Welcome, Guest. Please login or register.
April 02, 2020, 07:07:13 pm

Login with username, password and session length

  • Total Posts: 753312
  • Total Topics: 63519
  • Online Today: 830
  • Online Ever: 4912
  • (November 13, 2019, 02:56:14 am)
Users Online
Users: 1
Guests: 254
Total: 255


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Hair Loss and HIV  (Read 47204 times)

0 Members and 1 Guest are viewing this topic.

Offline carpidiem10

  • Member
  • Posts: 3
Hair Loss and HIV
« on: April 22, 2010, 12:34:42 am »
Hi all,

I was looking for some help about hair loss and HIV.  A very close person to me has started to have rapid hair loss from around 5-6 weeks after the date where they had intercourse.  They are really scared and can't really find an answer.  They have been to several doctors who have said that it is alopecia of unknown origin.  Would this be the case?

My question is this, can HIV cause rapid hair loss this early after exposure?  Any help would be greatly appreciated to help this worried person.


Offline Stone

  • Member
  • Posts: 56
Re: Hair Loss and HIV
« Reply #1 on: April 22, 2010, 04:20:21 am »
OK so I am clear on this, has your friend tested postive for HIV?  If not, as hard as it will be, the only thing that is going to make him feel better is getting tested.  The anxiety from not knowing is not going to go away and even he gets a definitive diagnosis that the alopecia is caused from something else, next week he will develop a cough that in his mind will be PCP, a white color on his tongue that is thrush, and suddenly get more forgetful which almost surely is Aids related dementia.  I have an autoimmune disease that can cause eye problems so when my vision got poor I did the only reasonable thing which was to quit going to the eye doctor and worry all the time.  When I finally went a year later, I found out that I just needed glassess and it had nothing to do with my disease.  What a waste of a year.  Our minds do such crazy things when we are worried about things that the only way to make it better is to just bite the bullet and get it done.  Just my opinion

Offline tokyodecadence

  • Member
  • Posts: 234
  • A one room disco.
Re: Hair Loss and HIV
« Reply #2 on: April 22, 2010, 06:36:40 am »
PCP after 5 or 6 weeks? Correct me if I'm wrong, but if he gets PCP soon, he would've already been POZ for quite some time. I hardly see someone who is recently infected (if this person is even poz at all) having PCP and AIDS related dimensia so early. But I'm not sure.

Offline leatherman

  • Member
  • Posts: 7,749
  • Google and HIV meds are Your Friends
Re: Hair Loss and HIV
« Reply #3 on: April 22, 2010, 09:53:43 am »
I hardly see someone who is recently infected (if this person is even poz at all) having PCP and AIDS related dimensia so early. But I'm not sure.
Stone was just suggesting how diem10's "friend" could conflate any little symptom into being HIV-related if he's already jumping to the conclusion that the hair loss is HIV-related. We see this kind of behaviour all the time in the Am I Infected? forum. People assume all sorts of "symptoms" to be HIV-related when they could just be "symptoms" of life in general.

diem10, has your "friend" tested positive for HIV? if not, this question should have been posted in the "Am I Infected" forum. Since you say 5-6 weeks after the intercourse, I believe you are trying to link your friend's symptoms to HIV, rather than telling your friend the only way to be sure about his HIV-status is to have an HIV test. You friend also needs to know that using condoms for anal or vaginal sex is the only way to prevent possibly getting infected with HIV. If your friend is worried about HIV because he's losing hair a couple months after unprotected sex, he probably is barking up the wrong tree for the cause of his hair loss.

hair loss in and of itself is not an HIV symptom (though it can be from some of the meds or perhaps long-term HIV infection). You don't mention your friend's age or any heredity traits. Regular hair loss can come about at nearly any age and at any rate. Your friend's best plan should be to get tested for HIV, and once that is ruled out, continue to consult other doctors about his hair loss. If your friend does test positive for HIV, the appropriate doctor (infectious disease/HIV) can determine how high the viral load is, and whether your friend has been infected long enough (in terms of years) to even consider the hair loss as HIV-related rather than normal hair loss which happens to many people - if not nearly all people - hiv positive and negative.
leatherman (aka mIkIE)

chart from 1992-2017

Offline TabooPrincess

  • Member
  • Posts: 311
Re: Hair Loss and HIV
« Reply #4 on: April 22, 2010, 11:19:10 am »
I had hair loss for a few months after my seroconversion (which was around 4 weeks after the exposure) but again the doctor said this was not hiv specific and may just have been from extreme anxiety.  EIther way your friend needs to test first. 

I don't know what it was like for other people but my seroconversion was severe to the point that I couldn't get out of bed for nearly 2 weeks, couldn't eat and felt like my head was going to explode. I had no idea what it was at the time and honestly thought I was dying.  My point is that even with the severity, several trips to the doctor and to A&E none of them thought to consider it might be seroconversion, the symptoms were that of 'flu'.  I tested positive 3 weeks afterwards. 
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Hellraiser

  • Member
  • Posts: 4,155
  • Semi-misanthropic
Re: Hair Loss and HIV
« Reply #5 on: April 22, 2010, 11:20:56 am »
As is the case with everything that seems "out of the norm" I always wonder if it is HIV related.  I had some hair loss but frankly I just think it's genetics.  There are plenty of poz guys and gals with a full head of hair.

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 34,126
Re: Hair Loss and HIV
« Reply #6 on: April 22, 2010, 05:00:08 pm »
I've moved this thread into AM I INFECTED until you clarify whether you or your friend is actually HIV positive or not. If you and he are both negative, then you should not be posting in the other sections of the Forum.

Please clarify.
Andy Velez

Offline carpidiem10

  • Member
  • Posts: 3
Re: Hair Loss and HIV
« Reply #7 on: May 16, 2010, 04:22:56 am »
Sorry for the late reply. Yes he is.

Can anyone give any information if the hair loss can start so soon after being diagnosed?
« Last Edit: May 16, 2010, 04:12:01 pm by carpidiem10 »

Offline veritas

  • Member
  • Posts: 1,410
Re: Hair Loss and HIV
« Reply #8 on: May 17, 2010, 08:37:22 am »

Offline carpidiem10

  • Member
  • Posts: 3
Re: Hair Loss and HIV
« Reply #9 on: May 17, 2010, 05:08:01 pm »

thanks for the links. The doctor seems to not be too switched on from what I can gather so might not be the best source at the moment.  My friend was recently diagnosed, believing that it was event in january that gave positive status.

As the articles say, hiv can indeed cause hair loss as a result of the virus itself.  Can this happen as soon as five or so weeks after seroconversion?



Offline veritas

  • Member
  • Posts: 1,410
Re: Hair Loss and HIV
« Reply #10 on: May 17, 2010, 06:12:17 pm »


Do you know what your friend's cd4 count, viral load, and cd4% is ?

These numbers could give some inkling as to how long your friend has been positive. Not guaranteed, but if your friend has a very low cd4 percentage, this could mean the virus was in the body for awhile.

I don't know if hair loss can occur that quickly, however, if there is some other  issue causing the hair loss, hiv doesn't help.


Offline leese43

  • Member
  • Posts: 257
Re: Hair Loss and HIV
« Reply #11 on: May 19, 2010, 03:07:55 am »
I had hairloss that quickly which I put down to a mix of stress and antibiotics that I'd been on while in hospital. It came out in small clumps which was very noticable. I used a hair loss product that I bought over the counter and within a week of using it my hair stopped falling out and I now have far more than i need!

Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline J.R.E.

  • Member
  • Posts: 7,660
  • Joined forum Dec/2003 Living positive, since 1985.
Re: Hair Loss and HIV
« Reply #12 on: May 19, 2010, 08:55:00 am »
I've never had a problem with hair loss.  If anything it grows faster and thicker as I get even older.

If I were to shave my chest hair and stomach, I may be able to soak up a gallon or two of Gulf oil with it.  

« Last Edit: May 19, 2010, 08:57:02 am by J.R.E. »
Current Meds ; Viramune / Epzicom , 20 mg of Atorvastatin, 25 mg of Hydrochlorothiazide.
Amlodipine Besolate 5mg-- Updated 1/14/20

Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/16/19,  Viral load remains <40

CD 4 @422 /  CD4 % @ 16 %

 68 years young.

Offline Inchlingblue

  • Member
  • Posts: 3,117
  • Chad Ochocinco PETA Ad
Re: Hair Loss and HIV
« Reply #13 on: June 04, 2010, 11:47:16 am »
Low thyroid levels (hypothyroidism) can cause hair dryness and hair loss, not a bad idea to get that checked.

Offline HippieLady

  • Member
  • Posts: 219
Re: Hair Loss and HIV
« Reply #14 on: June 04, 2010, 12:01:51 pm »
I had severe hair loss during my seroconversion sickness.  It feel out in clumps and I had to get it cut a certain way to cover the bald spots.  At the time though, I thought the hair loss was a reaction to an antibiotic they had given me for "whatever illness" was causing me to be sick.  At the time my doctors said nothing about possible hiv infection even with my full medical history (including the rape).  They said I had a severe strep infection and possibly valley fever...I was sick for over two months with hair loss, high fevers, horrible skin rashes and swollen lymph nodes in my neck and behind my ears.

Hair loss may not happen to everyone but it was definitely one of my symptoms.
Diagnosed HIV+ April 30, 2010

Current CD4-638  VL-UD  11/2013


Terms of Membership for these forums

© 2020 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.