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Author Topic: labyrinthitis bugging me ...need help  (Read 3251 times)

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Offline karry

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labyrinthitis bugging me ...need help
« on: August 11, 2011, 05:32:17 PM »
Hi all
I had my first case of labyrinthitis in march of 2010, then had a repeat 2 months ago and as of tuesday I have been dealing with it again. I am so worried because I cannot work (my job requires some driving around as well as using a computer).

During my last two episodes, my doctor asked me to stay in bed and I had no prescription. I will be seeing him soon about this again, and I am wondering if anyone else has dealt with this before...and if so, what helped you?

Take it a day at a time....and be positive about it too!

Offline Ann

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Re: labyrinthitis bugging me ...need help
« Reply #1 on: August 12, 2011, 09:19:08 AM »
Hi Karry, that sounds awful. With it being recurring, have you had any tests done to rule out Meniere's disease? You can read about both here and here. With it happening more than once, maybe it's time you had further investigations such as CT or MRI scan of your head. I hope you get this resolved soon, it must be a real pain in the nether regions to live with. Hang in there!
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Offline emeraldize

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Re: labyrinthitis bugging me ...need help
« Reply #2 on: August 12, 2011, 09:42:42 AM »
Hi Karry,

If you've not seen this support group site, it may provide you with some additional info.

I hope you get some relief.


Offline karry

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Re: labyrinthitis bugging me ...need help
« Reply #3 on: August 12, 2011, 12:44:48 PM »
@ Ann & Em:
Thanks a lot for the links. I found them quite useful.

 I saw my doctor this morning and once more he says I have to stay in bed for a week and if it recurrs he will be sending me to do CT and MRI and to see an ear specialist as well. It sucks there is mo medication to make it go away

For now I just want to go to bed and stay there :-[
Karry the dizzy
Take it a day at a time....and be positive about it too!

Offline odyssey

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Re: labyrinthitis bugging me ...need help
« Reply #4 on: August 14, 2011, 02:18:00 PM »
Ask for a prescription for meclizine. That's the generic name. Its a great med that helps with the dizziness. I've had it prescribed a few times when I had labrynthitis. You can also get the same drug over the counter as "less drowsy" Dramamine.

Good luck,

P.S. I'm not a medical professional and this in no way constitutes medical advice, just my personal suggestion and experience  ;D
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
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01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

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Offline karry

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Re: labyrinthitis bugging me ...need help
« Reply #5 on: August 15, 2011, 09:43:17 AM »
@ Odyssey: Thanks! I will ask my doc about it. I will be sure glad to have anything that will make this go away even for a day.

....oops its same as gravol my doc had asked me to get the last time I had an episode.
« Last Edit: August 15, 2011, 11:59:08 AM by karry »
Take it a day at a time....and be positive about it too!

Offline Matts

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Re: labyrinthitis bugging me ...need help
« Reply #6 on: August 15, 2011, 06:50:32 PM »
I had kind of this disease some years ago. It was horrific, I couldn't even go straight because of balance disorder. I went from doctor to doctor, but nothing helped. Finally I got an intravenous dripper with circulation improving medicine in the hospital; and it was over then.
You can also try Ultraviolet Blood Irradiation, it helps a lot with circulation, bacterial and viral infections. In Europe its more done by alternative MDs, don't know how its available in the US. At least it's inexpensive and does no harm. 

Offline karry

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Re: labyrinthitis bugging me ...need help
« Reply #7 on: August 16, 2011, 09:30:16 PM »
@ Matts: Thanks. I sent you a PM.
Take it a day at a time....and be positive about it too!

Offline OneTampa

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Re: labyrinthitis bugging me ...need help
« Reply #8 on: August 16, 2011, 09:55:11 PM »
I also had what may have been this disease back in 2007.  I posted here about it.  I recall that I could not walk a straight line. I would lose my balance when walking forward and turning my head.  When I lay down and propped my head up, the room would spin.  I also had vomiting and diarrhea.  It turned out that I had an inner ear infection (my suggestion to the doctor who thought I had food poisoning).  After a week's course of antibiotics for inner ear infection, I was right as rain again. I never had this before 2007 or since this episode.

Hope you get better soon.
« Last Edit: August 16, 2011, 09:59:15 PM by OneTampa »
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline Valmont

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Re: labyrinthitis bugging me ...need help
« Reply #9 on: August 18, 2011, 09:01:48 AM »
Hi Karry, I don´t know a lot about your desease and I hope you will be better very soon and can go back to work.  Having a good rest is important, and sometimes it is the best chose to stop working some days for a complete recuperation after, try not to worry about that (easy to say...).  Take care of you, kind wishes...

Apr 2011: Diagnotized
Jun 2011: CD4: 504  VL: 176.000
Dic 2011: CD4: 714  VL: 95.000
May 2012: CD4: 395 VL: 67.000
Jun 2012: CD4: 367
Agu 2012: Starting Emtricitabine 200 mg / Tenofovir 300 mg and Efavirenz 600 mg (2 pills) different brands or VIRADAY/ATRIPLA/Mylan....
Sep 2012: VL: 138
Dic 2012: CD4: 708 VL: <34  %CD4: 32%
Jan 2013: CD4: 707 VL: <20
May 2013: CD4: 945 VL: <34 %CD4: 33%
Agu 2013: CD4: 636 VL: <34 %CD4: 50%
Dic 2013: Latent TB, started Isoniazid


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