Welcome, Guest. Please login or register.
October 22, 2017, 06:26:07 AM

Login with username, password and session length

  • Total Members: 31675
  • Latest: Lucia99
  • Total Posts: 721066
  • Total Topics: 58494
  • Online Today: 357
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 3
Guests: 254
Total: 257


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: TB in the brain  (Read 6052 times)

0 Members and 1 Guest are viewing this topic.

Offline snoofle

  • Member
  • Posts: 54
TB in the brain
« on: October 15, 2009, 04:43:07 PM »
So my boyfriend was diagnosed with cryptococcol meningitist end of July and was started on amphotericin and diflucan via IV..he was doing really well and had a great appetite..was taking his meds and everything.

About 1.5 weeks ago, he stopped eating, had no appetite, was constantly vomiting even if he didnt eat anything. So I finally convinced him to see his doctor this past Friday; as a result of him not eating and vomiting alot, the doc admitted him to the hospital. They did a series of tests (CTs, MRIs, a few LPs) and found some lesions/cysts on his brain pressing up against his eye (which right now, his right eye cant stay open..he seems to have lost the muscle function to keep his eye open). They did another LP to hopefully get enough cells from the spinal fluid to see whats in his brain.

Yesterday, out of nowhere, his ID doc ordered a TB skin test and this morning told my boyfriend that she thinks he has TB in the brain. I have NEVER heard of something like this and reallllly concerns and upsets me. We are still waiting for the TB skin test to be reactive or not, but she has started him on TB antibiotics anyways and moved him to an isolation room.

Like I said earlier, I have never ever heard of TB in the brain and wanted to hear from others who may know someone who had it or had it themselves or just have some good info on it. Because to me, this sounds like something he could potentially die from..I just feel constantly worried and stressed now.  :(

Offline PozBrian

  • Member
  • Posts: 202
Re: TB in the brain
« Reply #1 on: October 15, 2009, 06:39:40 PM »
   I reacted to a TB skin test that was one of the tests I got when they took what seemed like a gallon of blood when I first tested HIV+.  I didn't think much at the time when I got the test read but apparently the size of the reaction required to to trigger treatment for TB is much smaller when HIV + than otherwise. I was promptly sent for a chest x-ray that was clear. A month later I started INH for a latent TB infection. I'm not infectious to anyone, but is important for my health.
   What I discovered over that month of research was that when HIV+ the risk of a latent TB infection becoming active changes form 5%in a lifetime to 5-10% each year. I suppose that the status of one's immune system plays a big part in that too. I also found out that there are lots of places TB lesions can show up. Lung obviously, but also the brain, digestive system and other internal organs. I was actually more disturbed by the potential risk to me from TB than HIV at that point. Active TB is relatively rare in the US so we don't think much about it usually. It is however, one of the biggest killers of people with HIV in the parts of the world where it is prevalent.

Here is a link to the CDC about TB and HIV together.

I'm sorry to hear about your friend. Assuming he doesn't have a drug resistance form of TB, and he takes his  TB meds until the treatment is finished, TB is treatable.
Currently Trivicay & Truvada
1/15 549 37%UD
9/14 778 35% UD
5/14 537 36% UD
6/13 632 36% UD 
6/12 559 39% UD
11/09 CD4: 379, 25% VL: UNDETECTABLE!!
10/09 CD4: 245, 25% VL: 87
9/09 CD4: 246, 24% VL: 49!
8/09 CD4: 277, 26% VL: 115
7/09 CD4: 346, 24% VL: 221
6/09 started meds.
4/09 HIV +, CD4: 397, 16%  VL:195000, PPD reactive

Offline Ann

  • Administrator
  • Member
  • Posts: 28,138
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: TB in the brain
« Reply #2 on: October 15, 2009, 07:33:07 PM »
Hi Snoofle,

Sorry to hear about this. TB in the brain is called Tuberculous meningitis. There's an informative article on it here.

It sounds like they've caught it early enough, so he should be fine in time. Don't forget to look after yourself while your partner's unwell, and hang in there. Good luck and keep us posted.

Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline snoofle

  • Member
  • Posts: 54
Re: TB in the brain
« Reply #3 on: December 10, 2009, 02:31:20 AM »
BF had an urgent call from his doctor today and had to go in.

The good news was all TB cultures came back negative so he gets to go off all TB drugs for now

The bad news, looks like hes developed resistance to his Kaletra b/c his numbers dropped from ~300 to 134 so his doc is keeping his Truvada and adding Prezista and Norvir for a 30 day trial. Makes me so nervous, b/c hes still recovering from the crypto and all the HIV-related brain lesions.  :-\ :-\ :-\

Offline Sebastian1969

  • Member
  • Posts: 71
Re: TB in the brain
« Reply #4 on: December 10, 2009, 08:56:13 PM »
glad to hear about the TB tests.  There will come a day when the doctor gives all good news.  I hope that the med change is successful and with the next round of test EVERYTHING comes back better and nothing new is found. 
I have no experience with TB, I have tons of experiece worrying.  Try to keep your worrying to a minium and concentrate on the good things and the good news.  I have found, that with me andd my partner,  the more I worry, the more he worries and then he worries about me being worried about him--a never ending cycle.  I know it sounds tupid, but try changing the worry to "concern".  It has helped me to think of it as "I am concerned about his numbers, meds, and so on" rather than worrying about them.  I know that may not make any sense, but in my mind it does and my mind sees concern and love as being productive and worrying as sometime being harder to deal.
In short, hope all goes better, and everything gets in line for him, numbers and all.


Terms of Membership for these forums

© 2017 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.