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Author Topic: Anybody bold enough to try FOTO strategy for taking meds  (Read 15864 times)

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Offline ElZorro

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Re: Anybody bold enough to try FOTO strategy for taking meds
« Reply #50 on: October 25, 2010, 06:21:35 PM »
Leather -

I can't emphasize enough how great it is to be able to listen to the experienced advice of LTS like yourself. I'm really glad that you were able to "hang in there" because you serve as an inspiration to those of us who are newly infected.

I was just royally scolded about a month ago by my mother. She's a retired nurse and the person I ran to when this all started last year. I was "whining" a bit about having to take the HIV meds (Atripla at the time) and hypothesizing "what if" I just stopped taking the meds for awhile and took my chances. Her response was to show me the handful of pills that she takes every day (at the age of 62) for a variety of ailments (everything from blood pressure to bladder). What she basically told me was to get passed the psychological issues that I was creating for myself and to understand that all I'm taking are antivirals and they aren't going to kill me. It really made me see things in a different light. Of course, I've changed meds since then, but I do take to heart the fact that what my mom said is probably true: those of us who are unfortunate enough to have this virus should recognize that the treatment is viable and we are (hopefully) being adequately monitored for adverse effects.  I'm just glad I don't have to take a pill to prevent me from peeing my pants!  :-\

Offline wtfimpoz

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  • Let's make biscuits!
Re: Anybody bold enough to try FOTO strategy for taking meds
« Reply #51 on: October 25, 2010, 06:54:53 PM »
My concern is that these studies seem limited in their scope.  It is widely presumed that viral load in the cerebral spinal fluid increases the liklihood of neurological complications, and we know that viral load in the CSF correllates with viral load in the blood.  Does this correllation remain in those who regularly skip doses after becoming undetectable? 

EDIT:  I wanna throw out props to Leatherman too.  He's really inspirational to a lot of us.  The person he is today gives me hope for the future.
« Last Edit: October 25, 2010, 06:57:41 PM by wtfimpoz »
mid april, 2010, "flu like illness".
06/01/2010-weakly reactive ELISA, indeterminant WB
06/06/2010-reactive ELISA, confirmed positive.

DATE       CD4     %     VL
07/15/10  423     33    88k
08/28/10  489     19    189k
09/06/10-Started ATRIPLA
09/15/10  420     38    1400
11/21/10  517     25    51

Offline YaKaMein

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  • Posts: 368
Re: Anybody bold enough to try FOTO strategy for taking meds
« Reply #52 on: October 25, 2010, 08:41:37 PM »
Here's a contribution I made on the same subject in another forum. This is a very subjective and individual decision for each of us to make with serious consideration. -YaKa

09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline camille07

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Re: Anybody bold enough to try FOTO strategy for taking meds
« Reply #53 on: October 26, 2010, 08:37:12 AM »
I take Truvada, Norvir, and Reyataz....never took Atripla as a first line.    I take off two days out of the month, 2 separate Sundays.  I would never recommend this for anyone.  I do it because I also take pain meds occasionally.  I start filling like my body needs a break.  I'm still not detectable and high cd of 800, %47. 
I know that this is not as radical as the Foto stragedy, but I would love to see more studies done regarding this stragedy.


Offline mecch

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  • Posts: 13,406
  • red pill? or blue pill?
Re: Anybody bold enough to try FOTO strategy for taking meds
« Reply #54 on: October 26, 2010, 09:36:16 AM »
Converting a few years ago, and going on meds pretty quickly, I hardly think of my experience with these drugs, these days, as having anything to do with poison.
Other people in other situations might think otherwise.
I'd only do FOTO under the advice and surveillance of a ID. 
“From each, according to his ability; to each, according to his need” 1875 K Marx


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