Welcome, Guest. Please login or register.
November 22, 2017, 12:54:48 AM

Login with username, password and session length

  • Total Posts: 722635
  • Total Topics: 58730
  • Online Today: 293
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 3
Guests: 288
Total: 291


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Diagnosed with AIDS 3 years ago and still here  (Read 3139 times)

0 Members and 1 Guest are viewing this topic.

Offline jcmiami

  • Member
  • Posts: 32
Diagnosed with AIDS 3 years ago and still here
« on: October 22, 2009, 10:01:17 PM »
Hi all, I felt like posting this because I want to give some hope out there. My name is Jose and I was diagnosed with full blown AIDS 3 years ago- of all days - Halloween! I was hospitalized with Pneumocystis carinii pneumonia (PCP) and Thrush, CD4 was 21 and Viral load over 800,000. I was hospitalized for over 3 weeks and was in real bad shape but I survived. The funny thing I never looked sick, never lost weight, never had that sunken face look - nothing but I was sick as hell. I remained the stocky guy I always was - not even with AIDS did I lose weight LOL!
Fast forward to now, I work a full time job and planning to finish school. I have my days of really bad fatigue then some bouts with depression as well - not an easy road but you go on. I am blessed to have a wonderful family and friends. I also possess a wacky sense of humor and a stubbornness to face obstacles and jump over them. The thing is you must go on and not to wallow in your illness. I joke about my diagnosis all the time and I even call myself "nuclear." LOL!

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,785
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #1 on: October 23, 2009, 07:39:15 AM »
Welcome JC.  How long have you been positive?

Edited to add:  This thread started out in the "LTS'ers" forum, hence me asking how long JC's been positive.
« Last Edit: October 23, 2009, 07:43:06 AM by BT65 »
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Condom and Lube Info http://www.aidsmap.com/Condoms/page/1044833/
Please check out our lessons on PEP and PrEP. http://www.poz.com/factsheets/fs_2014_09_prep.pdf


Offline Trace67

  • Member
  • Posts: 37
  • Live, Love, Laugh!
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #2 on: October 23, 2009, 09:45:40 AM »
I am so glad that you are doing well-this disease can create an illusion. I was diagnosed with full blown AIDS 5 years and I too didn't look ill as I was the epitome of health. One thing that I have learned is that often the healthiest looking can be the most ill-strange! Take care of yourself Live, love, laugh!!

Offline weasel

  • Member
  • Posts: 1,873
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #3 on: October 24, 2009, 09:10:26 PM »
Glad you are doing well !

 I have  been pos for nearly   30  years !!!!!!!!!!!!!!!!!!!

    AIDS   bloomed  5 years ago  :o

   Life goes on .

Some days are so awful I wish I were dead !

   BUT most days are so peaceful and  good , I bless  GOD  that I made it threw  the

 worst part of it all !

 That would be the loss of ALL MY FRIENDS !!!!!!!!!!!!!!!!!!!!!!!

 Life is often lonely ! I know there are Millions of people out there !

 It is hard to make new friends and NOT let go of the dream boats that died  :'(

   I wish you the best ! 

   You GOT IT ALL !

Never forget YOU are living in THE BEST TIMES TO HAVE HIV/AIDS !!

                            be well , Carl

" Live and let Live "

Offline WildcatCC

  • Member
  • Posts: 91
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #4 on: October 26, 2009, 03:23:52 PM »
Hey (neighbor!) JC. My story is so similar to yours. I just wanted to say hi and welcome and keep at it, my friend.  ;)
Apr  08 - Diagnosed
Apr  08  cd4 8, vl 150k
Meds: Prezista/Norvir/Truvada
June 08 cd4 250, vl 1600
Aug  08 cd4 275, vl 450
Meds: Atripla
Nov  08  cd4  386, vl 255
Jan   09  cd4  415, vl 2100 (spike?)
Feb   09  cd4 460, vl 212
May   09  cd4 515, vl 1200
Aug   09  cd4 717, vl 1535 % 23
Sept  09  cd4 535  vl 1710 % 18
Oct   09  genotype shows mutation. Discussing w/ ID Doc
Nov  09   cd4 480  vl 650   % 19
Dec  09 genotype slight mutation to Epivir and Retrovir
Jan 10   cd4 508 vl 250 (21%)  low vitamin d - on supplement 2000 iu/day
Mar 15 Change to Isentress and Truvada
May 5 cd4 498 vl 1485
June 16 cd4 550 vl undect!!!! (finally dammit)

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #5 on: October 26, 2009, 04:51:19 PM »
I joke about my diagnosis all the time and I even call myself "nuclear." LOL!

Didn't you know?  AIDS is serious business. . . just like the internet is.   ;)

Good to see that you're doing well and moving on. 
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline rioz

  • Member
  • Posts: 54
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #6 on: October 26, 2009, 08:03:54 PM »
Yes BlueMoon,

Moving on. It's all about moving on...

Somedays are harder than others.

Living with HIV since 1985
Living with AIDS since 2007

Truvada, Lexiva, Norvir, Levothyroxine, Testim, Sertraline, Crestor


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.