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Author Topic: Update on my stomach cramp/bloating post  (Read 1585 times)

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Offline surf18

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  • Posts: 532
Update on my stomach cramp/bloating post
« on: May 31, 2012, 02:19:13 PM »
Had endoscope and colonoscopy done today .Dr suspects u. colitis.
Terrible news if true. The drug he told me to take and thank god I did research on it before I popped it in my mouth is an immussupressant. Who with HIV would take one of them? WTF? So the treatment of the UC destroys the treatment goals of the big disease I have. I have texted my ID dr, I haven't heard from that slacker yet.
They took biopsies and want to have me meet with them in 4-6. Hell on wheels waiting a month plus for results. Talk about ruining another summer  as freaking HIv ruined the summer of 2010. ok enough venting. Its good to come here because no one in my world can understand the feelings that Im going tru right now, not a single person but you guys/girls on here.

Offline denb45

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  • Posts: 5,053
  • "1987 Classic Old School POZ+"
Re: Update on my stomach cramp/bloating post
« Reply #1 on: May 31, 2012, 02:51:49 PM »
Surf, were you referred to a G.I. doctor or a GI clinic?

I have been seeing one for the last yr. or so
and I have SIBO =  Small Intestinal Bacterial Overgrowth....

My G.I. Doc has told me, that he cannot do anything to fix my G.I. problems
however, he can treat them w/ different antibiotics every few months

I have suffered from G.I Disease for more than half of my Adult life
and taking HIV Meds along with this can be very challenging....

it's not to end of the world, Colitis, if that what you have can be
treated just like HIV/AIDS and is manageable  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline surf18

  • Member
  • Posts: 532
Re: Update on my stomach cramp/bloating post
« Reply #2 on: May 31, 2012, 03:30:22 PM »
ugh more shit to manage!
yep i got to a g i doc in a g i clinic.
same dude that treats me for my acid reflux.

Offline deibster

  • Member
  • Posts: 159
Re: Update on my stomach cramp/bloating post
« Reply #3 on: May 31, 2012, 04:43:42 PM »
Hi Surf; It might help if you told us which anti-viral meds you are taking. I had cramps on one of the original protease inhibitors. i had 2 cat scans, in addition to the biopsies you mention & they found nothing wrong except for my reflux. After that i was on Kaletra for a few years. The cramps & runs continued.

About a year ago, I was changed from Kaletra to Prezista/Norvir, for another reason, and it was like a miracle. The cramps & runs disappeared overnight. So, you might want to ask your ID doc if he knows about intestinal side effects & if your meds are mild on the intestines. hugs from Provincetown, Deibster  ;)
Poz since Dec 1992. Meds since 1995. Disability since 2005. Constantly fighting the Lipodystrophy 'beer gut.'

Prezista/Norvir, Epzicom, Cytomel, Prevacid, Coumadin, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, Flomax, Allegra180, Nasacort, Centrum, Flax Oil, Fish Oil

Offline surf18

  • Member
  • Posts: 532
Re: Update on my stomach cramp/bloating post
« Reply #4 on: May 31, 2012, 05:38:41 PM »
i am on selzentry and truvada. the cramps came in january and then got really bad in april. thats when i finally went to the dr about it and we scd todays procedure. really for the most part the cramps are gone ,just some bloating here and there.
he took the biopsies but still told me that i had colitis and gastritis.
been on the hiv meds for a little over a year and a half.thanks


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