wants me to get on treatment right away. At first he prescribed me  Atripla, but has changed it to Truvada + Insentress and some other med, not sure what it is called... Anyone on Truvada + Insentress and how are the side effects??  Some feedback would be great.
Tested Poz May 22nd 2012
CD4      VL            %    6/20/12
4         226000       5
258      800           13    8/23/12
293      <20           17    10/19/12
306      <44           17    12/31/12
398      101           18     2/27/13
607      <20           21     2/28/14

Offline WillyWump

  • Member
  • Posts: 7,367
Re: stressing big time
« Reply #1 on: June 15, 2012, 07:21:44 PM »
Hey Johnny, welcome aboard.

First of all just relax, you are going to be just fine. Really you are.

Kinda hard to comment on since you dont have your CD4 back but 174k is about where my VL was when I started meds, and went to undetectable within a year or so. You will go UD also at some point provided you adhere to your regimin.

I've not been on your exact regimin but have taken the Truvada part of it and found it very tolerable, and extremely effective. I'm sure someone who is taking your regimin will be along shortly to give you some better feedback...

Again, welcome.

POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir

Offline Mrmojorisin

  • Member
  • Posts: 222
    • My Blog
Re: stressing big time
« Reply #2 on: June 15, 2012, 10:03:58 PM »
Welcome Johnny,
 Like Willy said, relax. My initial VL was 353,000. I am on Norviar, Truvada, and Prezista. After just two weeks on the meds my VL dropped to 4970. I had a couple of bouts with thrush, but it covered the whole inside of my mouth..The only side effect I seem to have is a bit of the runs once in a while and some gas..but my doc had warned me about them..
 Stay here and ask whenever you have any concerns. I have only been here a short while, but I know this is a great group of folks with some fantastic admins...

Started Meds On 5/1/2012 Norvair, Truvada, Prezista, and Bactrim

4/17/2012--CD4 83/ VL 353,000  7.0%
5/15/2012--CD4 218/ VL 4,970    14.1%
6/27/2012--CD4 146/ VL 420      6.1%
10/11/2012-CD4-223/ VL-62       9.5%
2/14/2013--CD4-215/ VL-119      13.6%
7/3/2013---CD4-256/ VL-UD       18.0%
10/18/2013 CD4-223/ VL-UD       22.2%
01/23/2014-CD4-381/VL-UD       25.3%--Dropped the Bactrim
05/01/2014 CD4-370/VL-UD       23.5%
01/08/2015 CD4-455/VL-UD       28.7%
06/18/2015 CD4-422/VL-UD       31.9%
01/07/2016 CD4-275/VL-UD       31.3%
02/10/2016 Switch meds to Tivicay and Truvada
04/25/2016 CD4-426/VL-UD        34.1%
07/14/2016 CD4-414/VL-UD        38.0%

"arrrrhhhhh ahhrrhhhhh aaaarrhhh"- Chewbacca

Offline johnnyl

  • Member
  • Posts: 35
Re: stressing big time
« Reply #3 on: June 16, 2012, 12:24:17 PM »
thanks for your responses... This forum is awesome and all of you HIVers are such a big help mentally.
Tested Poz May 22nd 2012
CD4      VL            %    6/20/12
4         226000       5
258      800           13    8/23/12
293      <20           17    10/19/12
306      <44           17    12/31/12
398      101           18     2/27/13
607      <20           21     2/28/14

Offline emeraldize

  • Member
  • Posts: 3,398
Re: stressing big time
« Reply #4 on: June 16, 2012, 04:45:51 PM »
Hey Johnny,

Welcome. I'm on Isentress/Truvada solely. Only regimen to date, started in late 2010. No issues, save for flatulence initially which all calmed down.

I dropped to UD (undetectable) immediately, but my VL was always unusually low since diagnosis. It was the downward trend in CD4 that indicated treatment was due. Slow but sure, my CD4 count has risen and VL has remained UD since.


Offline Cojo

  • Member
  • Posts: 224
Re: stressing big time
« Reply #5 on: June 16, 2012, 10:53:30 PM »
Hi Johnny,

Welcome to the forums and I am glad you found us and we found you! My initial VL a year ago was 182,000 and once I started Truvada and Isentress (3 months after diagnosis), I went to undetectable in just over a month on meds.

 I spent many a sleepless night worrying about all of the " what if's" of side effects and I can tell you - DON'T because in retrospect it was a huge waste of time! I had zero side effects and have had zero to this day. These are ultra modern, powerful meds that really do work!

These forums are packed with the best information you'll find on the net from the most compassionate and caring people around. Many have lived through decades of hell to finally find stability and wellness in this era; they truly are my heroes.
May 2011 - Tested Positive
June 2011 - CD4 330   16%   VL182,000 no resistance
Oct 6, 2011 - CD4 300  20%  VL 60,000
Oct 7, 2011 - start Truvada / Isentress
Nov 29, 2011 CD4 280 26% VL 54
Feb 7 2012 CD4 260 25% UD!
Mar 20 2012 CD4 400 28%
June 2012 CD4 330 26% UD
Sept 2012 CD4 450 32% UD
Dec 2012 CD4 310 28% UD
May 2013 CD4 500 32% UD
Oct 2013 CD4 460 33% UD
May 2014 CD4 360 33% UD
Aug 2014 swap out Isentress for Tivicay
Oct 2014 CD4 320 33% UD
Feb 2015 CD4 420 30% UD
Jul 2015 CD4 480 32% VL51 !!
Sep 2015 UD
Feb 2016 CD4 460 35% UD
Aug 2016 CD4 378 33% UD

Offline Matham

  • Member
  • Posts: 4
Re: stressing big time
« Reply #6 on: June 18, 2012, 11:56:02 PM »
100,000K + isn't much to fret about.

A few weeks ago, a new guy came to my support group; when he was diagnosed just a month ago, he had a viral load of 1.5 million and t cells of 150; that's full blown.

Right now, the fear you have is very real and very understandable, but you're addressing it, not ignoring it and that's commendable.


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