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Author Topic: Its been over a year.  (Read 1068 times)

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Offline hellrider

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  • Posts: 55
Its been over a year.
« on: February 14, 2012, 12:30:21 PM »
I haven't posted in a long while. I have the HIV, I started out in Dec 2010 labs were 693 with a viral load of 100,000. I started on meds in Sept. 2011 493 and 97000 vl, it seems since I started meds I have had rashes sinusitis and ear infection and sinus problems my last test showed 163 and undetectable, and I can't work because I get outside and I have so much pain from the effects of the rashes. I am mostly miserable my second doc is I feel not very good instead of looking at the skin issues she wants to look at my butt. I don't know where my bloodtest is at the moment she doesn't seem concerned about the cd4 count. I am worried about the aids thing.
At 163 do I have aids or not.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000

Offline buginme2

  • Member
  • Posts: 3,426
Re: Its been over a year.
« Reply #1 on: February 14, 2012, 01:53:12 PM »
Your post is a small bit concerning, yes. 

Can you tell us what medication regimen you are on? 

Cd4 tests are variable so one low test isnt too much to much to worry about but a drop from 493 to 163 while on meds is a bit of a concern.

The rashes could be a sign of either the medication, or immune reconstitution, or any other things.  As long as your doctor is monitoring it you should be ok.
Don't be fancy, just get dancey

Offline Hellraiser

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Re: Its been over a year.
« Reply #2 on: February 14, 2012, 03:01:37 PM »
That is an almost unbelievable drop in CD4 considering your viral load has been suppressed.  I don't know what's going on with your treatment, but you shouldn't have a consistently declining CD4 with an undetectable viral load.  Think of it this way, there is no longer any detectable amount of virus in your blood stream, so what would be destroying your CD4s?

PS: Unfortunately the answer to your question is yes, you do have AIDS, anything under a CD4 count of 200 is considered AIDS.

Offline hellrider

  • Member
  • Posts: 55
Re: Its been over a year.
« Reply #3 on: February 14, 2012, 09:04:21 PM »
I am on Truvada, once a day. Norvir twice a day. Prezista twice a day. I am also a diabetic with an A1C of 7.0 so thats good, I have looked at anemia, low iron blood is all good. So far I have asked if I have teh aids but doc won't say it, I guess I haven't had an aids defning illness as of yet.

Here is the begining I had a clogged ear in dec of 2010 feb they sent me to a hearing specialist.....Its the Veterans admin, not that great but its cheap, I have no income and insurance.  So I tried everything under the sun to unclog my ear and nothing worked. I took some suppliments still nothing my cd4 numbers were still high. I still didn't have anyway for relief of my ear, I am still not on meds at this time. July 27th I finally started getting sick from the heat because where I was working at had me in the heat 8 hours a day in a aluminum box with plexiglas windows. I finally wore down, had to quit, then it started getting worse my cd4 count went from 493 down to 240 on med by this time I think my VL was like 94 at that time then I got the skin problem like painful burns and rashes sometimes unbearable. I have finally unclog my ears after a bad reaction to benadryll. I got an anihistamine to alleviate the inflamation and a couple of nasal solutions and humidifier with an air cleaner. I still think I have had a reaction to the meds.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000


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